Whilst I was waiting to see the neurosurgeon for the results of my MRI scan, I noticed on the table, a model of the spine and pelvis. Included in the model were the ligaments sacral/pelvis and pubis.
I at once realized that the pain was eminating fom these ligaments and not from any bone.
The neurosurgeon, upon seeing me sitting in my wheelchair, did a short examination of my legs and recorded that I have some antigravity function in both legs and that sensation was altered somewhat mainly on the right side.

I now began to realise that I was putting extra effort into my mobility to counter the weakening leg situation. The extra effort was causing me to overload those ligaments thereby causing some damage. The damage also caused inflammation in the whole pelvic region which in turn led to the loose bowel problem.

The Neurosurgeon recommended that my GP refer me to a Neurologist. This means another long wait. I still had no advice regarding the pelvic problem so I decided the only way to get relief was to sort out the problem myself.

I reasoned that if I kept load off my pelvic region, the ligaments would heal in due course and that would reduce the inflammation --- and -- hopefully end the bowel problem.
I have been following this course of action for several months now. I am fairly sure that I have succeeded in allowing the ligaments to heal since the pelvic discomfort is no more -- and -- my bowel actions are almost normal now.

When I eventually get to see the Neurologist I fully intent to put him/her straight regarding the unreliability of my medical records and merely seek an honest and accurate examination and diagnosis.
pigs are flying low today ----------

I have received a date for a neurology appointment Monday 18th July.
It should be quite interesting. The problem with my neck, I believe, is due to the brainstem dysfunction causing the spinal accessory nerve to malfunction. ( I wonder if they will spot it) The right upper eyelid also is drooping, --another cranial nerve misfunctioning.
The only real puzzle I have is why my buttocks should be not working. From what I read, this bit involves the sacrum area nerves. Ah well, we will see.

The appointment was extremely interesting. The total consultation was just 15 minutes. The Doctor read my prepared history, but I doubt very much if he understood it. He was a foreign person and without any examination he declared the SCM atrophy was due to old age and told me to forget the past.
Thankfully he did order an EMG test which is basically what I wanted.
I have no faith or trust in this person. He did not examine any muscle functions and it seems that he forgot to bring his tuning fork along. He conducted Babinsky test in half a second, and I dont think he was actually looking at my feet at the time. After reading my prepared drug record which said that I have taken no drugs for 20 years, he asked what drugs I was on now.
This is an example of the National Health Service in West Yorkshire. They may boast about saving some patient's lives - but I do wonder how many they have actually killed

I wrote a letter to my GP last thursday, telling him what went on during the Neuro consultation. I also included the history that I had prepared for the Neurologist. This morning I received a letter from the Hospital informing me of an EMG appointment --TOMORROW. Could someone have actually taken notice of my distress?

As Arranged, I attended the appointment. The neuro had only ordered that my leg tingles be checked. All clear and normal was the result. I asked him to check the buttocks since I feel nothing in those muscles. All clear and normal, he said.
Whilst I was standing there with my pants around my ankles I was using a nearby unit for balance --just using two fingertips. He told me to let go and stand "you can do it" he said (they always know, don't they). I immediately went into a wobble and fell flat on my back -- he made no attempt to enquire if I was uninjured. The nurse stood by whilst I got myself back on my feet (the best way).
I have no idea what the next move will be. I should imagine that the neurologist is in the same boat.
The EMG doc did say that the problem was elsewhere -- meaning the brain and spinal cord. I wonder if the Neurologist knows what that is.

This morning I made an official complaint as to my recent treatment. I don't think it is too much to ask for the Doctor to ensure the patient is safe.

On monday I went to St James hospital A&E dept presenting with headaches and was diagnosed with concussion as well as other neurological deficits

im sorry for your reactionbut i replied to this post to say your VERYright when you say never withdraw from meds too fast.

sue dyas

I have now allowed a timelapse for that foriegn "neurologist" to make a follow up appointment. ---No such appointment has been made...

When I first saw this "neurologist" I was amazed at the speed he went through the motions of an examination. Since the transfer from wheelchair to examinatuion couch had caused my front thigh muscles to go into painful spasm, I expected him to wait until I was back in control of those muscles --but no-- he grasped both my ankles in his huge hand and continued his examination. When he quickly scratched the soles of my feet he wasnt even looking at my feet so could not have seen my toes on the right foot spreading -indicating possible cerebellar problems.

I wrote to my GP complaining about this man and I enclosed the history I had presented. I told my GP that this man had in fact read my history but I doubted very much if he understood what he was reading. Also I told my GP that this "neurologist" had told me that my sterno-cleido-mastoid atrophy was due to old age, and that I should forget the past. Since he had made no examination of my paraspinal muscles, it convinced me that this man was a fake foreign doctor.

The records I presented stated that I was aware that none of the Doctors I had seen knew about the cerebellar toxicity of antiepileptic drugs -- or ataxia- or anticonvulsant hypocalcaemia. Hence the undiagnosed cerebellar/brainstem dysfunction or the undiagnosed truncal ataxia or the misdiagnosed osteoporosis in those hospital records.

The hospitals involved were the Leeds General Infirmary and Pinderfields hospital. Both of these hospitals treat epileptic patients, and both of these hospitals claim to monitor the patients' drug regimes. Experience has shown me that they only monitor the drug levels in the patient in line with the manufacturers instructions. Experience has also shown me that both of these hospitals do not monitor the condition of the patients and the effects of toxicity on the patients. It is pure ignorance that is the problem. Doctors who do not know --or even care- what effect those powerful drugs are having on their patients

This can only be described as criminal negligence