[dseckt]

If Lyme is spreading as fast as reported on other sites.. Why is there no activity here?

[mrsD]

There are discussions about Lyme on our PN forum. If you use the search engine you will find more at:

http://neurotalk.psychcentral.com/forum20.html

The topic of Lyme, and its increasing incidence is still highly controversial. Hard to diagnose and difficult to find a Lyme literate doctor, are also factors in hindering understanding.

[dseckt]

Originally Posted by mrsD

There are discussions about Lyme on our PN forum. If you use the search engine you will find more at:

http://neurotalk.psychcentral.com/forum20.html

The topic of Lyme, and its increasing incidence is still highly controversial. Hard to diagnose and difficult to find a Lyme literate doctor, are also factors in hindering understanding.

Morning MrsD
I have read every post regarding lyme in the PN forum.. I'm just wondering why there isn't more activity here.. I understand Lyme is controversial.. My primary care doctor and a "infectious disease doctor" both disagree with my Neurologist regarding that I have Lyme disease. Real puzzle.

[mrsD]

This disagreement, may also spill over to insurance coverage for that diagnosis, too. That would be a huge factor in people electing to not get treated.

Lyme is still a contentious subject and I guess the people are not coming in from Google on our forum here. We seem to get many many Google visitors and other search engine new members on many other forums here.

For what it is worth, I never saw many RXs either for long term oral antibiotics for Lyme. Many are IV however, but still many oral (those on IVs would go thru home care facilities not retail).
We had a very prominent infectious disease doctor in our area, and mostly he was writing for antivirals, and antifungals. I didn't see much Lyme oral treatment from him either.

This arguing between various doctors about Lyme is similar to the frictions about using T3 for functional hypothyroid. The controversy there is hot always. The holistic doctors using high dose iodine and T3, and the endocrinologists debunking it all and saying levothyroxine T4 is the best way to treat. This controversy has been quite ongoing here for at least a decade.

[dseckt]

3 years ago I started having terrible leg cramps, from my hips to my calves. This was happening day and night. I have been treated for neuropathy and after 2 EMGs they say the neuropathy is mild. Over the last 3 years the dosage of Gabapentin has gone from 200mg 3 times a day to 1200mg 3 times a day. Still the cramps continue to the point that if I walk maybe a few hundred feet my legs start to cramp up. So 3 months ago my Neurologist ordered more blood work and supposedly he sees positive for Lyme. I then went on 30 day antibiotics, than more blood work that now shows negative. The leg cramps continue. You’re right about the insurance. I have no real diagnosis. I’m in trouble at work because my job requires me to do a lot of walking and I’m at the point that I can’t. Disability is not an option, because no one can say what the cause is. Depressed in Ohio. Just looking for that one other person with the same problems.

[mrsD]

I really think you should try the magnesium lotion that is just on the market. Many of us here on several forums find it extremely useful. It will stop the cramping somewhat or completely if your cramps are due to circulatory issues. It dampens pain receptors, and is not expensive.

Morton epsom lotion: at WalMart and online at Amazon.
Apply only a quarter's diameter to one leg daily and see what happens. Compare to the other leg. I find it wonderful for muscles and enough does get into the body to help with PN as well.

Do you smoke? If so you will have to stop, as smoking can cause symptoms like you describe.

400IU of natural type Vit E also helps circulation. If you want to try that for a month with the magnesium. If you smoke, however Vit E is not recommended, as it has been linked to lung cancer in smokers.

Have you had Vit D and B12 measured by tests. This might be something to investigate too. B12 should be at 400pg/ml at least.

[Jennifer2014]

Originally Posted by dseckt

Morning MrsD
I have read every post regarding lyme in the PN forum.. I'm just wondering why there isn't more activity here.. I understand Lyme is controversial.. My primary care doctor and a "infectious disease doctor" both disagree with my Neurologist regarding that I have Lyme disease. Real puzzle.

I'm in the same boat Most LD patients want the doctor to say lymes and they never do.. where as my neuro is saying lyme and not MS (I think MS) and my primary is saying no... Good lord right! I'm having a final test through igenix and than getting off the LD convo as it's too much for me. Good luck <3

[Jennifer2014]

Originally Posted by mrsD

I really think you should try the magnesium lotion that is just on the market. Many of us here on several forums find it extremely useful. It will stop the cramping somewhat or completely if your cramps are due to circulatory issues. It dampens pain receptors, and is not expensive.

Morton epsom lotion: at WalMart and online at Amazon.
Apply only a quarter's diameter to one leg daily and see what happens. Compare to the other leg. I find it wonderful for muscles and enough does get into the body to help with PN as well.

Do you smoke? If so you will have to stop, as smoking can cause symptoms like you describe.

400IU of natural type Vit E also helps circulation. If you want to try that for a month with the magnesium. If you smoke, however Vit E is not recommended, as it has been linked to lung cancer in smokers.

Have you had Vit D and B12 measured by tests. This might be something to investigate too. B12 should be at 400pg/ml at least.

Very interesting and thanks for the tips! Where might one by this new lotion and what's the name? I'm getting tested now for B12... Geez... can B12 cause THAT bad of symptoms

[mrsD]

Morton Epsom Lotion=available at WalMart and online at Amazon.

Apply about a quarter's diameter dollop to the affected area (if large), or a dime's worth, if feet or hands. apply only to intact skin, and only use a little bit each time. It is quite strong and the magnesium will be absorbed well enough to perhaps not need oral supplements. This is soothing and relaxing, so try it at bedtime for a good night's rest too.

[dseckt]

Originally Posted by Jennifer2014

I'm in the same boat Most LD patients want the doctor to say lymes and they never do.. where as my neuro is saying lyme and not MS (I think MS) and my primary is saying no... Good lord right! I'm having a final test through igenix and than getting off the LD convo as it's too much for me. Good luck <3

I would really like to hear about your symptoms and current treatments.