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Old 03-08-2016, 06:29 PM #1
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My friend who is challenged with CFS/ME is on phoenix rising group and she says a whole section is devoted to the MFolate issue and a large number of people have the mutation. And she goes on to say, most doctors don't know about this MTHFR mutation, and hand out anti depressants... maddening..
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Old 03-08-2016, 07:28 PM #2
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Quote:
Originally Posted by caroline2 View Post
My friend who is challenged with CFS/ME is on phoenix rising group and she says a whole section is devoted to the MFolate issue and a large number of people have the mutation. And she goes on to say, most doctors don't know about this MTHFR mutation, and hand out anti depressants... maddening..
this was the issue with myself
my shrink
would just give me antidepressant after another
now i understand trial and error
and no success
is because it was not being processed
hindered by the mutation
awesome to know it is out there
now my shrink is sending me samples
think his consciousness set in
and seen how i was failed by him
he said he would call in a month
to see how i doing after a month on it
told him that would be fine
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Old 03-10-2016, 06:18 AM #3
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Default Some hope

Dear friends

I cannot begin to tell all the difference
The significance
The positive improvements that are occurring
While the Xanax
Still kicking my butt
This only a .05mg decrease in morning dose
Kicking it I tell you
And it is the Xanax for certain
It helps when one takes a look at their body
And LISTEN TO IT
greatful I am to have pushed through
And did my homework
This only my two cents
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Old 03-13-2016, 05:05 PM #4
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Default feeling...

awesome
awesome
awesome
will keep posting
if i'm allowed
i accused of being rude
because i write in caps
i'm very old school
had no clue it meant i was shouting

I WILL SHOUT OUT THIS
I AM FEELING GREAT
SLEEPING GREAT
AND HAD A MUCH LESS TRAUMATIC EXPERIENCE GOING TO THE BATHROOM

I AM FEELING AWESOME

do not give up ever
keep searching for the source of the problem
while doctors turn the other way
my experience
me
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Old 03-13-2016, 05:28 PM #5
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Eva, it is good to read that you are feeling awesome .
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Old 03-14-2016, 06:56 AM #6
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Default Amazed, greatful, hopeful

And this my doctors would just
Sweep under the rug
It is absolutely been a uphill battle
This a good thing
No pain on a mental level
Where my mind just is stuck on all the negitive

Today again no doom visited me
Just the fact I can wake and "not be visited"
by this sadness that manifested physically
To myself I am true
I am feeling so much better
since taking some things into my own hands
My doctors swept it under the rug
Not a concern for helping me find the cause of my hands and feet
they cannot deny the pictures
The best description I can give as it is invisible to anyone else
The inside of my hands
Each of my didgets are painful independently
The skin tingles with fire
If I put lay my hand down it just grows
This not the same as the problem that has my doctors scatching their heads
The underside on my feet the same only they feel the heat
Don't know what it's like to walk on hot coals
I wonder
This has been the way it's been for many years now
Starting in 1999-2000 subtle changes
to where things are now

This again independent from the inflammation of vein that would eventually pop burst deflate and the to follow a huge bruise

They have not a clue
Nobody on my train says anything
This is heartbreaking
Just heartbreaking
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Old 03-14-2016, 12:22 PM #7
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Eva, conventional MD's just don't know how to dig deep and go after what our body needs...we are depleting of so much daily and they just don't know. And truth be known, they really don't care. I believe this more and more the older I get and know of my own health. Happy you are feeling so much better...it can continue.
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