Medications & Treatments For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-31-2016, 08:12 AM #41
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default Update

The intake of the missing of folate
Has been a God send
I have to tell you I was waiting for a crash
Because when starting this missing nutrient
I was afraid to post how good I felt in just two days
I tell you the truth
Tomorrow will be four weeks exactly
I am taking DEPLIN
Along with a multivitamin
And some changes in my diet
I cannot tell you other than
I am feeling more than 50% better
HEAD WISE
this means I am able to take whatever may come my
way with a better frame of mind
That is
HUGE
and what is even better
Others notice
Not saying what changes I made
But it is noticeable
This did not take away my bone pain
Nor the nerve pain
Nor what's happening to my feet and hands
I think a pulmonary specialist is the next new doctor
I will venture into
We will be without electricity again today no water
I fill a clean tub so we can go to the bathroom
Took my shower
Made english muffens so my family can have breakfast
This is day three we are subjected to repairs
Hoping its worth the inconveniences
We almost went without hot water Easter Sunday
I needed to call the "big wig"
And was supplied hot water within a half hour
This after the super did not answer his phone twice
Cannot leave elevators no in working order
Wanted to get car inspected its the end of the month
Will have to do it Monday
Things are good as far as my mental state
This is a good thing
Coming off of Xanax is getting a lift from
removing half of my morning dose
And the next decrease will be
My morning dose
Next week I will remove
Half of a half of a 1mg tablet
And the tablet can be cut
I will continue and hope I can have this removed from my body
Love
Me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
caroline2 (03-31-2016), DejaVu (06-14-2016), ger715 (04-02-2016), kiwi33 (04-01-2016), PamelaJune (03-31-2016), PurpleFoot721 (03-31-2016)

advertisement
Old 04-01-2016, 04:33 AM #42
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Eva, it is good to read that you are feeling better .
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (04-01-2016), ger715 (04-02-2016), PurpleFoot721 (04-01-2016)
Old 04-01-2016, 06:47 AM #43
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by kiwi33 View Post
Eva, it is good to read that you are feeling better .
your well wishes felt
thank you
i am still at awe about the whole
makes me wonder what else may be missing
doing research on the
MTHFR DNA factor
a cause for
"neural tube defects"
i have an epileptic child
my eldest
went through so much
trying to find out what caused it
damage to the brain ruled out
but was there something missing
when i conceived
many woman with this mutation
suffer miscarriages
as conception takes place in the "fallopian tubes"
strangely this did not happen to me
if anything i became pregnant easily
wondering if that was because of the strong surges of estrogen
and progesterone
so many factors
yet with my eldest
just had a public grand maul seizure on he streets of Hoboken
hers after her second brain surgery gave up sight
this was the tradeoff trying to eradicate the seizures
in the end deemed idiopathic
are you kidding me i would say
now she has a VNS implant
don't know why she had the grand maul
don't know if she wasn't wearing her magnet
to activate the VNS
it reboots the brain
i just have this gut feeling
that is what i will be doing
bed ridden
the weather keeps me here
right back an shoulder arm now
base of my skull
this is the scary part
don't know if it is my lung
right detected emphysema
want to see if any correlation
between the two
i mean my kid
i have this gut feeling it does
but again thanks
i'm hoping to bring some of my experiences
to others
and hope it is informative
hoping you are also doing well
love
me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), ger715 (04-02-2016), PurpleFoot721 (04-01-2016)
Old 04-04-2016, 07:33 AM #44
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default As the days go bye

It is a good thing
Still waiting for a crash
And I have to stop thinking like this
It wasn't an outrageous thing when I
began feeling a change
Finally the relief of the withdrawal from my Xanax
has been lifted
I have a better all around good feel
I do not have any of that terrible gut feel
once my mind began to wake and feel
So hard to explain
But the lift of that feel of doom
Is huge
Huge
It is sad
Persons could be relieved of so much
if missing folate
Having this mutation
None of the doctors wanted to address it
Guess what
It is The Direct cause of my thyroglossal duct cyst
that is active in my throat
It could have been removed when I had my
ANTERIOR FUSION
this condition is not a joke
It is not a good thing especially if one smokes
Who was thinking of my well being
while my surgeon overlooked it
nobody
He had me cleared so he could make a fix
only he was interested in
Only he left me with the thought
second fusion to be done posteriorly
I asked if it could be removed from behind
Answer of course was
No
And to have it removed now
After so many doctors failing me
Including my inserted balloons
That represent breasts
Botched
Left has what is called a
double bubble
Yup
Upon removing the bandage from around them
"It" was visible
Wrote about this already
I think in women health
Yet I may have extreme discomfort on so many levels
It isn't going to change anything
Though I can
operative word
CAN
Let loose about how let down I was
by my DOCTORS
I have yet to find two new doctors
A general physician
And
Pulmonary doctor to rule out my worst fear
Even though
I began to suffer this tingling scratchy painful
site on my upper right back
It seemed to have spread downward some
I know emphysema is noted in right lung
I just do not know
Till I see a doctor
This has been going on
Over all the most important thing I have experienced
with the folate and some other important stuff
B12 -2 -6, magnesium, TMG, fish oil my diet
Am sharing
My experience strength and absolute HOPE
why couldn't this have been found when I was a baby
How long have the medical world known about this mutation and its simple fix that could have made such a huge difference
in MY LIFE
Maybe after doing so much research on the run-on problems it can cause
that are not irreversible and
there are some ailments that can be lifted
just by introducing the missing links
folate
Simple but powerful
Folate and supplements to get the results I did
I just want anybody I can reach with this can get what I
got
Doing my homework
Not One Doctor
What does that say about out doctors today
I have decided
When looking for these two new doctors
My immediate questions will be my determining factor
How long does the doctor spend with their patients
How are appointments set up by appointment of first come first serve or does the doctor double book so no money lost
Just saying
Just wondering
Love
Me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
caroline2 (04-04-2016), DejaVu (06-14-2016)
Old 04-04-2016, 11:15 AM #45
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

Eva, happy to hear things are good. On doctors today, on another health group we have a long thread going on Doctors Today....I decided quite a while ago. Take care and we keep digging to help ourselves. C
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (04-04-2016)
Old 04-04-2016, 03:04 PM #46
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by caroline2 View Post
Eva, happy to hear things are good. On doctors today, on another health group we have a long thread going on Doctors Today....I decided quite a while ago. Take care and we keep digging to help ourselves. C
dear friend
so right you are
over the weekend
i have decided to go through my providers manual
go through the list of doctors close by
as it is me and my granddaughter and Corissa in tow
thinking real hard what are the three most important
questions i must know before committing myself as a patient
on a permanent basis

when i became very ill with my neck being the chief problem back in 2009
having been to more than one orthopedic specialist and two neurosurgeon and not having a real choice in the matter according to all doctors having not only the critical job done
but
in addition
given a 75% chance of success
this unfortunately was not my case
again
i repeat was not my my case

okay here goes

i find a list of pulmonary specialist
found five within reasonable distance
a biggy for me
and here are the three questions i asked
1. how long after the initial first time meet with a new doctor
(that in my opinion with my problems or not) should be at
least 45 minutes to an hour especially when i have to fill out
so many forms

2. does the office double book, or is it first come first serve

3. how long is the doctor in practice

so
of the five doctors i called
ALL said
10 to 15 minutes

then i decided to call my insurance company
asked for my friend Richard
he was out today
yet Chris was kind and ready an willing to help
he was floored
at what i had revealed
what he said was this

i will be happy to call all doctors with the questions now wanted to know

i was taken aback
pleasantly surprised
for him to take the burden off my hands
and making the calls for me
having to hear the responses 10 to 15 minutes
can you imagine
this was the general amount of time given

really
really

what the heck is wrong
with this country
with the system
how in heaven's name can anybody
be assessed properly
here lays the problem IMO
me
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 04-04-2016, 03:42 PM #47
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

Eva, we're talking about D.O.'s a lot, doctors of osteopathy.. These are medical doctors who go extra miles to learn about the body and cranial work etc. I've had a wonderful D.O. who is now gone but my daughter is considering one in our town as she's looking for a new doctor for she and her children. D.O.'s are for the most part much more open to alternatives, but if one needs a script they can write one. I meant to include a link but will add it later.
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (04-07-2016)
Old 04-07-2016, 12:54 PM #48
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

Thinking more on this Methylfolate and my friend who has horrible IBS and can't get it under control and she's 87. Just wondering if she takes Methylfolate and I'm going to ask her.

https://www.youtube.com/watch?v=6ZcC94kRB5E
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (04-07-2016)
Old 04-07-2016, 07:31 PM #49
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default It is a very good read

Quote:
Originally Posted by caroline2 View Post
Eva, we're talking about D.O.'s a lot, doctors of osteopathy.. These are medical doctors who go extra miles to learn about the body and cranial work etc. I've had a wonderful D.O. who is now gone but my daughter is considering one in our town as she's looking for a new doctor for she and her children. D.O.'s are for the most part much more open to alternatives, but if one needs a script they can write one. I meant to include a link but will add it later.
As I come to see the bigger picture
It all lies in the gut
A healthy gut
A healthy body
We are what we eat
We have do dig deeper
Many missing links
All connected
I truly beleive
It has EVERYTHING TO DO WITH OUR GUT

IT is the nutrients we put in it
And THE ABSORBED INTO THE BLOOD STREm
In turn FEED OUR ORGANS BRAIN FOR OUR BABIES
THAT need a good start in life
So much connected to nutrients
Holistic the first way to go
Thanks for the info
Type in
Notmilk.com
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016)
Old 04-07-2016, 10:49 PM #50
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

In doing more research and talking to others, I'm finding that the dose for me is 2mg Methyfolate and this dosing info says it all from Dr. Rawlins and Dr. Lynch:

http://methyl-life.com/dosage/

I'm not depressed but I can feel a lowness, and the 2mg I feel is bringing me up.


The notmilk site has a lot of info, I'll read more of it later. I gave up milk a long time ago.
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-14-2016), eva5667faliure (04-08-2016)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Deplin and OCD Anxiety Depression anxiousguy Vitamins, Nutrients, Herbs and Supplements 2 12-16-2014 03:32 PM


All times are GMT -5. The time now is 09:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.