Hi guys. I'm new to the forum. My name is Krysse and I have Lupus. I was diagnosed at 18, I'm 27 now.

Though I'm not here to discuss Lupus, I am here to discuss Myasthenia Gravis, which my father-in-law has. I am very close to my in-laws.

Background: He has had it for over a year. He has had that gland removed and it didn't help ... when the gland was removed, they paralyzed one of his vocal cords and now his voice is a raspy whisper. We are trying to get him into UCLA to get his voice fixed, but cutting through all the red tape is a nightmare. He had another surgery shortly after the removal of the gland when we determined that due to his MG he is extremely sensitive to anesthesia. The second surgery landed him in the ICU and on a breathing tube for several days. My father-in-law is in his 50s. He was diagnosed after experienced blurred vision. He takes many supplements and has been even before he got MG.

Question: He returned from his neurologist today who put him on a starting and continuous dose of Prednisone 40 mg/day because of his eyelids. As a Lupus patient myself, I'm familiar with this drug and the side effects as I've been on and off of it for almost 10 years ... never 40 mg though. I find this dosage to be very high and am extremely concerned as I know first hand how awful the side effects are. My question is, is this a normal dosage for MG patients? Have any of you been on this dosage and for how long? Did it help?

Also, I don't know the name of his MG drug, but he was taking it 4x/day and has been able to cut back to 2x/day at half a pill. As I mentioned earlier, he takes a lot of supplements. What supplements are particularly bad for a MG patient?

Any feedback would be much appreciated! I am going to browse through other threads in the meantime and apologize if I'm posting under the wrong topic.

Thanks in advance.

Hi Krysse. Welcome to NeuroTalk.

I've posted a link to our MG forum if you'd like to post this in that forum as well. You might get more responses that are more specific to MG.

http://neurotalk.psychcentral.com/forum77.html

Thank you!