Medications & Treatments For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-28-2014, 11:24 AM #51
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default Hi amigh...

...Welcome.

Your symptoms & experiences sound very much like what my DW has been going/gone through (it's ongoing, but we believe the worst is now behind us).

She tapered off of an SSRI this past spring after being on it for several years for fibro, neck pain, & job stress. For months after being off of it completely, she was still suffering with vertigo, the emotional rollercoaster, pain...

At first, we thought it was SSRI discontinuation syndrome.

SSRI Discontinuation or Withdrawal Syndrome

Antidepressant discontinuation syndrome

She tried treating it with supplemental L-tryptophan (You can find info on this on the web or in the archives here), which did (and does) help, but only to a point.

The vertigo was adversely affecting her ability to function in day to day activities, so she saw an otolaryngologist (Ear, Nose, & Throat specialist) who suggested it may be silent migraine, which she may have had right along since meno, but the symptoms were being alleviated/masked by the SSRI.

She then embarked upon an elimination diet to rebalance her system and begin identifying "triggers" that can cause this type of migraine and the symptoms that accompany them.

Since then her improvement has been dramatic. Instead of having one good day in ten, she now has (approximately) one bad day in ten.

Of course I can't say this is what you're going through, but if any of it sounds reasonable to you, it might be worth bringing up with your doctor and pursuing.

If it can't hurt to try it, then it can't hurt to try it.

Best wishes,

Doc

PS: FWIW...

Lyrica (pregabalin) and Cymbalta (duloxetine) are both now generic. Their prices may not have come down appreciably yet, but should within the next year or so; insurance companies should be less averse to covering them. I mention this only in the event that they were of some benefit and you felt taking one/both was/were in your best interest.
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.

Last edited by Dr. Smith; 08-28-2014 at 11:40 AM.
Dr. Smith is offline   Reply With QuoteReply With Quote

advertisement
Old 08-30-2014, 06:18 AM #52
McKenzie McKenzie is offline
Junior Member
 
Join Date: Aug 2014
Posts: 21
8 yr Member
McKenzie McKenzie is offline
Junior Member
 
Join Date: Aug 2014
Posts: 21
8 yr Member
Default

Wow. I could have written this exactly. I am so shocked this drug is being prescribed without doctors knowing about this terrible withdrawal symptom profile. I had taken Lyrica for over 10 years and before that Gabapentin for 6 years. The nerve pain from brain tumour surgery is still with me but I am going to try to live with it as I never want anything like Lyrica again. The thing that helped me most was steaming hot baths. The aches and pains all over was/is unbearable. A heat wheat bag has been my best friend. Finally off Lyrica 28 days now.
McKenzie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (09-12-2014)
Old 08-30-2014, 09:35 PM #53
McKenzie McKenzie is offline
Junior Member
 
Join Date: Aug 2014
Posts: 21
8 yr Member
McKenzie McKenzie is offline
Junior Member
 
Join Date: Aug 2014
Posts: 21
8 yr Member
Default

Lyrica Withdrawal Syndrome is similar to Protracted Withdrawal Syndrome from Benzodiazepines. Severe-nerve pain in legs, balance & gait disturbances, nausea, depression. Moderate-anxiety & also a lack of care for myself, heavy limbs like walking with concrete, felt like I was drunk, loss of mental clarity, lethargy. Mild-difficulty swallowing & breathing, rapid heart & breathing rate, headache, blurred vision, confusion, lack of bladder & bowel control, urinary frequency, personality changes, suicidal thoughts, trouble hearing, tinnitus & more
McKenzie is offline   Reply With QuoteReply With Quote
Old 09-11-2014, 07:45 PM #54
Perky Perky is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
Perky Perky is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
Default Lyrica Symptoms

I too am trying to reduce or eliminate Lyrica from my regime of medications. My side effects (on the med) include edema in my leg and hand (left side), which did not exist to the degree it does now prior to this medication. I suffer from neuropathy that appears to have been caused by a bruise in my spinal cord (myelomalacia).
The symptoms began as some numbness and tingling, but the real pain started after I had a Myelogram (lumbar) procedure, which was to seek out the impingement that was believed to be causing pain in my left leg. The nerve pain after this procedure was unbearable. After a neurologist suggested I have an MRI of my neck (which never bothered me before this procedure), it was discovered that I had several disks migrating into my cervical spine area.

It was also the first time they noticed a bruise on my spinal cord. I quickly had a multilevel fusion (ACDF) in c4.5, c5.6 and c6.7 to prevent my spinal cord from being severed, or further compromised. I was EXTREMELY active before my Myelogram procedure (rock climbing in Yosemite, surfing, biking, etc...) The Neurontine I was prescribed did not seem to quell the pain. I was subsequently given Lyrica, which seems to have cause edema in my left leg, causing further pain in my foot (which I never had before the drug) as well as burning in my hands and arms.

I am now taking 150MG of Lyrica, reducing 75MG every week. It may be too fast as the nerve pain is creeping up again. I am going to look into PeaPure, which was mentioned earlier in this post.
Perky is offline   Reply With QuoteReply With Quote
Old 09-19-2014, 10:26 AM #55
triviafriend's Avatar
triviafriend triviafriend is offline
Junior Member
 
Join Date: Oct 2009
Posts: 46
10 yr Member
triviafriend triviafriend is offline
Junior Member
triviafriend's Avatar
 
Join Date: Oct 2009
Posts: 46
10 yr Member
Default A Message of Hope

After starting this thread, and finally managing to put Lyrica behind me, I moved on, feeling oh so much healthier and happier. I checked back and saw the additional posts and wanted to tell all of you still suffering that there is hope. You will eventually be able to break free from the nightmare of Lyrica, but it will take time, if you want to get through it with the least discomfort.

My biggest issue with cold turkey or tapering too fast is that Lyrica can cause withdrawal issues that linger for months with no decrease in levels of symptoms. As terrible as an opiate withdrawal is, it lasts a week or two, with symptoms decreasing daily. You can actually TELL you are getting better. Not so with Lyrica. Even after my very long taper was over and i was off the drug, I continued to have drenching cold sweats for months, although eventually these left me too.

If your Doctor tells you that your withdrawal symptoms are all in your head, all I can tell you is FIND ANOTHER DOCTOR. This is very real, horribly uncomfortable and altogether unpleasant. Taper slowly, be committed to getting off the drug, and be good to yourself.

Triviafriend
__________________
Longbeachone
.
triviafriend is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (09-23-2014)
Old 09-22-2014, 10:39 PM #56
robs246 robs246 is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
robs246 robs246 is offline
Newly Joined
 
Join Date: Sep 2014
Posts: 1
8 yr Member
Thumbs up

Quote:
Originally Posted by triviafriend View Post
Oh, the horror...the horror! (My nod to Dr. Smith and Lost in Space)

Thanks Dr. Smith! Of course you are right in that there are plenty of people who have gone off Lyrica with no trace of withdrawal. My husband spent many months in the hospital getting IV Dilaudid every two hours, and was weaned off within a week and seemed to have zero withdrawal symptoms. Lucky him, and lucky you, whoever you are, that stops so easily. This post is not for you. If you read my first post, I was dead sick for two weeks before I even knew I was in withdrawal, so precipitous fear wasn't a problem.

I thought rather than scare everyone to death, I'd tell you a few things that helped me a lot, or a little. I did crazy research online to find some solutions. I am not in any way recommending anything. Do your own research, and try what you will at your own risk. This is information widely available online, that I found with Google searches. I didn't have blurred vision, so I don't know about that.

OVERALL: GABA. GABA is an amino acid available over the counter. I came upon it by accident at GNC, and thought hmmm...gabapentin/GABA. I bought a bottle, brought it home and did some reading before trying it (***-backward, I realize). Web M.D. states that GABA works by inhibiting brain wave signals. Lyrica is believed to work by inhibiting brain signals. GABA is analogous to Lyrica (chemically very similar, also from Web M.D.) While there are many who believe that GABA doesn't cross the blood brain barrier, the consensus is that some of a dosage does cross. I took mine with grapefruit juice, hopefully to potentiate crossing the bbb. GABA is believed to relax you, help you sleep, aid in fat burning, help with PMS, relieve pain and aid in balancing blood pressure. I was concerned about taking another version of Lyrica, even natural, obviously because I was trying to get off it, but could find no evidence that GABA caused any of the problems of Lyrica, especially withdrawal. I took GABA every night (makes you sleepy) and darned if it didn't make everything easier. I wish I had found it at the beginning of withdrawal, because it did help me very much. GABA was the first (and only) thing I tried that made me forget that I didn't feel well, often for hours at a time (and when I'm ill, I have this OCD habit of constantly reevaluating my current state). Everything else helps, but this was the most helpful. It cost around fifteen dollars for 60 at GNC.

Anxiety: Many people suggest a benzo like Valium or Clonopin (sp?). I didn't go that route, because I was afraid of going through withdrawal, which I've heard is brutal. I occasionally used Valerian (tastes terrible) in an oil form. I'm not sure that it really helped. As much as you don't feel like doing it, getting some exercise is good medicine. I tried very hard to walk for 45 minutes every day, and I always felt better after.

Flu-like symptoms: This was pretty obvious with ibuprofen, acetaminophen and aspirin available everywhere. Helped the body aches.

Stabbing stomach pain: I used loperamide occasionally, which is the active ingredient in Immodium, and can be purchased in any drugstore. Opiate users all have this in their cupboards for withdrawal. It's actually an opioid which has a molecular composition too large to pass through the blood brain barrier. That means it doesn't affect your central nervous system (there are many arguments about this, but I'll go with the science). However your body has many opiate receptors, especially in the gut. 4 mg took care of this every time for me. Once again, I took with grapefruit juice. Pepto Bismol also helped.

Sweating: Oh, my most hated symptom! I would break into massive, drenching sweats where water would roll down my face and my clothes would be soaked. I once again found help from those handy opiate users (some of them could be biochemists...and maybe they are!). The biggest help was benedryl, hands down. But it made me so sleepy, I could only take it before bed which kept night sweats away and gave me the added benefit of extra sleep. Afrin nasal spray was helpful during the day. It contains a chemical similar to the blood pressure med Clonidine, commonly prescribed for alcoholic withdrawal. Lots of people get a prescription for Clonidine for withdrawal, but I didn't, so I don't have first hand knowledge. Beware though...Afrin can be highly addictive too. I tried to use it sparingly. There are a number of prescriptions for hyperhidrosis (sweating) which I also did not try. If you have used them, please post and let us know. Finally Sage oil, in tea or capsules, which I got at GNC. I'm not a big natural remedy person, but this did help. I rubbed sage oil on my wrists throughout the day.

Insomnia: I used everything I could find that was available otc. As I mentioned earlier, I took benedryl every night for sweating, great for sleep (but druggy aftereffects in the morning were a price I paid). Variously I tried Unisom, Tylenol PM (especially when my body was aching) and some of the newer preparations like Tylenol PM with no pain reliever, just sleep meds). I can also highly recommend Sleepytime Herbal Tea, which can knock me out if I make it strong (I use 4 tea bags!). There are many other drugs available with a prescription, so go to your Doctor for these. I was scared off Ambien by stories of people driving off of cliffs in their sleep.

Exhaustion: I KNOW that what I used was not good for me. I drank Monster no calorie energy drinks. There is a ton of evidence that energy drinks are terrible for you. But I'm just being honest. However, my Dr helped me by switching me from Prozac (I took for depression) to Wellbutrin, which gave me energy and had the major added benefit for me of curbing my appetite, which helped me lose all that lyrica weight. This is absolutely a conversation to have with your Dr. after doing lots of your own research. Never again make the mistake I made, by not thoroughly investigating what you put in your body.

These things helped me. PLEASE add your own tips. Everyone who reads this, however, must understand that these are things that helped me. I'm NOT a Doctor, and these are related to you not as recommendations, but as my personal experiences. Be your own advocate and research what might help you. Let me know if it does.
Hey triviafriend,

thanks for the great post on how to deal with these symptoms.
I just wanted to ask about GABA, how safe it is to use to help with anxiety,depression and are you still taking them? Do these amino acids also have a withdrawal symptoms? Also, did GABA affect your memory, intelligence in any way. I realized that Lyrica interfered with my short term memory while I was on it.
Again, thank you for the great post. It has helped me tremendously.

cheers,
robs246
robs246 is offline   Reply With QuoteReply With Quote
Old 09-23-2014, 12:37 AM #57
Diandra's Avatar
Diandra Diandra is offline
Member
 
Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
15 yr Member
Diandra Diandra is offline
Member
Diandra's Avatar
 
Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
15 yr Member
Default

Quote:
Originally Posted by Jenny Sue View Post
Hi, D. I have taken Lyrica for around 7 years. I have experienced some side effects, but was only taking 200mg in 100mg capsules 1 time daily. I am an exercise type person and love to eat right, so I am wondering if you were successful in getting off this drug? I am currently on the way down 25mg one month at a time. Very slow, but a pharmacologist I talked to said that this might be a good way to try. I am not a medical person, and it is only one person's viewpoint. Bottom line, were you successful?
Hi Jenny Sue...sorry it took so long to answer...have not been on this forum for awhile. I did manage to get off the Lyrica and was off many weeks and then my seizures started up again, so I went back on( it was the beginning of a weekend and my doc was not around and I did not want to do ER). I am still struggling and plan to get off again after the holidays, I don't want to be so ill during that time.

How are you doing? Wel, I hope.
Diandra
Diandra is offline   Reply With QuoteReply With Quote
Old 09-23-2014, 10:07 AM #58
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

Quote:
Originally Posted by robs246 View Post
I just wanted to ask about GABA, how safe it is to use to help with anxiety,depression and are you still taking them? Do these amino acids also have a withdrawal symptoms? Also, did GABA affect your memory, intelligence in any way.
Hi Rob, welcome.

You can find more answers to your questions (and more info) in the archives.

For starters, type GABA in the Keyword(s): window, select Search Titles Only from the drop-down menu; Show Results as Threads.

You may already know, but please be careful not to confuse GABA with gabapentin—they are not the same thing. (Some people refer to gabapentin as 'gaba', which can be confuse/mislead others).

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.

Last edited by Dr. Smith; 09-23-2014 at 04:01 PM. Reason: typo
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 09-23-2014, 01:05 PM #59
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Default

Welcome robs246.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 01-01-2015, 10:04 PM #60
TeeGee TeeGee is offline
Newly Joined
 
Join Date: Jan 2015
Posts: 1
8 yr Member
TeeGee TeeGee is offline
Newly Joined
 
Join Date: Jan 2015
Posts: 1
8 yr Member
Default Well, I'm in big trouble if these symptoms are true....

I have been on Lyrica for 4 years for pain after a massive spinal surgery. I was up to 300 mg at night (it helped me sleep) and once the doctor took me off all opoids, he DOUBLED the dose to 600 mg. I have never taken more than 400, regardless of his instructions.

I am going to start taking ONE 200 mg tab at night for a month or so. Then, I'll have to start opening the capsules and skim off a little until I'm down to 100 for a month or so. After that, I will tell the Dr. to prescribe a small amount and that I want off.

My visit today? He put me off all Lyrica and wants me on Gabapentin. He says it is less expensive and will give me the same benefits. After reading this thread, I want nothing to do with these drugs.

I have to have another massive spinal surgery at the end of February where I'll be in Hospital for at least 3 weeks with patient pain button (push the button and you get a dose). I think I'll quit Lyrica then. After all, I'll be on all these opoids that should help mask the Lyrica withdrawal symptioms. OMG I haven't been able to figure out where the weight gain came from, the ringing in my ears, the blurry vision, loss of memory, etc. Now I know and I'm furious! (and scared).

Isn't there a way too sue somebody, something for not disclosing withdrawal problems? I realize that doesn't help you get through the process but I just went through a year long process to get off opoids and now have to do it all over again with Lyrica. I'm keeping a "drug log" from now on, recording what I take and when. Plus how I feel It will be a diary of sorts. I hope it helps in this journey to get off this damn drug!!
TeeGee is offline   Reply With QuoteReply With Quote
Reply

Tags
drug, fibromayalgia, lyrica, withdrawal


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyrica Withdrawal - How Long Will This Last? glixen Chronic Pain 260 09-27-2021 03:53 PM
Lyrica and Tramadol Withdrawal symptoms ali12 Medications & Treatments 3 08-30-2019 01:21 PM
handling lyrica withdrawal starsong Epilepsy 12 03-03-2015 10:05 AM
Lyrica withdrawal - Incoming Fated Medications & Treatments 13 01-19-2013 09:31 AM
Lyrica withdrawal symptoms ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 37 01-01-2013 06:14 PM


All times are GMT -5. The time now is 01:14 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.