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-   -   Lyrica Withdrawal Syndrome (https://www.neurotalk.org/medications-and-treatments/192315-lyrica-withdrawal-syndrome.html)

Cynthus 09-08-2015 03:16 PM

That last was a response to Marie33, I am still learning how to use the forums . . .

Diandra 09-08-2015 05:34 PM

Quote:

Originally Posted by Cynthus (Post 1169629)
That last was a response to Marie33, I am still learning how to use the forums . . .


Hi Cynthus,
Don't worry about it. We all had a learning curve when we started.
You are doing fine.

Just use the REPLY button at the bottom of any post you want to reply to and have a copy of what they said. For example, at the bottom of Marie33's post, just hit REPLY. Say what you want and you can use the buttons at the bottom to either PREVIEW POST or SUBMIT REPLY.

If you want, just hit the REPLY button at the bottom of this post to try it out.
( Mods...hope that is OK.)

My best,
D.

Jomar 09-08-2015 07:18 PM

Quote:

Originally Posted by Cynthus (Post 1169629)
That last was a response to Marie33, I am still learning how to use the forums . . .


The FAQ link in my siggy, or in the blue divider bar above will help you learn to use the site better.

triviafriend 12-05-2015 03:15 PM

Happy Holidays
 
Just want to tell you all that you WILL beat this! It's hard, it sucks, it feels terrible...but you can succeed. Remember to go as slow as you need to. **

what a ride 01-11-2016 02:43 AM

Quote:

Originally Posted by triviafriend (Post 1004664)
Hi everyone...I know that there have been several threads posted by members who are dealing with difficult withdrawal symptoms caused by Lyrica. However I believe that it's time to start recording the experiences of those suffering, so we can understand which symptoms occur commonly. Many people going through withdrawal are shocked by how sick they have become. Doctors and healthcare workers often don't know, or don't believe that stopping Lyrica can be the cause of so much misery. As terrible as it sounds, Doctors often react with anger or frustration when a patient complains of suffering because they don't want to assume any responsibility or accept any blame for prescribing something that makes a patient so sick. "You must be imagining things, or even lying or exaggerating,because this drug does NOT cause this level of withdrawal!"...Well, we know better.

I was prescribed Lyrica for RSD, 450mg per day. I made the mistake of running out when my pharmacy was closed. I became so sick that I was unable to get out of bed for more than two weeks. I was unaware that Lyrica caused withdrawal, so much so that I thought I had the flu! My husband picked up my prescription by chance one day, while having his own prescription filled, and brought it home. I was blown away to find myself completely well within an hour of taking my regular dose. Then and there, I made the decision that I would stop taking the drug. I had found the side effects horrific anyway, with the weight gain, mental foginess and emotional deadness I had been experiencing while on Lyrica. I began a taper immediately.

I started reducing my Lyrica by 25mg every 10 days to two weeks. It was rough, especially when I went down in dosage, and it took days to feel even marginally better. Still, I stuck it out, beginning in January 2013, and finally finishing in July of the same year. A long, slow taper, I know, but I went as fast as I felt I could, enough to keep the withdrawal symptoms at bay so I could function. Many have found, like I did, that quitting cold turkey was virtually impossible, due to the fact that the terrible illness of withdrawal would just go on and on, never getting any better. I've heard of people sick for months while going through Lyrica withdrawal.

Reading about the experiences of others going through what I was going through was an enormous comfort to me. It made me feel that I wasn't crazy, that I was one of many who had been taken in by promises of pain relief without fear of addiction or withdrawal (that's what I was told!). The following is a list of the symptoms that I experienced during withdrawal from Lyrica. I encourage everyone to add your experiences to this thread as well. Believe me, there are lots of people suffering right now who will visit this sight and be comforted with the knowledge that they are not alone!

LYRICA WITHDRAWAL SYNDROME

Exhaustion, coupled with insomnia (horrible combination)
Depression
Crying jags
Rage
Extreme episodes of sweating
Chills
Inability to regulate temperature
Headache
Nausea
Stomach pain (often described as stabbing pain)
Severe Anxiety
Restless Leg Syndrome
Body aches
Muscle contractions
Vision problems
Suicidal ideation
Difficulty breathing (hard to take deep breath)
Lack of desire to socialize in any way
Mood swings

I know that more symptoms exist, and I hope that you will add your own experiences to this thread. Only by bringing this terrible issue forward will we ever convince anyone...Doctors, health-care workers or Pfizer itself to do something about the irresponsible way that this drug has been fed to us all, and force them to take measures to at the very least inform the public of the risks that taking Lyrica bring.




It will be two years next week since I went off lyrica. I am still having all the symptoms I started with. Most are a bit less but not all. Life has changed and not for the better at least for now. I am still, with my doctors help, working on reducing my symptoms. I am very careful of all meds RX or OTC since almost all give me severe side effects While I am mentally more alert, aware and happier then last year, my body is not much better. My RLS is day and night as well as involving my whole body sometimes, sleeping is hard I no longer try at night and wait until morning, less stress that way. The mental problems I got AFTER going off lyrica still come and go, but not every day a different problem. The first year off this drug my mind did funny things. Not to the point of needing to fix anything because within 3 days it would be gone and replaced by something else. I have come to the conclusion that for some of us the damage is permanent.

From your list these are the ones I had and/or still have:

Exhaustion, coupled with insomnia

Depression

Crying jags (Tears can help detox the brain I've heard. It did reduce other stmptons)

Rage (among a host of other emotional problems much better now)

Extreme episodes of sweating (had now just "Hot Flashes" no hormone problem)

Chills

Inability to regulate temperature

Headache (had)

Nausea (Thank God this one has been gone for a year)
Stomach pain (often described as stabbing pain) (had. forgot about this one)

Severe Anxiety (had)

Restless Leg Syndrome (extreme)

Body aches

Muscle contractions

Vision problems (No to this one)

Suicidal ideation (still but understanding why helps. I ran into a lady on Lyrica 1 month 9 months latter she still had this)

Difficulty breathing (hard to take deep breath) (hard to take a breath sometimes body kinda locks up)

Lack of desire to socialize in any way (may be part of depression but I know what you are talking about.)

Mood swings

Babbling (nonsense sounds without any meaning This happens as my symptoms start to escalate.)

Temporary mental illness . (like going to crazy town and visiting every address for a few hours to 3 days) This did give me a lot of understanding that sometimes behavior is in the brain and not under the control of a person. Once i stopped freaking out, about 2 weeks into it, I found it interesting

servere loss of appetite. (had)

Rebound pain (for 9 months)

Mental Fog



Good luck

caroline2 01-11-2016 01:46 PM

Every time I see the lyrica tv ad I could scream, but I mute and close my eyes. I don't know anyone personally who has ever taken it so I can't know their experiences... how they can still push it and people trust their doctors is beyond my mindset. I know there is a class action suit re: lipitor, maybe so with lyrica...don't know.

You mention RLS, is that your main issue? Have you researched alternatives for RLS.

Cynthus 03-14-2016 02:09 PM

Taming the Lyrica Withdrawal Beast, continued.
 
Thought I should post an update on my withdrawal in case it will help others dealing with this madness. I am still trying to titrate down, now at 25mg/month. It's still the hardest thing I've ever done, and the side effects and withdrawal symptoms are the same. I am on a low dose of Effexor to manage some of the withdrawal depression, anxiety and rage, but it doesn't help much. The crying jags and depression are one thing, the suicidal ideation is another. I wish there was some way to stop it but so far no luck, and it is very draining. The other symptoms, stomach pain, headaches, spasms, being tired etc. are uncomfortable but not as scary as the psychological side effects. I am terrified to think that some of these symptoms may be permanent. :grouphug: may the odds be ever in all of our favors.

eva5667faliure 03-15-2016 07:36 AM

Thanks
 
Quote:

Originally Posted by what a ride (Post 1192560)
It will be two years next week since I went off lyrica. I am still having all the symptoms I started with. Most are a bit less but not all. Life has changed and not for the better at least for now. I am still, with my doctors help, working on reducing my symptoms. I am very careful of all meds RX or OTC since almost all give me severe side effects While I am mentally more alert, aware and happier then last year, my body is not much better. My RLS is day and night as well as involving my whole body sometimes, sleeping is hard I no longer try at night and wait until morning, less stress that way. The mental problems I got AFTER going off lyrica still come and go, but not every day a different problem. The first year off this drug my mind did funny things. Not to the point of needing to fix anything because within 3 days it would be gone and replaced by something else. I have come to the conclusion that for some of us the damage is permanent.

From your list these are the ones I had and/or still have:

Exhaustion, coupled with insomnia

Depression

Crying jags (Tears can help detox the brain I've heard. It did reduce other stmptons)

Rage (among a host of other emotional problems much better now)

Extreme episodes of sweating (had now just "Hot Flashes" no hormone problem)

Chills

Inability to regulate temperature

Headache (had)

Nausea (Thank God this one has been gone for a year)
Stomach pain (often described as stabbing pain) (had. forgot about this one)

Severe Anxiety (had)

Restless Leg Syndrome (extreme)

Body aches

Muscle contractions

Vision problems (No to this one)

Suicidal ideation (still but understanding why helps. I ran into a lady on Lyrica 1 month 9 months latter she still had this)

Difficulty breathing (hard to take deep breath) (hard to take a breath sometimes body kinda locks up)

Lack of desire to socialize in any way (may be part of depression but I know what you are talking about.)

Mood swings

Babbling (nonsense sounds without any meaning This happens as my symptoms start to escalate.)

Temporary mental illness . (like going to crazy town and visiting every address for a few hours to 3 days) This did give me a lot of understanding that sometimes behavior is in the brain and not under the control of a person. Once i stopped freaking out, about 2 weeks into it, I found it interesting

servere loss of appetite. (had)

Rebound pain (for 9 months)

Mental Fog



Good luck

Good luck to you also
As I am coming off Xanax
It is not the drug being the point for
Just the simple fact
You speak of the
"Residual"
Benzodiazepines that's another drug that takes a very long time
Sometimes permanent damage

Supporting what you wrote
Thank you
For your experience
Strength
And hope
Me

zecrich 05-03-2016 04:45 PM

Hi guys

I was on Lyrica 300mg twice a day for about six years, I wanted to come off of it because my eyesight was getting worse and a pharmacist said that can be caused by Lyrica.

So I dropped to 225mg in the morning and 300mg at night and 2 weeks later took 225mg twice a day for 2 weeks and slowly stepped down like that,

I'm now on 100mg twice a day and have been for about 6 weeks but I feel so unwell, I'm sweating for no reason, I hurt like crazy and I keep getting stabbing pains in random places on my lower half and that includes my under carriage.

I have planned to stop on this dose, my wife wants me to go back up to 150mg but I don't want to go backwards.

How long will it take for my body to level out?

zecrich 06-02-2016 08:48 AM

I ended up down to 100mg twice a day and I felt so unwell, but I stuck with it as I thought it would get easier, it didn't!

So I went back up to 150mg twice a day, i feel more human again and it is still half the original dose, the plan is to stick at this dose for six months and then try again


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