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Medications & Treatments For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity. |
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05-27-2012, 11:35 AM | #1 | ||
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And, I wrote to freyra at NIH. We'll see what happens
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04-11-2018, 12:39 PM | #2 | ||
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02-16-2019, 07:58 PM | #3 | ||
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Pamoohlah-
There is an article that refers to 7 cases of treatment using biphosphonate alendronate. This might be worth mentioning to your neurologist . This medicine may be able to provide respite for current sufferers and potentially delay onset in others tested as high risk. **************. More trials are neded though. |
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10-05-2013, 09:34 AM | #4 | ||
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02-14-2018, 02:27 PM | #5 | ||
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I've been treated for physical problems ie, degenerated disc disease, spinal stenosis, osteoporosis; I have a spinal stimulator implant, and pain shots every 4 months, but have been diagnosed last year with Fahr's Disease! But I'm 74 years old,and am ambulent and I can still think! Stress can play a part, I've learned, but how can one control stress when thinking about this disease? I'm interested in the program you mentioned that has been reopened in studying Fahr's Disease...
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06-08-2012, 06:32 PM | #6 | ||
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Quote:
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06-30-2012, 12:01 PM | #7 | ||
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Quote:
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10-06-2012, 11:26 AM | #8 | ||
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Quote:
I have Fahr's too, but not any pain, yet. Its a shame that there is no treatment or even any research! Paula, 64 diagnosed 08. |
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10-05-2013, 08:15 AM | #9 | ||
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Hi,
First post here from the UK, London area. My best friend Terry has been diagnosed within the last 6 days with Fahr's Syndrome and both myself and his family are looking for all the help we can get. He is 43, and started fitting/having seizures at night 10 days ago. His worst episode was on Sunday 30th September 2013 when he had 3 seizures in a short space of time and was taken to hospital where a CT scan immediately showed calcium deposits on the top of the brain. Medication to control the seizures has been prescribed and taken from Monday 1st October. Can anyone help us as we are desperately worried? Thanks Ruppy. |
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12-09-2015, 03:34 PM | #10 | ||
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My 48yr-old brother-in-law has this. Very Parkinson's like, with added mental mellowing. What are we to expect? What is the likelihood of his daughters getting this?
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