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Old 03-12-2024, 08:18 PM #1
Ruben562 Ruben562 is offline
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Default What do I do now?

I was on attacked and beaten up into a coma and was given anti psychotic medication for 17 years. The pills never worked Latuda abilify geodon respridol haloperidol serequel. So I finally got an injection once a month of haloperidol to get rid of head pain and chest pain. It still didn’t work ,so I had Botox injections 2 times in 6 months. And it worked but I still feel sad and dry with fragile body it feels weird at times. How do I get completely pain free? What injection is left to give me now? I don’t have time to continue to be on disability I want to get better.
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Old 03-13-2024, 10:48 AM #2
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Hi, Ruben562,

You've been dropping in here occasionally for quite a number of years, and you've obviously been struggling with considerable pain.

You've tried so many drugs that I hope that you have a competent doctor overseeing your prescriptions and making sure that the dosage is appropriate--and that they aren't interacting with one another in some harmful way.

Check the credentials of any doctor you're seeing and try to latch on to doctors who are genuinely helpful and knowledgeable. That isn't always easy to do but there are capable doctors out there.
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Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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Old 03-13-2024, 02:24 PM #3
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Isn’t there like one more injection they need to do to make me better?
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Old 03-13-2024, 08:45 PM #4
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I hope something that will help can be found.

Since so many drugs have already been tried, I think I'd be tempted to experiment with other possible solutions--maybe physical therapy, maybe a new rest routine, maybe even diet changes or different ways of spending my time during the day.

Are you getting adequate sleep, for instance? Or does the pain prevent that?
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Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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Old 03-13-2024, 10:13 PM #5
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I sleep good every day and rest all day. I got a bad memory because of this and I’m slow and stiff and weak and fatigue. I feel fragile but I’m not in pain. Isn’t there a injection for this to finally get rid of the pain of 17 years once and for all?
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Old 03-14-2024, 01:34 AM #6
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I'm confused. When you say:

Quote:
I feel fragile but I’m not in pain. Isn’t there a injection for this to finally get rid of the pain of 17 years once and for all?
I'm not clear about whether you have pain or you don't.

Maybe you mean that you have pain but only during your waking hours.

I'm sorry I don't know of a medicine that will help. People here at NeuroTalk aren't medical professionals. I'm afraid you'll need to turn to your doctor(s) because they're the ones who know what to prescribe.
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Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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Old 03-14-2024, 03:30 PM #7
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Quote:
Originally Posted by agate View Post
I'm confused. When you say:



I'm not clear about whether you have pain or you don't.

Maybe you mean that you have pain but only during your waking hours.

I'm sorry I don't know of a medicine that will help. People here at NeuroTalk aren't medical professionals. I'm afraid you'll need to turn to your doctor(s) because they're the ones who know what to prescribe.
I’m not in pain anymore thanks to the Botox injections and the haloperidol injection but I still feel stiff and have a bad memory and light headed and fragile. I don’t feel 100% still and I haven’t gotten what the next step to recovery is I have been resting since 2006.
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Old 03-14-2024, 07:42 PM #8
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Thanks for explaining. Sometimes problems like fatigue and light-headedness have a way of going away, given enough time, but unfortunately the time seems entirely too long.

Keep working at it, and you'll probably hit on some little tweaks in your daily life that will make a difference in the way you feel.

But I'd hesitate to add any new meds without carefully looking into all of the information about them that you can get your hands on.
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Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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Old 04-04-2024, 05:00 PM #9
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I’m seeing a neurologist again in a couple of months. I don’t know if I’m getting Botox injections or if there is another way of curing this. Does anyone know what the next step is with the neurologist? My symptoms are fatigue memory loss stiffness dizziness and a feeling of dehydration but it’s not dehydration it makes me feel fragile and weak.
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Old 04-04-2024, 06:42 PM #10
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Hi, Ruben562,

Any doctor should have done some lab work on you if you're having the symptoms you mention. If nothing unusual shows up on the lab tests, then the usual procedure is to move on to other types of tests.

It's important not to be uneasy when you're at the doctor's appointment. If you're too worried, you might be more confused or forgetful than usual, and you want to be alert so as to understand exactly what the doctor says.

Often doctors' offices are giving out an "after-visit summary" for you to take with you, and it should spell out what your test results are and what the doctor has gone over with you.

It sounds as if you're a bit uneasy about seeing the neurologist. I hope you can try to stay calm. Some doctors are huffy and even rude but they can be replaced if you feel that a doctor isn't dealing with your problems adequately. It's you who are hiring that doctor, and if you don't like the treatment you're getting, you can move on.
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Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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