Update
 

The intake of the missing of folate
Has been a God send
I have to tell you I was waiting for a crash
Because when starting this missing nutrient
I was afraid to post how good I felt in just two days
I tell you the truth
Tomorrow will be four weeks exactly
I am taking DEPLIN
Along with a multivitamin
And some changes in my diet
I cannot tell you other than
I am feeling more than 50% better
HEAD WISE
this means I am able to take whatever may come my
way with a better frame of mind
That is
HUGE
and what is even better
Others notice
Not saying what changes I made
But it is noticeable
This did not take away my bone pain
Nor the nerve pain
Nor what's happening to my feet and hands
I think a pulmonary specialist is the next new doctor
I will venture into
We will be without electricity again today no water
I fill a clean tub so we can go to the bathroom
Took my shower
Made english muffens so my family can have breakfast
This is day three we are subjected to repairs
Hoping its worth the inconveniences
We almost went without hot water Easter Sunday
I needed to call the "big wig"
And was supplied hot water within a half hour
This after the super did not answer his phone twice
Cannot leave elevators no in working order
Wanted to get car inspected its the end of the month
Will have to do it Monday
Things are good as far as my mental state
This is a good thing
Coming off of Xanax is getting a lift from
removing half of my morning dose
And the next decrease will be
My morning dose
Next week I will remove
Half of a half of a 1mg tablet
And the tablet can be cut
I will continue and hope I can have this removed from my body
Love
Me

Eva, it is good to read that you are feeling better :).

your well wishes felt
thank you
i am still at awe about the whole
makes me wonder what else may be missing
doing research on the
MTHFR DNA factor
a cause for
"neural tube defects"
i have an epileptic child
my eldest
went through so much
trying to find out what caused it
damage to the brain ruled out
but was there something missing
when i conceived
many woman with this mutation
suffer miscarriages
as conception takes place in the "fallopian tubes"
strangely this did not happen to me
if anything i became pregnant easily
wondering if that was because of the strong surges of estrogen
and progesterone
so many factors
yet with my eldest
just had a public grand maul seizure on he streets of Hoboken
hers after her second brain surgery gave up sight
this was the tradeoff trying to eradicate the seizures
in the end deemed idiopathic
are you kidding me i would say
now she has a VNS implant
don't know why she had the grand maul
don't know if she wasn't wearing her magnet
to activate the VNS
it reboots the brain
i just have this gut feeling
that is what i will be doing
bed ridden
the weather keeps me here
right back an shoulder arm now
base of my skull
this is the scary part
don't know if it is my lung
right detected emphysema
want to see if any correlation
between the two
i mean my kid
i have this gut feeling it does
but again thanks
i'm hoping to bring some of my experiences
to others
and hope it is informative
hoping you are also doing well
love
me

As the days go bye
 

It is a good thing
Still waiting for a crash
And I have to stop thinking like this
It wasn't an outrageous thing when I
began feeling a change
Finally the relief of the withdrawal from my Xanax
has been lifted
I have a better all around good feel
I do not have any of that terrible gut feel
once my mind began to wake and feel
So hard to explain
But the lift of that feel of doom
Is huge
Huge
It is sad
Persons could be relieved of so much
if missing folate
Having this mutation
None of the doctors wanted to address it
Guess what
It is The Direct cause of my thyroglossal duct cyst
that is active in my throat
It could have been removed when I had my
ANTERIOR FUSION
this condition is not a joke
It is not a good thing especially if one smokes
Who was thinking of my well being
while my surgeon overlooked it
nobody
He had me cleared so he could make a fix
only he was interested in
Only he left me with the thought
second fusion to be done posteriorly
I asked if it could be removed from behind
Answer of course was
No
And to have it removed now
After so many doctors failing me
Including my inserted balloons
That represent breasts
Botched
Left has what is called a
double bubble
Yup
Upon removing the bandage from around them
"It" was visible
Wrote about this already
I think in women health
Yet I may have extreme discomfort on so many levels
It isn't going to change anything
Though I can
operative word
CAN
Let loose about how let down I was
by my DOCTORS
I have yet to find two new doctors
A general physician
And
Pulmonary doctor to rule out my worst fear
Even though
I began to suffer this tingling scratchy painful
site on my upper right back
It seemed to have spread downward some
I know emphysema is noted in right lung
I just do not know
Till I see a doctor
This has been going on
Over all the most important thing I have experienced
with the folate and some other important stuff
B12 -2 -6, magnesium, TMG, fish oil my diet
Am sharing
My experience strength and absolute HOPE
why couldn't this have been found when I was a baby
How long have the medical world known about this mutation and its simple fix that could have made such a huge difference
in MY LIFE
Maybe after doing so much research on the run-on problems it can cause
that are not irreversible and
there are some ailments that can be lifted
just by introducing the missing links
folate
Simple but powerful
Folate and supplements to get the results I did
I just want anybody I can reach with this can get what I
got
Doing my homework
Not One Doctor
What does that say about out doctors today
I have decided
When looking for these two new doctors
My immediate questions will be my determining factor
How long does the doctor spend with their patients
How are appointments set up by appointment of first come first serve or does the doctor double book so no money lost
Just saying
Just wondering
Love
Me

Eva, happy to hear things are good. On doctors today, on another health group we have a long thread going on Doctors Today....I decided quite a while ago. Take care and we keep digging to help ourselves. C

dear friend
so right you are
over the weekend
i have decided to go through my providers manual
go through the list of doctors close by
as it is me and my granddaughter and Corissa in tow
thinking real hard what are the three most important
questions i must know before committing myself as a patient
on a permanent basis

when i became very ill with my neck being the chief problem back in 2009
having been to more than one orthopedic specialist and two neurosurgeon and not having a real choice in the matter according to all doctors having not only the critical job done
but
in addition
given a 75% chance of success
this unfortunately was not my case
again
i repeat was not my my case

okay here goes

i find a list of pulmonary specialist
found five within reasonable distance
a biggy for me
and here are the three questions i asked
1. how long after the initial first time meet with a new doctor
(that in my opinion with my problems or not) should be at
least 45 minutes to an hour especially when i have to fill out
so many forms

2. does the office double book, or is it first come first serve

3. how long is the doctor in practice

so
of the five doctors i called
ALL said
10 to 15 minutes

then i decided to call my insurance company
asked for my friend Richard
he was out today
yet Chris was kind and ready an willing to help
he was floored
at what i had revealed
what he said was this

i will be happy to call all doctors with the questions now wanted to know

i was taken aback
pleasantly surprised
for him to take the burden off my hands
and making the calls for me
having to hear the responses 10 to 15 minutes
can you imagine
this was the general amount of time given

really
really

what the heck is wrong
with this country
with the system
how in heaven's name can anybody
be assessed properly
here lays the problem IMO
me

Eva, we're talking about D.O.'s a lot, doctors of osteopathy.. These are medical doctors who go extra miles to learn about the body and cranial work etc. I've had a wonderful D.O. who is now gone but my daughter is considering one in our town as she's looking for a new doctor for she and her children. D.O.'s are for the most part much more open to alternatives, but if one needs a script they can write one. I meant to include a link but will add it later.

Thinking more on this Methylfolate and my friend who has horrible IBS and can't get it under control and she's 87. Just wondering if she takes Methylfolate and I'm going to ask her.

https://www.youtube.com/watch?v=6ZcC94kRB5E

It is a very good read
 

As I come to see the bigger picture
It all lies in the gut
A healthy gut
A healthy body
We are what we eat
We have do dig deeper
Many missing links
All connected
I truly beleive
It has EVERYTHING TO DO WITH OUR GUT

IT is the nutrients we put in it
And THE ABSORBED INTO THE BLOOD STREm
In turn FEED OUR ORGANS BRAIN FOR OUR BABIES
THAT need a good start in life
So much connected to nutrients
Holistic the first way to go
Thanks for the info
Type in
Notmilk.com

In doing more research and talking to others, I'm finding that the dose for me is 2mg Methyfolate and this dosing info says it all from Dr. Rawlins and Dr. Lynch:

http://methyl-life.com/dosage/

I'm not depressed but I can feel a lowness, and the 2mg I feel is bringing me up.


The notmilk site has a lot of info, I'll read more of it later. I gave up milk a long time ago.

Here is another good link on the Mutation issue.

http://www.freshideamama.com/mthfr-s...getting-tested

I continue with my dosing of methylfolate et al and all in all, I'm OK...hoping the bodywork will help me more.

One statement in the link concerns me; "98% of autistic children have the 677 and 1298 anomaly [of the MTHFR gene]"

A PubMed search ("autism" and "MTHFR") retrieves 31 papers. From them there is limited evidence that MTHFR mutations are possible risk factors for autism, at least in some populations, but the quote is not supported by the data.

I believe it to be connected as my eldest child has occipital lobe epilepsy and even in this case is a connection
I began doing research on the mutation and some of the ailments my children have and the mutation you would be surprised my youngest was born with a two tubes on the right that connects the kidney to the bladder both weren't in working order and on the left side only fourty percent functioning this child had half of the right kidney removed and tubes fixed to 100% capacity
This at a year old
She spiked a fever off the charts with a infection at three and a half months
I had my share of hospitals with my children
I believe I gave them that problem
I whole heartily believe there is a connection
"Neural Tube Defects"
What are the chances
Huge
Me

Eva, I am sorry to read about your children.

There is evidence that MTHFR mutations are risk factors for epilepsy and neural tube defects.

However, "I believe I gave them that problem" - please don't blame yourself for this - it is totally not your fault.

From all that you have shared here, I am sure that you are a loving and supportive parent - that is all that matters.

:hug:

Your response warms me
 

You are absolutely right
As my thyroglossal duct cyst is and can only be acquired by this particular research
I was floored when I read this
And reminded my doctors could have had it removed when I had my ACDF surgery
My constant wanting to know
has been my passion
My surgeon had a huge problem with my constant asking questions
Why wouldn't I
Oh my goodness
It's my body
Not a practice run
But that part of my life is still with me every single day I wake up
he will always be a sore spot forever
Letting go is my job
Still working on it
Have much going on internally
Much to let go of
Working on it I am

My grandchild mother in the hospital
Another breakdown
In the physiatrics unit
This is what I'm talking about
My family is very ill
This child of mine is the one who tested positive when tested for the MTHFR mutation
She told this to the hospital doctors
They have no clue what she is talking about
She has read all the information I have given her
She just needs to start taking the missing vitamins that will
help her immediately
This drives me nuts
Nuts I tell you
NUTS
DID I SAY NUTS
I do not get it
How can it not be heard of
Why is it not spoken about
Why aren't the doctors looking for the

• root

of it all
Not just to mask the problem
I am sick of it
Where is the real immediate care necessary
I am so sick and tired of the doctors not held responsible for getting people hooked on the opioids that is running like wild fire
and no getting ahead of it
My mother is going to a doctor who is promoting the
"Neuro stim system"
If there is any success with her I am jumping on the wagon
And want the meds out of my body
I do not want to die having to take pain meds for the rest of my life
It is torturous
I am grateful for the meds to keep the pain at bay and at a level five fit the most part
My body already has a internal clock
As I take my meds three times a day
And my body will act up just before I realize what time it is
And if I ever
EVER
ABUSED MY MEDS
WILL BE THE DAY I REMOVE THEM FROM MY LIFE
AND PICK UP A DRINK
that is how vigilant I am with my meds
And they are locked up
There is so much I have to say on this subject
For another time
Weather started out sunny
Clouds will be rolling in
We had a month of wet horrible dampness
the heat was put back on
The elderly in the building are hurting
Not to mention the babies
Who are just getting a start in life
Oh Heavenly Father
Help us
Help me find the happiness I deserve
You only you know what I need
And I await your blessings and gifts
I deserve
In Jesus I trust
In God I believe
Me

My sister 46 tested...
 

Positive for the MTHFR MUTATION
ADDITIONALLY
She tested positive for the two variants
She will call later
It is just amazing
Amazing
Can anyone see and understand the magnitude
This sister of mine has had stomach problems since she was a baby this I remember as I took care of her
Amazed
Heavenly Father
Something this simple can destroy a recipient of this mutation
Amazed
My eldest
In denial
Blames God for her epileptic brain
When it was my genes that gave it to her
Astranged but she knows
And said her epileptoligest said no connection
HE IS "WRONG" "WRONG" "WRONG"
I am floored
Me

Amazing about your sister. Eva, I forget how you Found Out about this mutation issue. I have a friend who has awful gastro issues and she is such a clean food person and takes hardly any drugs and just wondering about this mutation with her. I don't know her early life history with stomach but I'll mention it to her. She's so tired of tests etc. and is getting too old to keep testing and testing. She takes DGL, probiotics and digestive enzymes and still has issues. Makes me wonder. C

I was tested by my oncologist
My hands and feet would suffer sharp pain
There would be a vein that would swell and swell
and the surrounding veins begin to fill like out of a horror
flick funky looking
The sharp pain increasing as I know it will stop once it bursts
and then a huge black and blue
I was being tested for my couagulation
Worried about clots
I am just doing what I should
a cat-scan and x-ray to rule out worse case scenario
My blood work went through A to Z
This was one of them
And the doctor just passed it up
I was floored when finding this out
You feel well
And stay well
And best to your friend
Me

watching the videos
my breast cancer
a direct result of my mutation
my cancer estrogen driven
part three of four explains hormones
so many things that is wrong with me
my thyroglossal duct active
a direct result of the mutation
infact the only way one acquires it
my son bi-polar
my daughter occipital lobe epilepsy
my other two daughters
one kidney surgery
the other granddaughters mother tested positive
all of my children affected
my youngest sister tested positive

but the breast cancer
i wasn't surprised
just amazing
floored
just floored

Caroline
 

Has your friend been tested
How is she doing
My eighteen year old doing much better
Four mg to start
And she felt a difference in three days
Three days feeling better

Still amazed that more than 50% of the population
Has this problem
And the idea that persons are walking around
under this umbrella of numerous ailments unexplained
How many persons with a thyroglossal duct cyst a direct result
of acquiring it only by having the MTHFR MUTATION
It is not recognized as a problem
In fact
It is the host
HOST
answers to the unexplained ailments connects to the mutation
Hope you are doing well enjoying the summer
Take care
Love
Me

Eva, my friend who is 89 has so many issues that have come on in the last 20 yrs I'd say. She also had a hip replacement the same year as me 2010 and she's gone downhill a lot since that surgery, a couple falls and fractures and the latest fall was about a week ago, in her apt, and the fall broke her shoulder...so in the hospital and now in rehab for who knows how long. So far the doctors are saying no surgery, surgery for this aged person can be so fraught with problems overall. About the mutation test, no I don't think she will venture there at this late date and with all her issues.

And if so many have this mutation issue, more shame on pharma world of continuing drugging the population for all the conditions they go to see their doctors. I know I've been a loud voice on my feelings about the modern medical industry here and every where I venture and this topic is discussed. C

So sorry to hear about your friend
Twenty years on a downward spiral
To be at an age where it is better left untouched
Makes me sad
So very sad
Be well C

It's hard to turn around an 89 yr old body. She goes to enough doctors now but I wouldn't even mention the mutation gene to her. There comes a time when acceptance for the most part and work on what we can. There is a lot of sadness in the world. But for a person who has lived almost 90 yrs, one has to keep their memories alive.

Eva, some others on another group are taking Deplin and wonder if you still are and how is it going for you. What dose are you taking now? Thanks.

Yes I am
15 mg
As my eldest 15mg
Another child third in order 15 mg
Sister not sure
Will find out
Eva