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03-08-2016, 06:29 PM | #31 | ||
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My friend who is challenged with CFS/ME is on phoenix rising group and she says a whole section is devoted to the MFolate issue and a large number of people have the mutation. And she goes on to say, most doctors don't know about this MTHFR mutation, and hand out anti depressants... maddening..
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03-08-2016, 07:28 PM | #32 | |||
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Grand Magnate
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Quote:
my shrink would just give me antidepressant after another now i understand trial and error and no success is because it was not being processed hindered by the mutation awesome to know it is out there now my shrink is sending me samples think his consciousness set in and seen how i was failed by him he said he would call in a month to see how i doing after a month on it told him that would be fine
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03-10-2016, 06:18 AM | #33 | |||
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Grand Magnate
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Dear friends
I cannot begin to tell all the difference The significance The positive improvements that are occurring While the Xanax Still kicking my butt This only a .05mg decrease in morning dose Kicking it I tell you And it is the Xanax for certain It helps when one takes a look at their body And LISTEN TO IT greatful I am to have pushed through And did my homework This only my two cents
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"Thanks for this!" says: | DejaVu (06-14-2016), PamelaJune (03-11-2016) |
03-13-2016, 05:05 PM | #34 | |||
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Grand Magnate
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awesome
awesome awesome will keep posting if i'm allowed i accused of being rude because i write in caps i'm very old school had no clue it meant i was shouting I WILL SHOUT OUT THIS I AM FEELING GREAT SLEEPING GREAT AND HAD A MUCH LESS TRAUMATIC EXPERIENCE GOING TO THE BATHROOM I AM FEELING AWESOME do not give up ever keep searching for the source of the problem while doctors turn the other way my experience me
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"Thanks for this!" says: | DejaVu (06-14-2016) |
03-13-2016, 05:28 PM | #35 | |||
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Grand Magnate
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Eva, it is good to read that you are feeling awesome .
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (03-13-2016) |
03-14-2016, 06:56 AM | #36 | |||
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Grand Magnate
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And this my doctors would just
Sweep under the rug It is absolutely been a uphill battle This a good thing No pain on a mental level Where my mind just is stuck on all the negitive Today again no doom visited me Just the fact I can wake and "not be visited" by this sadness that manifested physically To myself I am true I am feeling so much better since taking some things into my own hands My doctors swept it under the rug Not a concern for helping me find the cause of my hands and feet they cannot deny the pictures The best description I can give as it is invisible to anyone else The inside of my hands Each of my didgets are painful independently The skin tingles with fire If I put lay my hand down it just grows This not the same as the problem that has my doctors scatching their heads The underside on my feet the same only they feel the heat Don't know what it's like to walk on hot coals I wonder This has been the way it's been for many years now Starting in 1999-2000 subtle changes to where things are now This again independent from the inflammation of vein that would eventually pop burst deflate and the to follow a huge bruise They have not a clue Nobody on my train says anything This is heartbreaking Just heartbreaking
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"Thanks for this!" says: | DejaVu (06-14-2016), PamelaJune (03-14-2016) |
03-14-2016, 12:22 PM | #37 | ||
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Eva, conventional MD's just don't know how to dig deep and go after what our body needs...we are depleting of so much daily and they just don't know. And truth be known, they really don't care. I believe this more and more the older I get and know of my own health. Happy you are feeling so much better...it can continue.
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (03-14-2016) |
03-14-2016, 10:11 PM | #38 | |||
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Grand Magnate
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Things are to to put up with
I do see your faith is on a fence with the ones we put our bodies to take care of If I read you right I have been repeatedly let down and am maimed including my right breast reconstructive I just feel if it is fifty percent and more of the population has this very acute problematic mutation that if picked up possibly could give a good starting chance Only because there is a huge difference A sense of ease even when something is up And sleep did I mention sleep Again thank you for your well wishes You be well Keep searching Me
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"Thanks for this!" says: | DejaVu (06-14-2016), PamelaJune (03-15-2016) |
03-15-2016, 11:04 AM | #39 | |||
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Grand Magnate
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"Thanks for this!" says: | DejaVu (06-14-2016) |
03-17-2016, 07:19 AM | #40 | |||
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Grand Magnate
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3:45 is my appointment
I now need him to make out the script for my Xanax As I fired my shrink after seven years This is not the first time he grossly responded Having to fill out the form for insurance company called a "profile" of was tedious and how doubious The whole thing is Kept calling me after I cancelled ALL my appointments with him After what I went through with the (SNAP PROGRAM) food stamps case closed because I never received my papers to re-certify my case via regular mail a problem in this building It will be interesting to see "bobby" My pain specialist from the very beginning of my spine neck and lower back I will bring him all the info on my success I am not going beg him to do his homework As I have printed out enough for him Loosing my faith Lets not forget He dumped this vitamin Mumbo jumbo stuff for him "Not his speciality" Anyhow It is getting harder and harder to trust the doctors This has been my personal experience The DOCTORS YET TO FIGURE OUT WHAT IS GOING ON WITH THE HANDS AND FEET AND VIENS INFLAMING AND THEN BURST only to leave a huge bruise Already submitted pictures here For persons to view and if anybody else was experiencing what I am "THEY" have no clue But you know as well as I and them Something is terribly wrong I have to fight this fight Alone with my Father at my side Love Me
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"Thanks for this!" says: | DejaVu (06-14-2016) |
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