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09-27-2013, 12:26 PM | #1 | |||
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[QUOTE=Island Mist Woman;1017944]Hi TriviaFriend,
I have just joined this forum, because I was looking for answers for why I have been feeling so unwell this past 3 weeks. I tapered off slowly, but possibly not slowly enough. It has been helpful to me see that many of the symptoms that I have been going through are listed by others. My understanding was that symptoms would be milder than they have been and would take no more than a week to get through. But clearly everyone is different. My Symptoms include: Exhaustion, coupled with insomnia (horrible combination) Depression Extreme episodes of sweating Chills Inability to regulate temperature Headache Nausea Muscle aches Short of breath Lack of desire to socialize Mood swings Thanks so much to all for your interesting information Hi Island Mist, So Sorry you are going through so much suffering I am on Lyrica too. Is that the medication you are withdrawing from? How much were you taking and for how long? I am on 300 mgs day, for about 9 mos now. Its not helping me too much with my pain. What were you taking it for? I have idiopathic small fiber neuropathy. Lyrica is causing my hair to fall out, so I will have to get off of this med soon. Ive read so many horror stories on people who are withdrawing from lyrica. It scares me to death to think that Im going to have to suffer more pain on top of this neuropathic pain. Would you mind telling me how slowly you tapered. Do you think if you tapered slower that would have helped? Are you trying another medication for your pain? I know doctors tell you that you can taper off this medication in one week, well we know that is not true! It frustrates me that Doctors dont even know how bad this medication can be or either they do know and turn a deaf ear! I hope somebody will chime in soon to reassure you that you will feel better soon. please keep us posted. Thanks Marie |
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09-30-2013, 08:07 PM | #2 | ||
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[QUOTE=Marie33;1017960]
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I am just getting used to this site and these posts. I just tried to post under the Lyrica Withdrawal Forum, but I am not sure where the post went. Yes, it is Lyrica that I am withdrawing from. I was on 300mg at bedtime. I will try and figure out how to do these posts properly so that I can continue my own journey of withdrawal. I have found the posts of others very helpful, but sure don't look forward to feeling like this for months. It makes me quite angry that Dr's don't seem to know about the severity of the withdrawal symptoms, and neither does the drug company manufacturing this drug. It is so wrong. I have not found any information on the incidence of withdrawal symptoms. So 10% of people go through this? or do 90% of people go through this. I wish you well in your own journey. I hope that you will be one of the people who does not go through withdrawal. Take good care D. |
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09-30-2013, 10:28 PM | #3 | |||
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[QUOTE=Island Mist Woman;1018795][QUOTE=Marie33;1017960]
Hi Marie, I am just getting used to this site and these posts. I just tried to post under the Lyrica Withdrawal Forum, but I am not sure where the post went. Yes, it is Lyrica that I am withdrawing from. I was on 300mg at bedtime. I will try and figure out how to do these posts properly so that I can continue my own journey of withdrawal. I have found the posts of others very helpful, but sure don't look forward to feeling like this for months. It makes me quite angry that Dr's don't seem to know about the severity of the withdrawal symptoms, and neither does the drug company manufacturing this drug. It is so wrong. I have not found any information on the incidence of withdrawal symptoms. So 10% of people go through this? or do 90% of people go through this. I wish you well in your own journey. I hope that you will be one of the people who does not go through withdrawal. Take good care Hi D Thanks for responding. Are you still withdrawing fro Lyrica? How are you feeling now? You said you were on 300 mgs at night wow that seems like a lot of med at one time. I take 100 3xday. Unfortunately its not doing much.How long were you on it for? and why are you getting off it. Do you have a "backup" med for your pain? Did it cause your hair too fall? Hope your doing OK! Thanks Marie |
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09-22-2017, 09:57 AM | #4 | ||
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Hi everyone, I'm new here, this is my first post. I'm currently on Lyrica, 300mg twice daily. I've been taking it for over eight years. Once or twice I couldn't get my refill in a timely manner and did I ever suffer. Here's the best way I can describe the feeling of being without it for just a few days. When taking it, it's as if a blanket covers your nerves, calming them almost like an anesthetic. Without it, my nerves suddenly awakened to a hyper sensitivity. Just the slightest breeze against my skin was very irritating. My nerves felt raw. Then there's the hot and cold flashes. Literally, one minute I'd be burning up then the next minute, I'd be freezing. Sometimes I was hot and cold at the same time, which was odd and frustrating. I would be extremely lethargic and could only eat one small meal a day. When feeling that bad, food was the least of my concerns. Lyrica withdrawal is hellish and obviously the drug reps failed to disclose this information to Doctors. Did they even mention the weight gain and swelling? Probably not. I wish I could go off of this medication but I don't know if that's possible. It really does help my fibromyalgia and nerve pain in my feet from failed surgeries. But I hate being Lyrica's slave. I've ordered some Kratom and am very hopeful that this will help my pain. If it's the miracle people say it is, I'm going to try reducing the Lyrica ever do slowly. It gives me hope that others here were able to stop eventually without too much agony. Glad to be here to share with you all.
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09-25-2017, 01:50 PM | #5 | ||
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New Member
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Hey! I am no expert at all but maybe i have some ideas that can help you.
First of all, you are NOT crazy! It may seem so and it can feel so real, but it is not. Lyrica is said to stop new synapses from forming. Maybe that is why it takes so long to recover from. Both ashwagandha and bacopa stimulates dendrites and axons to grow in the brain. So this could be of some help. Ashwagandha Bacopa monnieri Check out ** There are many reliabel sources. And remember that there is always HOPE! If it doesn't work we must ask Elon Musk for help Take care and hang in there. And sorry for my english, it is not my first language. Last edited by Jomar; 09-25-2017 at 01:59 PM. Reason: ** no linking for new members per guidelines |
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10-01-2017, 11:45 AM | #6 | ||
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Newly Joined
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[QUOTE=Gail59tx;1251475]Hi everyone, I'm new here, this is my first post. I'm currently on Lyrica, 300mg twice daily. I've been taking it for over eight years. Once or twice I couldn't get my refill in a timely manner and did I ever suffer. Here's the best way I can describe the feeling of being without it for just a few days. When taking it, it's as if a blanket covers your nerves, calming them almost like an anesthetic. Without it, my nerves suddenly awakened to a hyper sensitivity. Just the slightest breeze against my skin was very irritating. My nerves felt raw. Then there's the hot and cold flashes. Literally, one minute I'd be burning up then the next minute, I'd be freezing. Sometimes I was hot and cold at the same time, which was odd and frustrating. I would be extremely lethargic and could only eat one small meal a day. When feeling that bad, food was the least of my concerns. Lyrica withdrawal is hellish and obviously the drug reps failed to disclose this information to Doctors. Did they even mention the weight gain and swelling? Probably not. I wish I could go off of this medication but I don't know if that's possible. It really does help my fibromyalgia and nerve pain in my feet from failed surgeries. But I hate being Lyrica's slave. I've ordered some Kratom and am very hopeful that this will help my pain. If it's the miracle people say it is, I'm going to try reducing the Lyrica ever do slowly. It gives me hope that others here were able to stop eventually without too much agony. Glad to be here to share with you all.
Hello! Thank you for your post. Could you tell me if you’re having any success with the Kratom? I’m not familiar with it at all. I so appreciate it! Sincerely, Momoftwobeauties |
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02-08-2018, 01:37 PM | #7 | |||
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[QUOTE=Momoftwobeauties;1252050]
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__________________
Longbeachone . |
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"Thanks for this!" says: | backpack (05-29-2018) |
09-29-2013, 12:35 PM | #8 | ||
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New Member
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This my sound weird, and I'm probably not in the right arena, but I'm trying to wean ON the med, not off. I need help with the pain of RSD in my face, jaws and neck. I had 5 stellate ganglion blocks in Feb and it was a miracle of help. I weaned off Fentenyl patches and the other anti-seizure meds I'd been on. Unfortunately, it only lasted about 4 months and the pain is coming back and has been for the past almost 2 months. About a month ago, I had 2 more injections. I caught an upper respiratory infection about 2 weeks ago. The coughing is not helping...at all.
I had started on 25mg at night for 2 weeks and 2 days ago I increased to 50mgs out of desperation. I want to give the medication a chance to work, but I feel SO weird, kinda like brain zaps or withdrawal symptoms from antidepressants. Any suggestions? Thanks, Beth |
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10-06-2013, 10:04 AM | #9 | ||
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New Member
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Well at least I know why I'm sick as a dog... I have been on Lyria for more than 5 years for fibromyalgia. In general it has worked very well for me, although not as much in the past year. I've had more breakthrough flares.
About 4 months ago I developed what is currently diagnosed as an atypical neuralgia that makes it nearly impossible for me to talk. It has ruined my life. As my job involved tons of talking, I have been on medical leave for the past 8 weeks. Finally ended up with a neurologist who is attempting to treat the problem. He prescribed Trileptal, and had me taper off the Lyrica. Because I had researched withdrawal, I was expecting some problems. Right. Down from 450mg to 150mg, within 2 weeks. That was not so bad. Then he said to stop. Not. Symptoms include: Nausea Profuse sweating Depression Lethargy Itching Chills Crying I will call him in the morning and insist the taper be done more slowly. In the meantime I'm just going to take a pill. The good news is that my neuralgia is better. Not gone, but better. |
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10-17-2013, 09:22 AM | #10 | |||
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Trivia, thanks for your post...very helpful as I am currently tapering but I was only on 100-125mg daily but for 4 or5 yrs. You covered most symptoms and I can only add: - Heart palpitations and chest pressure and jaw pain - Language issues...using wrong words or slurring or stuttering - Uneven gait, clumsy(I seem to misjudge corners in my home and walk into them like I am drunk). I do agree that withdrawal is more difficult than expected and I have gone off all my pain meds twice before, including oxycontin. I did try to get off lyrica about a yr ago but was not prepared. This time I have joined a health club that has sauna and jacuzzi and warm pool. I find exercise difficult but am forcing myself to swim slowly and sit in sauna to get rid of toxins. I also hired a friend to help me food shop and make large glasses of veggie juice each day and I am eating really well. I don't know if Lyrica also suppresses endorphins like opiates do but, I know you are supposed to do things to help kick endorphins back into gear like listening to happy music...dance around a bit if you can manage...watch funny movies...cuddle with your loved ones or pets(my cats are amazingly sensitive to my situation, it is just uncanny!) Now this is personal and off track a bit, but, I am doing some soul searching and my pain doc has always emphasized stress makes pain worse. I have identified some issues in my life that bother me the most and I am working on those...like reaching out to siblings I am estranged from and forgiving folks for hurt to me, etc. It is cathartic. I wish you all well as you try to get off lyrica. My advice is very slow and steady. My doc lets me use Lorazepam to help with withdrawal symptoms and because this has also kicked my BP into overdrive, I can use Clonidine which also helps with wd symptoms. Take care, D |
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