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Old 11-30-2011, 08:02 PM #1
mistyangel mistyangel is offline
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Confused neuropathy

has anyone tried the neuropathy support formula ? i was on gabetin witch did nothing and am now on LYRICA which makes me very tired and dry mouth.
i have burning and numbness in my feet which drives me crazy at bed time, i've had this for 2 years and it seems to be getting worse ! if anyone has tried the neuropathy formula please let me know if it worked for you. Thank's
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Old 12-01-2011, 11:56 AM #2
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Quote:
Originally Posted by mistyangel View Post
has anyone tried the neuropathy support formula ?
If you're referring to the one being sold by the neuropathy support group (can't tell - there seem to be other supplement products with similar names)...

I've not tried that specific formula per se, but I and a good many people on this group have been taking what's in it (except for the "Propriety Blend", which could be anything/nothing).

I haven't seen its pricing, or done the math, but from experience looking into similar supplement combinations, I suspect it's more economical to buy the B vitamins and ALA separately (and possibly better formulations). Buying them separately also offers the option of titrating each component to suit our individual needs/results.

I think one could do much better reading the STICKY threads and PN Tips, Resources, Supplements & Other Treatments Sub-Forum in the Peripheral Neuropathy forum here:
http://neurotalk.psychcentral.com/forum20.html
learning about these various supplements (and others), how & why they work, and tailoring them to your needs.

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Old 12-06-2011, 10:14 AM #3
Terry Mooney Terry Mooney is offline
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Quote:
Originally Posted by mistyangel View Post
has anyone tried the neuropathy support formula ? i was on gabetin witch did nothing and am now on LYRICA which makes me very tired and dry mouth.
i have burning and numbness in my feet which drives me crazy at bed time, i've had this for 2 years and it seems to be getting worse ! if anyone has tried the neuropathy formula please let me know if it worked for you. Thank's
I was taking Gabapentin for the same symptoms while awaiting a diagnosis, and experienced similar results. Following diagnosis of PN of unspecified origin
my Dr. prescribed Prednisone which has been effective in reducing the symptoms you have described, in my hands but thus far not in my feet. but it looks promising. Along with Prednisone, I take a supplement D-Ribose which also seems to help. I happened to catch an article on Tv news about Neurontin (Gabapentin) users involved in legal action against the pharmaceutical company.
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Old 12-07-2011, 12:24 AM #4
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I happened to catch an article on Tv news about Neurontin (Gabapentin) users involved in legal action against the pharmaceutical company.
I think I (for one) would be very interested in reading about that. Got a link? TIA

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Old 12-07-2011, 12:23 PM #5
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Quote:
Originally Posted by mistyangel View Post
has anyone tried the neuropathy support formula ? i was on gabetin witch did nothing and am now on LYRICA which makes me very tired and dry mouth.
i have burning and numbness in my feet which drives me crazy at bed time, i've had this for 2 years and it seems to be getting worse ! if anyone has tried the neuropathy formula please let me know if it worked for you. Thank's
I had 8 strokes when i was 14, for 7 years i had spasims, tighness and terrible pain in my leg leg. made my life very sedatary. even sitting didnt relax my foot (it resembles a club foot after the strokes) nothing could relax my foot, bu i am taking gabapentin nd it made the pain stop. so far no nasty side effects. its alot like lyrica. it actually came out before lyrica. maybe try it. hopefully you can finally get relief. this med has changed my life in only 2 dys of using it. i thought my life would be all about dealing with pain and suffering. its a miracle to me.i cant stop crying out of happiness. give it a try!!!i finally gt relief and im usre its out here for you as well!! good luck!!
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Old 12-07-2011, 03:14 PM #6
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I suffered the burning feet pain of peripheral neuropathy like most others here in the PN forum. I was prescribed gabapentin, and it worked, but with the same crappy S/E most folks deal with. Bleah. If it were the only game in town, I'd probably still be using it (or Lyrica, or Dopamax), but it's NOT the only game in town.

At the beginning of this year ('11) I sarted taking 100 mg. of R-Lipoic Acid (the chief ingredient in this "neuropathy support formula" and one that is made naturally in our own bodies) every morning. Within 48 hours, the burning pain in my feet was GONE (results not typical). Now there is an improved "stabilized" version of RLA that's supposed to work even better. Some months later I added 500 mg pantothenic acid (B5) to my regimen, and the further improvement was aslo worthwhile (reducing the shocks, jabs, and cramps). Acetyl-L-Carnitine also helps some folks. Most of us are taking B-12 (methylcobalamin).

All this information is in the threads I mentioned in my previous post in this thread.

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