My sister has Lymes disease, Erlichiosis actually (a specific type of Lyme if I spelled that right). She has had it for the past 3+ yrs and it is escalating despite repeated heavy doses of antibiotics. In fact she is now having many, mini-strokes a day. She is getting nowhere with the Dr.s she has seen (Neurologist, GP). She does however have an apt with The Mayo Clinic in August but she just read some mixed reviews on their tx with Lymes.

Any thoughts or ideas would be appreciated.

Thanks.

Hi Kristen, I don't have any info about Mayo's lyme treatment but I would recommend that your sister find a lyme-literate md(llmd). They often don't accept insurance, but some insurance companies will reimburse some of the appointment. A llmd can suggest many treatment options along with/besides antibiotics, and tend to be the most knowledgable when it comes to lyme or it's co-infections. I don't know the name of the site, but if you search around a little on the internet you should be able to find a site that will locate a llmd in her area.

Take care, Diana

you are so correct - it saved my life when I finally joined the Yahoo medical group for lyme in my area and got a referal to a lyme literate doctor. That is the BEST way to find the local reliable resources for a good doctor

Hi, I am so sorry to hear about your sister but I would only trust Mayo for treatment of smptoms. They don't treat lyme. Neither does Johns Hopkins or Mass General. It might be helpfull for the effects of lyme but if left untreated the problems will persist. Columbia in NYC is "doing reseach" but not clinical treatment. You should goolgle "under our skin". Prayers and happy thoughts coming your way.