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05-08-2016, 02:49 PM | #51 | ||
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Here is another good link on the Mutation issue.
http://www.freshideamama.com/mthfr-s...getting-tested I continue with my dosing of methylfolate et al and all in all, I'm OK...hoping the bodywork will help me more. |
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (05-09-2016) |
05-08-2016, 07:09 PM | #52 | |||
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Grand Magnate
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One statement in the link concerns me; "98% of autistic children have the 677 and 1298 anomaly [of the MTHFR gene]"
A PubMed search ("autism" and "MTHFR") retrieves 31 papers. From them there is limited evidence that MTHFR mutations are possible risk factors for autism, at least in some populations, but the quote is not supported by the data.
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (05-09-2016) |
05-09-2016, 06:09 AM | #53 | |||
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Grand Magnate
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Quote:
I began doing research on the mutation and some of the ailments my children have and the mutation you would be surprised my youngest was born with a two tubes on the right that connects the kidney to the bladder both weren't in working order and on the left side only fourty percent functioning this child had half of the right kidney removed and tubes fixed to 100% capacity This at a year old She spiked a fever off the charts with a infection at three and a half months I had my share of hospitals with my children I believe I gave them that problem I whole heartily believe there is a connection "Neural Tube Defects" What are the chances Huge Me
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someone who cares eva Last edited by eva5667faliure; 05-10-2016 at 05:40 AM. Reason: Fixing addition |
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05-09-2016, 07:00 AM | #54 | |||
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Grand Magnate
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Eva, I am sorry to read about your children.
There is evidence that MTHFR mutations are risk factors for epilepsy and neural tube defects. However, "I believe I gave them that problem" - please don't blame yourself for this - it is totally not your fault. From all that you have shared here, I am sure that you are a loving and supportive parent - that is all that matters.
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (05-09-2016) |
05-10-2016, 06:25 AM | #55 | |||
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Grand Magnate
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Quote:
As my thyroglossal duct cyst is and can only be acquired by this particular research I was floored when I read this And reminded my doctors could have had it removed when I had my ACDF surgery My constant wanting to know has been my passion My surgeon had a huge problem with my constant asking questions Why wouldn't I Oh my goodness It's my body Not a practice run But that part of my life is still with me every single day I wake up he will always be a sore spot forever Letting go is my job Still working on it Have much going on internally Much to let go of Working on it I am My grandchild mother in the hospital Another breakdown In the physiatrics unit This is what I'm talking about My family is very ill This child of mine is the one who tested positive when tested for the MTHFR mutation She told this to the hospital doctors They have no clue what she is talking about She has read all the information I have given her She just needs to start taking the missing vitamins that will help her immediately This drives me nuts Nuts I tell you NUTS DID I SAY NUTS I do not get it How can it not be heard of Why is it not spoken about Why aren't the doctors looking for the
Not just to mask the problem I am sick of it Where is the real immediate care necessary I am so sick and tired of the doctors not held responsible for getting people hooked on the opioids that is running like wild fire and no getting ahead of it My mother is going to a doctor who is promoting the "Neuro stim system" If there is any success with her I am jumping on the wagon And want the meds out of my body I do not want to die having to take pain meds for the rest of my life It is torturous I am grateful for the meds to keep the pain at bay and at a level five fit the most part My body already has a internal clock As I take my meds three times a day And my body will act up just before I realize what time it is And if I ever EVER ABUSED MY MEDS WILL BE THE DAY I REMOVE THEM FROM MY LIFE AND PICK UP A DRINK that is how vigilant I am with my meds And they are locked up There is so much I have to say on this subject For another time Weather started out sunny Clouds will be rolling in We had a month of wet horrible dampness the heat was put back on The elderly in the building are hurting Not to mention the babies Who are just getting a start in life Oh Heavenly Father Help us Help me find the happiness I deserve You only you know what I need And I await your blessings and gifts I deserve In Jesus I trust In God I believe Me
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someone who cares eva |
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"Thanks for this!" says: | DejaVu (06-14-2016) |
05-11-2016, 10:25 AM | #56 | |||
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Grand Magnate
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Positive for the MTHFR MUTATION
ADDITIONALLY She tested positive for the two variants She will call later It is just amazing Amazing Can anyone see and understand the magnitude This sister of mine has had stomach problems since she was a baby this I remember as I took care of her Amazed Heavenly Father Something this simple can destroy a recipient of this mutation Amazed My eldest In denial Blames God for her epileptic brain When it was my genes that gave it to her Astranged but she knows And said her epileptoligest said no connection HE IS "WRONG" "WRONG" "WRONG" I am floored Me
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someone who cares eva |
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"Thanks for this!" says: | DejaVu (06-14-2016) |
05-12-2016, 01:19 PM | #57 | ||
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Amazing about your sister. Eva, I forget how you Found Out about this mutation issue. I have a friend who has awful gastro issues and she is such a clean food person and takes hardly any drugs and just wondering about this mutation with her. I don't know her early life history with stomach but I'll mention it to her. She's so tired of tests etc. and is getting too old to keep testing and testing. She takes DGL, probiotics and digestive enzymes and still has issues. Makes me wonder. C
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"Thanks for this!" says: | DejaVu (06-14-2016), eva5667faliure (05-12-2016) |
05-12-2016, 10:41 PM | #58 | |||
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Grand Magnate
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Quote:
My hands and feet would suffer sharp pain There would be a vein that would swell and swell and the surrounding veins begin to fill like out of a horror flick funky looking The sharp pain increasing as I know it will stop once it bursts and then a huge black and blue I was being tested for my couagulation Worried about clots I am just doing what I should a cat-scan and x-ray to rule out worse case scenario My blood work went through A to Z This was one of them And the doctor just passed it up I was floored when finding this out You feel well And stay well And best to your friend Me
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someone who cares eva |
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"Thanks for this!" says: | DejaVu (06-14-2016) |
05-13-2016, 12:22 PM | #59 | |||
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Grand Magnate
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Quote:
my breast cancer a direct result of my mutation my cancer estrogen driven part three of four explains hormones so many things that is wrong with me my thyroglossal duct active a direct result of the mutation infact the only way one acquires it my son bi-polar my daughter occipital lobe epilepsy my other two daughters one kidney surgery the other granddaughters mother tested positive all of my children affected my youngest sister tested positive but the breast cancer i wasn't surprised just amazing floored just floored
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someone who cares eva |
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"Thanks for this!" says: | DejaVu (06-14-2016) |
06-26-2016, 08:34 AM | #60 | |||
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Grand Magnate
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Quote:
How is she doing My eighteen year old doing much better Four mg to start And she felt a difference in three days Three days feeling better Still amazed that more than 50% of the population Has this problem And the idea that persons are walking around under this umbrella of numerous ailments unexplained How many persons with a thyroglossal duct cyst a direct result of acquiring it only by having the MTHFR MUTATION It is not recognized as a problem In fact It is the host HOST answers to the unexplained ailments connects to the mutation Hope you are doing well enjoying the summer Take care Love Me
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