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Old 02-02-2015, 04:28 PM #1
KLSUMMERS KLSUMMERS is offline
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Originally Posted by triviafriend View Post
Oh, the horror...the horror! (My nod to Dr. Smith and Lost in Space)

Thanks Dr. Smith! Of course you are right in that there are plenty of people who have gone off Lyrica with no trace of withdrawal. My husband spent many months in the hospital getting IV Dilaudid every two hours, and was weaned off within a week and seemed to have zero withdrawal symptoms. Lucky him, and lucky you, whoever you are, that stops so easily. This post is not for you. If you read my first post, I was dead sick for two weeks before I even knew I was in withdrawal, so precipitous fear wasn't a problem.

I thought rather than scare everyone to death, I'd tell you a few things that helped me a lot, or a little. I did crazy research online to find some solutions. I am not in any way recommending anything. Do your own research, and try what you will at your own risk. This is information widely available online, that I found with Google searches. I didn't have blurred vision, so I don't know about that.

OVERALL: GABA. GABA is an amino acid available over the counter. I came upon it by accident at GNC, and thought hmmm...gabapentin/GABA. I bought a bottle, brought it home and did some reading before trying it (***-backward, I realize). Web M.D. states that GABA works by inhibiting brain wave signals. Lyrica is believed to work by inhibiting brain signals. GABA is analogous to Lyrica (chemically very similar, also from Web M.D.) While there are many who believe that GABA doesn't cross the blood brain barrier, the consensus is that some of a dosage does cross. I took mine with grapefruit juice, hopefully to potentiate crossing the bbb. GABA is believed to relax you, help you sleep, aid in fat burning, help with PMS, relieve pain and aid in balancing blood pressure. I was concerned about taking another version of Lyrica, even natural, obviously because I was trying to get off it, but could find no evidence that GABA caused any of the problems of Lyrica, especially withdrawal. I took GABA every night (makes you sleepy) and darned if it didn't make everything easier. I wish I had found it at the beginning of withdrawal, because it did help me very much. GABA was the first (and only) thing I tried that made me forget that I didn't feel well, often for hours at a time (and when I'm ill, I have this OCD habit of constantly reevaluating my current state). Everything else helps, but this was the most helpful. It cost around fifteen dollars for 60 at GNC.

Anxiety: Many people suggest a benzo like Valium or Clonopin (sp?). I didn't go that route, because I was afraid of going through withdrawal, which I've heard is brutal. I occasionally used Valerian (tastes terrible) in an oil form. I'm not sure that it really helped. As much as you don't feel like doing it, getting some exercise is good medicine. I tried very hard to walk for 45 minutes every day, and I always felt better after.

Flu-like symptoms: This was pretty obvious with ibuprofen, acetaminophen and aspirin available everywhere. Helped the body aches.

Stabbing stomach pain: I used loperamide occasionally, which is the active ingredient in Immodium, and can be purchased in any drugstore. Opiate users all have this in their cupboards for withdrawal. It's actually an opioid which has a molecular composition too large to pass through the blood brain barrier. That means it doesn't affect your central nervous system (there are many arguments about this, but I'll go with the science). However your body has many opiate receptors, especially in the gut. 4 mg took care of this every time for me. Once again, I took with grapefruit juice. Pepto Bismol also helped.

Sweating: Oh, my most hated symptom! I would break into massive, drenching sweats where water would roll down my face and my clothes would be soaked. I once again found help from those handy opiate users (some of them could be biochemists...and maybe they are!). The biggest help was benedryl, hands down. But it made me so sleepy, I could only take it before bed which kept night sweats away and gave me the added benefit of extra sleep. Afrin nasal spray was helpful during the day. It contains a chemical similar to the blood pressure med Clonidine, commonly prescribed for alcoholic withdrawal. Lots of people get a prescription for Clonidine for withdrawal, but I didn't, so I don't have first hand knowledge. Beware though...Afrin can be highly addictive too. I tried to use it sparingly. There are a number of prescriptions for hyperhidrosis (sweating) which I also did not try. If you have used them, please post and let us know. Finally Sage oil, in tea or capsules, which I got at GNC. I'm not a big natural remedy person, but this did help. I rubbed sage oil on my wrists throughout the day.

Insomnia: I used everything I could find that was available otc. As I mentioned earlier, I took benedryl every night for sweating, great for sleep (but druggy aftereffects in the morning were a price I paid). Variously I tried Unisom, Tylenol PM (especially when my body was aching) and some of the newer preparations like Tylenol PM with no pain reliever, just sleep meds). I can also highly recommend Sleepytime Herbal Tea, which can knock me out if I make it strong (I use 4 tea bags!). There are many other drugs available with a prescription, so go to your Doctor for these. I was scared off Ambien by stories of people driving off of cliffs in their sleep.

Exhaustion: I KNOW that what I used was not good for me. I drank Monster no calorie energy drinks. There is a ton of evidence that energy drinks are terrible for you. But I'm just being honest. However, my Dr helped me by switching me from Prozac (I took for depression) to Wellbutrin, which gave me energy and had the major added benefit for me of curbing my appetite, which helped me lose all that lyrica weight. This is absolutely a conversation to have with your Dr. after doing lots of your own research. Never again make the mistake I made, by not thoroughly investigating what you put in your body.

These things helped me. PLEASE add your own tips. Everyone who reads this, however, must understand that these are things that helped me. I'm NOT a Doctor, and these are related to you not as recommendations, but as my personal experiences. Be your own advocate and research what might help you. Let me know if it does.
So helpful my mom is going through major wirhdrawls, and we realized three days in. Thank you for all your research and info we will try it
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Old 09-30-2013, 11:48 AM #2
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Exclamation Lyrica withdrawal

it is important to know how addictative this drug is and how short a time period it takes for the drug to show the side effects. After 3 months on a 150mg dose and following exact medical advice on a slow a careful reducing dose plan, I have still suffered severe suicidal thoughts, severe abdominal pain, insomnia, rage, despair, exhaustion aand the list goes on. I wish I had never taken this drug, even the limited pain relief has not been worth it
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Old 10-21-2013, 06:09 PM #3
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Quote:
Originally Posted by triviafriend View Post
Gosh my ego is a bit bruised...lots of views of this page, but no one posting. I hope if you have a similar story, you tell it here, even briefly. Reading posts from others who were suffering was some of the best recovery medicine I found (which is why sharing is the cornerstone of the 12 Step Movement). But even if you are just reading, I hope this thread helps you!
hi,
the worst part was not knowing the lyrica was causing these issues. I had been to a chronic fatigue clinic and this doc diagnosed me with black mold toxicity. when I started having these strange symptoms/side effects, I thought it was deoxing from the mold and/or one of many supplements he had put me on along with lyrica.
I was on 100-150 mgs. daily for about 3+ months. then stopped all supplements and the lyrica cold.
within a day or two I felt the strangest feeling I have come to aknowledge were symptoms of dissociative disorder. Mind you, I have never had any psychiatric or mood disorders prior.
some people have called it brain zaps....but for me it was the most terrifying of the sx. It felt like I had done LSD. for anyone who hasn't, it makes you feel you are detached from yourself. sort of a very uncomfortable tingling feeling in my brain. I though it was a stroke.
I also had a burning feeling in my chest, heart palpitations.
EVERYTHING felt strange to me, like all my brain circuitry was going crazy.
I would not know how to drees properly, all my clothes except for seats felt uncomfortable, foods tasted different, my breathing felt forced. hot and cold at the same time. night sweats, big time. insomnia and a type of narcolepsy, where I would shut my eyes and be asleep immediately.I also had severe short term memory loss, more like amnesia. things from several years ago I could not remember.
The bottom line was, I was not feeling, tasting as I had before this drug.
How doctors can not know how horribly this drug can effect you or that the withdrawal can make one feel like there is no option but to check yourself into a mental ward. anxiety is too mild a word for what I experienced. it was pure terror.
I'm sure it would not have been as severe an experience for me if I had known it was the lyrica.I was told it was a panic attack, detox from the mold toxins, so being confused and not even considering this drug could be the cause, made it all the more terrifying. Since I didn't know, when my bone pain came back I would take more lyrica for a few days, then, boom I would have a setback. It has been 5 months since taking it regularly, and 3 weeks since I stopped completely.
Things are much better, the worst was about 3 months long. I am still not back to my "normal". I am wondering if anyone out there who had similar problems with this drug have gotten their "normal" back?
or can this drug have permanent side effects that never stop?
I am so grateful for the people in this forum. I have been struggling to find a diagnosis to what my disease is. When you have one doctor telling you you have MS and another that it's chronic fatigue, which both illnesses are really just a list of symptoms, it makes me feel really discouraged and hard to trust or know who to believe.
I need a root cause so I can tackle this from the inside, not just treat symptoms of different problems that must all be related to one root illness.
Thanks all, I hope to get to know you all and be anyone's shoulder to cry on, as misery does love company.
peace,
sara
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Old 10-31-2013, 06:54 PM #4
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Hi Everyone,
I'm so glad that some of my information has helped you! I have now been off Lyrica completely for several months. I'm finally starting to feel human again, but going through the nightmare of Lyrica withdrawal affected my overall health so drastically that I believe I've lost years of my life to this drug.

The good news is that you can stop. If you are one of the lucky ones who have no withdrawal, God bless you, enjoy your freedom. However if you, like me, dealt with, or are dealing with these issues now, I'm so sorry. All I can tell you is the longer you can taper, the easier it is.

I've finally lost much of the weight I gained too, 25 pounds so far, with 10 more to go. Once again, for some reason, the lyrica weight I gained was so hard to get rid of. I was down to about 1200 calories a day, no fat, no meat, no sugar. Using this regimen, I was able to lose this weight in about three months.

Be strong...You can get through this!
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Old 11-08-2013, 11:09 AM #5
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I was diagnosed with fibromyalgia and put on lyrica a year ago. Worked up to 150 mg. Needed to increase but decided to taper off instead due to the side effects. The medicine did help with the pain but started to experience brain fog, confusion, blurred vision, weight gain, and hair loss. The main reason I made the decision to stop is because when I would forget a dose, it felt as though I was on my death bed! I thought that a medicine couldn't be good for my body with those withdrawal symptoms. I notified my doc and her instructions were to take 75 mg for 7 days then 75 mg every other day for two weeks. This is my first morning after the decreased dose. It's pretty awful. My eyes feel swollen, nausea, vomiting, gi issues, and general pain. I am hoping my body adjust quickly! I am wondering if I should see how I feel over the weekend before I ask my dr. It could be a coincidence and the weather change causing my illness, but it feels like when I miss a dose.
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Old 11-26-2013, 04:40 PM #6
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I had to taper at a much slower rate to avoid withdrawal. I went down around 10 mg per week, eyeballing my dose. It took 8-10 months in all. Crazy, but true.
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Old 02-15-2015, 05:12 PM #7
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Default A reply from the husband of a suffering mate

Quote:
Originally Posted by triviafriend View Post
Gosh my ego is a bit bruised...lots of views of this page, but no one posting. I hope if you have a similar story, you tell it here, even briefly. Reading posts from others who were suffering was some of the best recovery medicine I found (which is why sharing is the cornerstone of the 12 Step Movement). But even if you are just reading, I hope this thread helps you!
I am brand new to any online posting, I have been reading all over the web for help understanding what my wife is going thru. After reading a few scattered blogs that addressed the symptoms and my wife going thru a week and talking to the doctor he said to go back on and start a taper after a week. this is what we did and she got better in one day. She stayed on a dose of 2 50mg per day for a week then 50mg per day then 50 every other day and only made it thru the second day and the symptoms returned in full. I spoke to the doctor again this past friday 2/13/2015 and he felt because of her having a 102/3 fever that something else is causing this ! I do not think so. any suggestions as this is 2/15 and we are due to see him on 2/16
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Old 02-16-2015, 04:45 PM #8
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Default benefits to going back on lyrica

Hi: I am a new poster and in reading , I came to the conclusion that for my wife's withdrawal symptoms i would try starting her back on ! Low and behold 2 hours 80% improvement symptoms greatly reduced. Doctor wanted to treat her for some other infection because he could not believe that the symptoms she was experiencing could be from Lyrica. It was almost a magical way of seeing what was the cause of the horrible symptoms she was having. going back on will identify if you are sick or suffering from withdrawal. I think a taper of much longer time is needed. I am going to go for 10% reduction every 10 days and see how it goes. The doctor said a week or so is good!
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Old 10-01-2017, 11:35 AM #9
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Frown I’m so grateful you’re doing this...it needs to be addressed!

Quote:
Originally Posted by triviafriend View Post
Gosh my ego is a bit bruised...lots of views of this page, but no one posting. I hope if you have a similar story, you tell it here, even briefly. Reading posts from others who were suffering was some of the best recovery medicine I found (which is why sharing is the cornerstone of the 12 Step Movement). But even if you are just reading, I hope this thread helps you!
Thank you so much for doing this....I’ve not intentionally gotten off Lyrica but have missed just one dose at times and felt like HELL...extreme nausea, headache unlike anything I’ve ever had, and that’s only the beginning but those two were by far the worse! I have neuropathy in my toes but I’ve decided that is not enough to warrant putting up with the weight gain. I’m terrified about getting off the drug but I’ve read some really good things about both titration and things to do/take to help with the symptoms like Benedryl and sugary drinks. I’m a recovering alcoholic and hated the couple of times I had to withdraw off the alcohol but at least it only lasted a couple of days and I don’t remember it being near as bad as the ONLY ONE DOSE I would miss and want to DIE! Ugh. If you have any other tips since your post in 2015, I’d so appreciate hearing about it. I take 150 mg at night and tonight will be my first night weaning and I guess I’ll go down to 100 mg since the capsules I take are 50 mg a piece. If anyone has any other suggestions, PLEASE respond! I’m really scared and dreading this.

Thank you all,
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Old 05-27-2018, 03:33 PM #10
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Quote:
Originally Posted by triviafriend View Post
Gosh my ego is a bit bruised...lots of views of this page, but no one posting. I hope if you have a similar story, you tell it here, even briefly. Reading posts from others who were suffering was some of the best recovery medicine I found (which is why sharing is the cornerstone of the 12 Step Movement). But even if you are just reading, I hope this thread helps you!
Thank you so much for posting about Lyrica! I'm going through withdrawals and omg, I can tell you, it's more than awful! Nuclear hot flashes, mental fogginess, irritability, and then, there's the itching! I am so itchy all over that I'm debating whether or not to buy sandpaper just to get some relief lol

All kidding aside though, this poison should be taken off the market. Immediately. The withdrawals and what it does to a person remind me of all those videos you see on Youtube with regards to those on street drugs. This drug wasn't even tested, it was packaged and then boom! Doctors saw how much money they could make. I have NO respect for doctors at all. I can't begin to tell you how many people I've seen suffer because their idiot and ignorant doctors never told them about the side effects and the withdrawal symptoms.

I was on 650mg a day last year, then this year, I had run out and it was the long weekend, so I was out of luck. Let me tell ya, it was horrific. When I did get my prescription and took one pill, every single symptom went away. That's when I knew I had to taper off. I slowly tapered off down to about 5mg and then last Friday was my last dose. I might be suffering right now, but it's going to be worth it just to have my body the way it used to be. I also gained over 35+ pounds in the space of about 6 months. I look like a balloon and walking became unbearable due to the extra weight on my knees.

I am so hoping that in another few weeks, all the side effects, or most of them, will be gone.

Again, thank you so much for your post! I just joined today and yours is the first I read and you are bang on! Good job!

~Esme
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