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Old 02-22-2016, 12:23 PM   #1
eva5667faliure
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Default Deplin

this is the drug i will be going on
i have much hope
i am thrilled to learn what i just have
love
me
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Old 02-22-2016, 04:06 PM   #2
caroline2
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Eva, I take otc methylfolate and have been for several years.

http://www.foxnews.com/health/2013/0...epression.html

Good luck with it. Most days I take 800mcg of methylfolate and it's in my homocysteine formula I take to lower homocysteine levels. It's the best form of folic acid.
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Old 02-22-2016, 07:41 PM   #3
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Eva, just talking to my friend who put me on to the Methylfolate issue a couple yrs ago, she knows a lot about this folate and says make sure your B12 is sufficient. The extra folate intake can mask B12.
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Most important supplement: grape seed extract
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Old 02-22-2016, 08:51 PM   #4
eva5667faliure
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Quote:
Originally Posted by caroline2 View Post
Eva, just talking to my friend who put me on to the Methylfolate issue a couple yrs ago, she knows a lot about this folate and says make sure your B12 is sufficient. The extra folate intake can mask B12.
thank you
thank you
thank you

just learned i have a MTHFR MUTATION
a direct cause of many aliments i suffer
thyroglossal duct cyst for one
depression diverticulitis
and on
it could be a big changer
thank you
love
me
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Old 02-23-2016, 06:04 AM   #5
kiwi33
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Eva, it is good to read that you have learned that you have a MTHFR mutation - those mutations can have many adverse effects

As far as I know their effects can be overcome by taking appropriate supplements,

I think that mrsD is the resident NeuroTalk expert on this - maybe check out her posts or send her a PM - I am sure that she will be able to give you good advice about how to use supplements.

All the best.
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Old 02-24-2016, 09:12 PM   #6
eva5667faliure
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Originally Posted by kiwi33 View Post
Eva, it is good to read that you have learned that you have a MTHFR mutation - those mutations can have many adverse effects

As far as I know their effects can be overcome by taking appropriate supplements,

I think that mrsD is the resident NeuroTalk expert on this - maybe check out her posts or send her a PM - I am sure that she will be able to give you good advice about how to use supplements.

All the best.
Thank you dear friend
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Old 03-03-2016, 06:29 AM   #7
eva5667faliure
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Default DEPLIN has been shipped

I have had a heck of a roller coaster ride
Getting this very important vitamin
It was explained to me by the company nurse
I do not have to take any additional supplements
That it SHOULD be all I need to take

I was wondering
It is to cover so many areas
I am anxious to start it
Not much feedback
Will look to MrsD for any advise
I still yet to get it into my system
Will keep posting
Should anyone else be recommended to try DEPLIN
Me
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Old 03-03-2016, 06:57 AM   #8
kiwi33
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Eva, Deplin is a trade-name for L-methylfolate.

What that means is that it will increase the levels of L-methylfolate in your body, which are probably low because of your MTHFR mutation.

I am sure that mrsD will be able to offer you more detailed advice than I can but in the meantime this general information might help you; http://www.drugs.com/cdi/deplin.html.

As far as I can see Deplin has an excellent reputation and I really hope that it works for you.
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Old 03-03-2016, 08:44 AM   #9
eva5667faliure
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Default Am I misunderstood

Dear informative friend

I have no doctor on my very important train that I'm driving
I yet to find a fairly decent general practitioner to get on board and take me seriously
As we speak I will be seeing my OBGYN for my annual check up
never in my history knowing this body well since a young girl
and have been on spot about everything
This be the truth
I just fired my shrink having been asked by the insurance company for my profile
If I'm paying for my bloody insurance
As it is deducted from my ssd income
And in addition copayment and coinsurance
deductible I am paying for services I EXPECT TO GET
how can that happen
WHEN NONE OF MY VERY IMPORTANT DOCTORS ARE NOT PAYING ATTENTION AND IM TIRED OF EDUCATING THEM

what I am saying
Not my shrink who dispenses meds (7 yrs)
Not my pain specialist (8yrs)
Maybe my oncologist asked me to bring in the information on the subject (on board the last four years after double mastectomy anniversary 1-9-12)
My OBGYN hasn't a clue until I see him today annual pap I missed last years as he was busy delivering babies
the office called to cancel my appointment
that I would get a call for rescheduling
NEVER HAPPENED
this year I must go I except for last year never missed my annual
Here is what I mean
Never say never
I am going to pray he sees the connection
Lets see who else
I have had check ups on my skin dermatologist
I had my colonoscopy (clear) that in itself is awesome news
as this mutation and I positive of one of the two variants
with a high homozygous
Foot dr, dentist not as often with my neck shoulders and back
yes the pain is that great
As a matter of fact
I live on the 19th floor
Getting on the elevator is excruciating
Nevertheless
This is how I take care of me and my children
I like to practice PREVENTATIVE HEALTH CARE
however I am finding out the doctors really aren't paying attention
For example
My ex ENT I needed to see for clearance for second surgery
was told upon looking at me not my report or the reason I was sent there expressed he did not believe I had a thyroglossal duct cyst

Now I have reached
Being so long winded for oblivious reasons
Oh just remembered
My reconstructive surgery (BOTCHED LEFT IMPLANT HAS WHAT IS CALLED A "DOUBLE BUBBLE" was lied to for two years until my oncologist requested me to go back to him
Turns out they are racquetball partners
Go figure
What are the chances with my luck

So
Not one doctor seen the red flag
And that is
I have tested positive for the MTHFR MUTATION
and now the connection that the ONLY WAY one acquires a cyst
such as mine
and the "neural tube defects" it will cause
as in my case all is true because of the findings of this very
sick degenerative inflamed body
Not any of the above doctors get
Nor do they seem to care

SO

I feel lost and alone

Why would I be not be told
As I asked the right questions because of my homework
the conflict

If it is the SAME meaning DEPLIN just another name for
L-methylofolate am I being lied to

I have no understanding and the array of vitamins I was asking of
Still no clear understanding is and could be quite expensive
I am on a very tight fixed income
It S.U.C.K.S

I not only want to limit the amount of things I put in my mouth
Is enough already

So the thought I am being misinformed
And that taking 15mg DEPLIN in tablet form AGAIN SHOULD (this is gray for me I admit)
Yet this is what was explained to me
ONE tablet

I am so confused at this point
I don't know if I'm coming or going

Hope I'm better understood
And look for any support here on NT

THANKS
Me
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Old 03-03-2016, 09:45 AM   #10
mrsD
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In short.... The MTHFR mutation affects B12 as well as folate.

If you are not methylating B12 then you do not have active working B12. Taking high dose (and you are taking mega high dose) methylfolate and NO B12 to balance it, will lead to neurological damage.

This is why Deplin is an RX item to prevent people from misusing it.

https://umm.edu/health/medical/altme...-b12-cobalamin

do you know your B12 level? Many doctors still do not know that 400pg/ml is the new acceptable low for B12.

Did you check the links I gave you? Doing your own supplementing of Bcomplex, methylfolate and methylB12
can cost only about $40 for 3 months supply...and you are paying more than that for one month?

I would suggest you supplement AT LEAST the methylB12 yourself. It must be taken on an empty stomach for best absorption. It will only cost you pennies a day.
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