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Old 08-02-2011, 11:07 AM #1
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I wrote a letter to my GP last thursday, telling him what went on during the Neuro consultation. I also included the history that I had prepared for the Neurologist. This morning I received a letter from the Hospital informing me of an EMG appointment --TOMORROW. Could someone have actually taken notice of my distress?
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Old 08-05-2011, 05:38 AM #2
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As Arranged, I attended the appointment. The neuro had only ordered that my leg tingles be checked. All clear and normal was the result. I asked him to check the buttocks since I feel nothing in those muscles. All clear and normal, he said.
Whilst I was standing there with my pants around my ankles I was using a nearby unit for balance --just using two fingertips. He told me to let go and stand "you can do it" he said (they always know, don't they). I immediately went into a wobble and fell flat on my back -- he made no attempt to enquire if I was uninjured. The nurse stood by whilst I got myself back on my feet (the best way).
I have no idea what the next move will be. I should imagine that the neurologist is in the same boat.
The EMG doc did say that the problem was elsewhere -- meaning the brain and spinal cord. I wonder if the Neurologist knows what that is.
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Old 10-03-2011, 07:27 PM #3
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Quote:
Originally Posted by jackie66 View Post
Over the past couple of years i have been reading on sites such as this that more and more doctors are prescribing anti-epileptic drugs for depression and pain relief.

Personally I am horrified, since I have first hand knowledge of the effects of these drugs, and have studied the subject of Neurotoxicology.

These drugs do indeed ease pain and miniscule doses do ease depression. What worries me most is the fact that doctors are prescribing high doses on par with anti-convulsant therapies.

All anti-epileptic drugs are cerebellar toxic. The cerebellum is a part of the brain responsible for regulating movement and balance. I personally have cerebellar lesions caused directly by these drugs. I have cerebellar/brainstem dysfunction. This means that I cannot stand or sit unsupported.

Withdrawal from these drugs is very dangerous. In my case the neurologist withdrew the drugs abruptly. I suffered a withdrawal convulsion so severe that I broke my back. I also suffered spinal cord damage and a dislocated rib.
I am now paralysed and need a wheelchair to get about. Do not ever discontinue taking these drugs abruptly.

Experience has shown me that doctors do not study the actions and effects of drugs--especially this group. They do indeed stop pain but only by causing damage to the central nervous system. The right side of my face is paralysed and the right sterno cleido mastoid has shrunk to nothing. All this has occurred over many decades of long term low dose.

It is true that the doctors have found an effective painkiller. What will the eventual price be?. They used to use arsenic and mercury as cures in the same way that they are blindly using these very powerful drugs. They dont seem to be bothered about the final outcome, after all, they are only patients aren't they. The doctors are professionals who are allowed to conceal their failures

im sorry for your reactionbut i replied to this post to say your VERYright when you say never withdraw from meds too fast.

sue dyas
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