My friend who is challenged with CFS/ME is on phoenix rising group and she says a whole section is devoted to the MFolate issue and a large number of people have the mutation. And she goes on to say, most doctors don't know about this MTHFR mutation, and hand out anti depressants... maddening..

this was the issue with myself
my shrink
would just give me antidepressant after another
now i understand trial and error
and no success
is because it was not being processed
hindered by the mutation
awesome to know it is out there
now my shrink is sending me samples
think his consciousness set in
and seen how i was failed by him
he said he would call in a month
to see how i doing after a month on it
told him that would be fine

Some hope
 

Dear friends

I cannot begin to tell all the difference
The significance
The positive improvements that are occurring
While the Xanax
Still kicking my butt
This only a .05mg decrease in morning dose
Kicking it I tell you
And it is the Xanax for certain
It helps when one takes a look at their body
And LISTEN TO IT
greatful I am to have pushed through
And did my homework
This only my two cents

feeling...
 

awesome
awesome
awesome
will keep posting
if i'm allowed
i accused of being rude
because i write in caps
i'm very old school
had no clue it meant i was shouting

I WILL SHOUT OUT THIS
I AM FEELING GREAT
SLEEPING GREAT
AND HAD A MUCH LESS TRAUMATIC EXPERIENCE GOING TO THE BATHROOM

I AM FEELING AWESOME

do not give up ever
keep searching for the source of the problem
while doctors turn the other way
my experience
me

Eva, it is good to read that you are feeling awesome :).

Amazed, greatful, hopeful
 

And this my doctors would just
Sweep under the rug
It is absolutely been a uphill battle
This a good thing
No pain on a mental level
Where my mind just is stuck on all the negitive

Today again no doom visited me
Just the fact I can wake and "not be visited"
by this sadness that manifested physically
To myself I am true
I am feeling so much better
since taking some things into my own hands
My doctors swept it under the rug
Not a concern for helping me find the cause of my hands and feet
they cannot deny the pictures
The best description I can give as it is invisible to anyone else
The inside of my hands
Each of my didgets are painful independently
The skin tingles with fire
If I put lay my hand down it just grows
This not the same as the problem that has my doctors scatching their heads
The underside on my feet the same only they feel the heat
Don't know what it's like to walk on hot coals
I wonder
This has been the way it's been for many years now
Starting in 1999-2000 subtle changes
to where things are now

This again independent from the inflammation of vein that would eventually pop burst deflate and the to follow a huge bruise

They have not a clue
Nobody on my train says anything
This is heartbreaking
Just heartbreaking

Eva, conventional MD's just don't know how to dig deep and go after what our body needs...we are depleting of so much daily and they just don't know. And truth be known, they really don't care. I believe this more and more the older I get and know of my own health. Happy you are feeling so much better...it can continue.

Thank you for your well wishes
 

Things are to to put up with
I do see your faith is on a fence with the ones
we put our bodies to take care of
If I read you right
I have been repeatedly let down and am maimed
including my right breast reconstructive
I just feel if it is fifty percent and more of the population
has this very acute problematic mutation that if picked up
possibly could give a good starting chance

Only because there is a huge difference
A sense of ease even when something is up
And sleep did I mention sleep
Again thank you for your well wishes
You be well
Keep searching
Me

feed your brain
 

To the pain specialist
 

3:45 is my appointment
I now need him to make out the script for my Xanax
As I fired my shrink after seven years
This is not the first time he grossly responded
Having to fill out the form for insurance company
called a "profile" of was tedious and how doubious
The whole thing is
Kept calling me after I cancelled ALL my appointments with him
After what I went through with the (SNAP PROGRAM) food stamps case closed
because I never received my papers to re-certify my case via
regular mail a problem in this building

It will be interesting to see "bobby"
My pain specialist from the very beginning of my spine neck and lower back

I will bring him all the info on my success
I am not going beg him to do his homework
As I have printed out enough for him

Loosing my faith

Lets not forget
He dumped this vitamin
Mumbo jumbo stuff for him
"Not his speciality"

Anyhow
It is getting harder and harder to trust the doctors
This has been my personal experience

The DOCTORS YET TO FIGURE OUT WHAT IS GOING ON WITH THE HANDS AND FEET AND VIENS INFLAMING AND THEN BURST
only to leave a huge bruise
Already submitted pictures here
For persons to view
and if anybody else was experiencing what I am
"THEY" have no clue
But you know as well as I and them
Something is terribly wrong

I have to fight this fight
Alone with my Father at my side
Love
Me