Go Back   NeuroTalk Support Groups > >

Medications & Treatments For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity.

Deplin

Reply
 
Thread Tools Display Modes
Old 03-03-2016, 12:31 PM   #11
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default Well thank you MrsD

Quote:
Originally Posted by mrsD View Post
In short.... The MTHFR mutation affects B12 as well as folate.

If you are not methylating B12 then you do not have active working B12. Taking high dose (and you are taking mega high dose) methylfolate and NO B12 to balance it, will lead to neurological damage.

This is why Deplin is an RX item to prevent people from misusing it.

https://umm.edu/health/medical/altme...-b12-cobalamin

do you know your B12 level? Many doctors still do not know that 400pg/ml is the new acceptable low for B12.

Did you check the links I gave you? Doing your own supplementing of Bcomplex, methylfolate and methylB12
can cost only about $40 for 3 months supply...and you are paying more than that for one month?

I would suggest you supplement AT LEAST the methylB12 yourself. It must be taken on an empty stomach for best absorption. It will only cost you pennies a day.
To answer your question
NO doctor on my train are interested
And the massive information only confusing me to NO END
I WILL CALL THE COMPANY AND INFORM THEM WHAT YOU ARE SUGGESTING
NO DOCTOR IS EVEN INTERESTED
are you kidding me
to come here for help I look to
I would much rather take what is necessary
at the least cost
It may be easy for some to understand
Understand this
When my pictures of my hands and feet were bruised as
pictures tell a better story
No story
I was then tested for worries of clotting
I found this information among the test
And NO DOCTOR RED FLAGGED IT
Or connected the dots

How about this
Can I ask you this
Now that I will be taking DEPLIN
You suggest I take B12
How much of it
Calling the company now
I am not in a good place withdrawal is kicking my butt
Sad
Just so damn *** sad
Thank you very much
Love
Me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), St George 2013 (03-03-2016)
Old 03-03-2016, 01:12 PM   #12
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default thank you

Spoke with company RX Chad
He tells me not correct
And that he gets many calls with the same question
I will need to get a nutritionist on board I have yet to look into that
I will begin DEPLIN with a regular multivitamin in addition a proper diet of which we always practice
He explained as I read exactly what you suggested
And he said neurological things anxiety depression even as far as
seizures are these the neurological problems you speak of as I am aware of them
I always knew I was sicker than sick when having cervical neck surgeries
As all that was happening
NO DOCTOR WAS LISTENING TO ME
TWO YEARS LATER I FOUND MY BREAST CANCER
I FOUND "IT"
No one was LISTENING
I will continue to post
Product should arrive in three days
I should feel affects in two weeks
This cookie has always been in tune with this body and what going on
When I was having screwed up cervical neck damage done to me by a doctor
Who then could not look into my eyes when I acquired horners syndrome
My left pupil fixed
A direct result from hematoma botched job
This I know
The back of my neck feeling foreign to me
all changed to the touch
Never have I ever felt so helpless
Maybe you can understand my fears and concerns
Me
__________________
someone who cares
eva

Last edited by eva5667faliure; 03-03-2016 at 08:01 PM.
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), St George 2013 (03-03-2016)
Old 03-03-2016, 01:29 PM   #13
mrsD
Super Moderator
 
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,515
Lightbulb

Well, I see my job as one to protect people here.

I've now discharged my knowledge to you twice, so you are on your own.

Patients with the MTHFR mutation have effects on both folate and B12. That is not just my "opinion" but it is all over the net by experts.

We have a B12 thread in the stickies on PN forum.

B12 is over the counter so you can take it yourself. You can start at 1000mcg (1mg) daily on an empty stomach.

It is sad that you are not receiving better care and treatment.

http://www.drugs.com/cdi/deplin.html
Deplin is not a drug...it is classed as a medical food.
From what I have seen online over the years, it doesn't work well for some, and can have some unpleasant side
effects. It is a very high dose and some people cannot handle that.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (03-03-2016)
Old 03-03-2016, 02:34 PM   #14
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default Again I say thank you

Quote:
Originally Posted by mrsD View Post
Well, I see my job as one to protect people here.

I've now discharged my knowledge to you twice, so you are on your own.

Patients with the MTHFR mutation have effects on both folate and B12. That is not just my "opinion" but it is all over the net by experts.

We have a B12 thread in the stickies on PN forum.

B12 is over the counter so you can take it yourself. You can start at 1000mcg (1mg) daily on an empty stomach.

It is sad that you are not receiving better care and treatment.

http://www.drugs.com/cdi/deplin.html
Deplin is not a drug...it is classed as a medical food.
From what I have seen online over the years, it doesn't work well for some, and can have some unpleasant side
effects. It is a very high dose and some people cannot handle that.
You are so very right
I do not trust anyone
Though I will be able to give
important follow up as how it is helping me
Wouldn't it be WONDERFUL if it helps
And that is the bottom line
As my shrink said asking him to help
Intact was "tedious"
Let me not be a burden to anybody
I have done all I can for now
To many things going on at once
I get what you are getting across about the
Company and MONEY MONEY MONEY
THAT IS WHAT THIS COUNRTY HAS REDUCED ITSEF TO
shame on the doctors pharmaceuticals
And as I get older the worst off are
"WE THE PEOPLE"
Amen
__________________
someone who cares
eva
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 03-03-2016, 03:37 PM   #15
caroline2
Senior Member
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 1,897
Default

Eva, I agree with MrsD and know enough about Methylfolate and have talked to you. If you are taking the 15mg that is a very high dose. I have a friend who takes close to 2mg and I'm right there with her, I take a little less, but we both make sure our B12 is sufficient. We buy both otc. Can only wish you the best.
__________________
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
caroline2 is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (03-03-2016)
Old 03-04-2016, 07:02 AM   #16
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default That's just awesome

Quote:
Originally Posted by caroline2 View Post
Eva, I agree with MrsD and know enough about Methylfolate and have talked to you. If you are taking the 15mg that is a very high dose. I have a friend who takes close to 2mg and I'm right there with her, I take a little less, but we both make sure our B12 is sufficient. We buy both otc. Can only wish you the best.
I do not trust OTC med or vitamins for that matter

Let me ask you something
Do you know anything about this body
Did you even do any homework on a thyroglossal duct cyst
Something this body had been suffering with
An active one
I came to NT FAILED CERVICAL SUGERY and have been around
I find it amazing that the school would put the kinds of food for our youngsters to start life off with a unhealthy bang
Always sent my children to school with a balanced meal
And would put an extra serving for another students in the class
They would eat Corissa's lunch

The help I am looking for is something many WILL NOT UNDERSTAND
However I expect common knowledge
to be exactly that
I had many different variants to look at
This mutation is just another thing to put on the list of problems
As my cyst is active
And I have been to three reputable ENT SPECIALESTS WHEN I HAD PRIVATE INSURANCE
by the way
A person in this country could DIE before they could get health insurance
This a disgrace
I now in a difficult place

Yesterday at my OBGYN
He had the decency to tell me Eva
I have limited knowledge of genetics

Since seeing three ENT's
THESE ARE THE THREE RESPONSES
1st one told me it does not LOOK like you have one
2nd one told me it is something I need to keep an eye on
3rd one asked why did the neurosurgeon not have it removed when he entered my neck anteriorly this ENT NEEDED TO CLEAR ME FOR SECOND SURGERY
do you even know what it's function or purpose is of how I acquired it
The third ENT said
It should have been removed
Did you know that goiter is prevelent on my mothers side
My mother and all her siblings three of four has them
Members of my lineage have died as a result of complications
To much iodine when doing the surgeries so the story is via my mother
After my first ACDF 5/6-6/7 and failed to fuse
I had no choice in the matter

My surgeon asked me
Why would I return to him to fix the job
My response was this
Dr. Peterson why would I go to another person
Isn't what you did "YOUR ART WORK"
"ONLY YOU KNOW WHAT YOU DID"
WITH THAT NOT A WORD AS HE DRAINED THE HEMATOMA THAT GREW OVER NIGHT"
I trust nobody
Including the OTC meds
Since my failed second surgery
I was reduced to wearing a soft collar all of the time
Until about a year now
My cyst has become bothersome
Why do I bring this up
HORMONES another reasons doctors are misdiagnosing
Another biggie as diet and proper nutrients are to ones body

I will continue to post
And let others know how things are going
May all who look for help
Do your homework
Thoroughly
I do not believe everything I read or hear on television

How about this

There is a neurologist who is cunducting a study
His name DR. KEVIN TRACEY OF NEUROLOGY
based out of NYC my back yard
"Believes" and has proven that all things such as inflammation
be the VERY FIRST SIGN of something gone wrong
He believes and so do I doing extensive research
LIKE I SAID WITH THIS BODY EVERYTHING "IS" interconnected
He has a site if you type in his name and state
You will find a site called
"CAN THE NERVOUS SYSTEM BE REBOOTED"
A LARGE pharmaceutical COMPANY WANTED IN AND GAVE HIM
A HUGE SOME OF MONEY FOR HIS REASEARCH
THAT SPOKE "VOLUMES TO ME"
THERE IS MONEY TO BE MADE
AND THEY WANT IN
BECAUSE
WHAT THIS DOCTOR PROPOSES
NO MEDICINES
ESPECIALLY FOR THOSE LIKE MYSELF
allergic reactions
Deadly side affects
Not any different then the DEPLIN
Always everything with caution and knowledge
HOMEwork this I have done
As it is what is left of this dying body
It is rotting before my doctors
And "they don't give a turd"
INSTEAD IT IS
WHERE'S THE MONEY
A sad country it has become
I came to this country at five
My father had some idea that the western world
The only world I know
Is way ahead of itself
Me
__________________
someone who cares
eva

Last edited by eva5667faliure; 03-04-2016 at 07:29 AM.
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 03-04-2016, 03:55 PM   #17
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default my child Eva's mom

TESTED POSITIVE
FOR THE MUTATION
just spoke with her
her doctor will be doing more tests

AS IT EXPLAINED
not only is more than 50% of the population
is affected


it would be great to get more info
on the mutation on the forum
__________________
someone who cares
eva
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 03-04-2016, 04:05 PM   #18
mrsD
Super Moderator
 
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,515
Lightbulb

There is already much information on the NT forums.
Just search MTHFR ... lots of posts on the PN forum.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (03-04-2016)
Old 03-04-2016, 04:08 PM   #19
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default my child Eva's mom

TESTED POSITIVE
FOR THE MUTATION
just spoke with her
her doctor will be doing more tests

AS IT EXPLAINED
more than 50% of the population
is affected
it would be great to get more info
on the mutation on the forum

just some FYI
happy
knowledge
i was put on a high dose as i am at the extreme
side to the mutation
i Should benefit from
this


http://www.balancingbrainchemistry.c...epression.html
__________________
someone who cares
eva
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 03-04-2016, 04:14 PM   #20
eva5667faliure
Grand Magnate
 
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,399
My Mood: Deplin
Default

Quote:
Originally Posted by mrsD View Post
There is already much information on the NT forums.
Just search MTHFR ... lots of posts on the PN forum.
i hope my two cents
should help
this is new to me
and i went through the site
not broad enough info
as there are many interconnecting
ingredients and the lack of
and so on


I arrived

JUST TOOK MY FIRST TABLET
with my multivitamin 50 plus
will continue to post
__________________
someone who cares
eva
eva5667faliure is offline   Reply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Deplin and OCD Anxiety Depression anxiousguy Vitamins, Nutrients, Herbs and Supplements 2 12-16-2014 03:32 PM


All times are GMT -5. The time now is 09:53 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy