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Old 05-08-2016, 02:49 PM #51
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Here is another good link on the Mutation issue.

http://www.freshideamama.com/mthfr-s...getting-tested

I continue with my dosing of methylfolate et al and all in all, I'm OK...hoping the bodywork will help me more.
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Old 05-08-2016, 07:09 PM #52
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One statement in the link concerns me; "98% of autistic children have the 677 and 1298 anomaly [of the MTHFR gene]"

A PubMed search ("autism" and "MTHFR") retrieves 31 papers. From them there is limited evidence that MTHFR mutations are possible risk factors for autism, at least in some populations, but the quote is not supported by the data.
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Old 05-09-2016, 06:09 AM #53
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Originally Posted by kiwi33 View Post
One statement in the link concerns me; "98% of autistic children have the 677 and 1298 anomaly [of the MTHFR gene]"

A PubMed search ("autism" and "MTHFR") retrieves 31 papers. From them there is limited evidence that MTHFR mutations are possible risk factors for autism, at least in some populations, but the quote is not supported by the data.
I believe it to be connected as my eldest child has occipital lobe epilepsy and even in this case is a connection
I began doing research on the mutation and some of the ailments my children have and the mutation you would be surprised my youngest was born with a two tubes on the right that connects the kidney to the bladder both weren't in working order and on the left side only fourty percent functioning this child had half of the right kidney removed and tubes fixed to 100% capacity
This at a year old
She spiked a fever off the charts with a infection at three and a half months
I had my share of hospitals with my children
I believe I gave them that problem
I whole heartily believe there is a connection
"Neural Tube Defects"
What are the chances
Huge
Me
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Old 05-09-2016, 07:00 AM #54
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Eva, I am sorry to read about your children.

There is evidence that MTHFR mutations are risk factors for epilepsy and neural tube defects.

However, "I believe I gave them that problem" - please don't blame yourself for this - it is totally not your fault.

From all that you have shared here, I am sure that you are a loving and supportive parent - that is all that matters.

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Old 05-10-2016, 06:25 AM #55
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Default Your response warms me

Quote:
Originally Posted by kiwi33 View Post
Eva, I am sorry to read about your children.

There is evidence that MTHFR mutations are risk factors for epilepsy and neural tube defects.

However, "I believe I gave them that problem" - please don't blame yourself for this - it is totally not your fault.

From all that you have shared here, I am sure that you are a loving and supportive parent - that is all that matters.

You are absolutely right
As my thyroglossal duct cyst is and can only be acquired by this particular research
I was floored when I read this
And reminded my doctors could have had it removed when I had my ACDF surgery
My constant wanting to know
has been my passion
My surgeon had a huge problem with my constant asking questions
Why wouldn't I
Oh my goodness
It's my body
Not a practice run
But that part of my life is still with me every single day I wake up
he will always be a sore spot forever
Letting go is my job
Still working on it
Have much going on internally
Much to let go of
Working on it I am

My grandchild mother in the hospital
Another breakdown
In the physiatrics unit
This is what I'm talking about
My family is very ill
This child of mine is the one who tested positive when tested for the MTHFR mutation
She told this to the hospital doctors
They have no clue what she is talking about
She has read all the information I have given her
She just needs to start taking the missing vitamins that will
help her immediately
This drives me nuts
Nuts I tell you
NUTS
DID I SAY NUTS
I do not get it
How can it not be heard of
Why is it not spoken about
Why aren't the doctors looking for the
  • root
of it all
Not just to mask the problem
I am sick of it
Where is the real immediate care necessary
I am so sick and tired of the doctors not held responsible for getting people hooked on the opioids that is running like wild fire
and no getting ahead of it
My mother is going to a doctor who is promoting the
"Neuro stim system"
If there is any success with her I am jumping on the wagon
And want the meds out of my body
I do not want to die having to take pain meds for the rest of my life
It is torturous
I am grateful for the meds to keep the pain at bay and at a level five fit the most part
My body already has a internal clock
As I take my meds three times a day
And my body will act up just before I realize what time it is
And if I ever
EVER
ABUSED MY MEDS
WILL BE THE DAY I REMOVE THEM FROM MY LIFE
AND PICK UP A DRINK
that is how vigilant I am with my meds
And they are locked up
There is so much I have to say on this subject
For another time
Weather started out sunny
Clouds will be rolling in
We had a month of wet horrible dampness
the heat was put back on
The elderly in the building are hurting
Not to mention the babies
Who are just getting a start in life
Oh Heavenly Father
Help us
Help me find the happiness I deserve
You only you know what I need
And I await your blessings and gifts
I deserve
In Jesus I trust
In God I believe
Me
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Old 05-11-2016, 10:25 AM #56
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Default My sister 46 tested...

Positive for the MTHFR MUTATION
ADDITIONALLY
She tested positive for the two variants
She will call later
It is just amazing
Amazing
Can anyone see and understand the magnitude
This sister of mine has had stomach problems since she was a baby this I remember as I took care of her
Amazed
Heavenly Father
Something this simple can destroy a recipient of this mutation
Amazed
My eldest
In denial
Blames God for her epileptic brain
When it was my genes that gave it to her
Astranged but she knows
And said her epileptoligest said no connection
HE IS "WRONG" "WRONG" "WRONG"
I am floored
Me
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Old 05-12-2016, 01:19 PM #57
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Amazing about your sister. Eva, I forget how you Found Out about this mutation issue. I have a friend who has awful gastro issues and she is such a clean food person and takes hardly any drugs and just wondering about this mutation with her. I don't know her early life history with stomach but I'll mention it to her. She's so tired of tests etc. and is getting too old to keep testing and testing. She takes DGL, probiotics and digestive enzymes and still has issues. Makes me wonder. C
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Old 05-12-2016, 10:41 PM #58
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Quote:
Originally Posted by caroline2 View Post
Amazing about your sister. Eva, I forget how you Found Out about this mutation issue. I have a friend who has awful gastro issues and she is such a clean food person and takes hardly any drugs and just wondering about this mutation with her. I don't know her early life history with stomach but I'll mention it to her. She's so tired of tests etc. and is getting too old to keep testing and testing. She takes DGL, probiotics and digestive enzymes and still has issues. Makes me wonder. C
I was tested by my oncologist
My hands and feet would suffer sharp pain
There would be a vein that would swell and swell
and the surrounding veins begin to fill like out of a horror
flick funky looking
The sharp pain increasing as I know it will stop once it bursts
and then a huge black and blue
I was being tested for my couagulation
Worried about clots
I am just doing what I should
a cat-scan and x-ray to rule out worse case scenario
My blood work went through A to Z
This was one of them
And the doctor just passed it up
I was floored when finding this out
You feel well
And stay well
And best to your friend
Me
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Old 05-13-2016, 12:22 PM #59
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Quote:
Originally Posted by caroline2 View Post
Here is another good link on the Mutation issue.

http://www.freshideamama.com/mthfr-s...getting-tested

I continue with my dosing of methylfolate et al and all in all, I'm OK...hoping the bodywork will help me more.
watching the videos
my breast cancer
a direct result of my mutation
my cancer estrogen driven
part three of four explains hormones
so many things that is wrong with me
my thyroglossal duct active
a direct result of the mutation
infact the only way one acquires it
my son bi-polar
my daughter occipital lobe epilepsy
my other two daughters
one kidney surgery
the other granddaughters mother tested positive
all of my children affected
my youngest sister tested positive

but the breast cancer
i wasn't surprised
just amazing
floored
just floored
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Old 06-26-2016, 08:34 AM #60
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Quote:
Originally Posted by caroline2 View Post
Amazing about your sister. Eva, I forget how you Found Out about this mutation issue. I have a friend who has awful gastro issues and she is such a clean food person and takes hardly any drugs and just wondering about this mutation with her. I don't know her early life history with stomach but I'll mention it to her. She's so tired of tests etc. and is getting too old to keep testing and testing. She takes DGL, probiotics and digestive enzymes and still has issues. Makes me wonder. C
Has your friend been tested
How is she doing
My eighteen year old doing much better
Four mg to start
And she felt a difference in three days
Three days feeling better

Still amazed that more than 50% of the population
Has this problem
And the idea that persons are walking around
under this umbrella of numerous ailments unexplained
How many persons with a thyroglossal duct cyst a direct result
of acquiring it only by having the MTHFR MUTATION
It is not recognized as a problem
In fact
It is the host
HOST
answers to the unexplained ailments connects to the mutation
Hope you are doing well enjoying the summer
Take care
Love
Me
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