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Old 07-15-2008, 09:16 PM #1
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Default Any experience getting off Opiates?

I coordinated with my Pain Med Dr. to get off Avinza (morphine) today. He prescribed Librium and Hytrin. I need to get off it due to other medical problems that have become life threatening.

Any experience out there? (watching CSI Miami does not count

I know my reactions to withdrawals because I forgot to take my Avinza 3 times. Like the flu. A really, really bad case. I hit WD at about 30 - 34 hours.

I took Librium in 1970, but don't remember any problems. Hytrin? Dunno.

Dr. said to take my last Avinza capsule at 8am Monday, then take the Librium and Hytrin 24 hours later and 8 hours thereafter.

I read that withdrawal symptoms only last a few days to a week. After reading about Librium I was thinking I might prefer to just get it over with. Take Valium or something.

Suggestions appreciated....thanks... (Oh, I haven't set a date to do it yet, no hurry, once I am ready, I planned on taking my last pill Sunday morning, then I have 5 working days to be sick or get different meds or talk to the doctor again, etc.)
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Old 07-16-2008, 12:42 AM #2
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I think a couple RSDers had to come off meds for various reasons , I recall they told of severe flu type feelings. For 2 weeks maybe?? not sure on that part.
You can make a post on the RSD forum and ask for more info-
here- http://neurotalk.psychcentral.com/forum21.html

Might be best to stick with the plan that the pain dr suggested.
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Old 07-16-2008, 11:17 AM #3
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Jo55 - thank you.

I have no choice right now, I will certainly try the doctor's plan. I am really blessed that I do not seem to have an addiction to the Avinza. I was at 180mg a day at one time, then dropped to 90 overnight, then took a few months to get to 60, then a few months to get to 30mg and so on. My wife is worried about seizures, but I really don't like this stuff. I used it strictly to fight pain. I have not had any problems so far, but the last 30mg are scary. I remember the withdrawal feelings (as I sit here) and do not look forward to it.

I sleep on a Ventilator, with oxygen, so ........ I hope the meds help.

I was not sure I posted this in the right forum, thank you for the suggestion. I will search over there, then I might post my questions again. Or, if you want, you are welcome to move this thread over there. Your choice ... and thanks again....
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Old 07-16-2008, 11:30 AM #4
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I copied your first post over to the RSD forum - so you might get replies here and on that one too.
your copied post on RSD forum -
http://neurotalk.psychcentral.com/sh...ad.php?t=50091
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Old 07-16-2008, 02:10 PM #5
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Jo55,
Thanks again. I searched for people getting off morphine and read through several threads, will try again later.

While I plan on following the doctor's plan, I ALWAYS like to have a Plan B. My complicated
medical problems have a way of biting me in the most inconvenient moments.

An example is Vocal Cord Dysfunction (VCD). My GERD can trigger VCD and I pass out (as I have done a few times before) --- CCHS kicks in and I may not recover. Complicated. I can't predict it, all I can do is try to be prepared. Thanks again.......
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Old 07-23-2008, 07:32 PM #6
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No morphine since last Saturday. Detox is as hard as advertised. I have only slept a few hours.

Restless Legs Syndrome (RLS) is my main problem right now. NOTHING WORKED. NOTHING.

This morning, about 4am I took Oxycodone. I did not want to take it, but I was at my wits end. I had punched my legs with my fists, trying to get some form of relief, even though my conscious mind (somewhere) knew better. I walked fast, I jumped up and down...then when I sat down, the pain returned. 15mg of Oxycodone and all the pain left me.

I whipped morphine. But I never anticipated RLS to such a severe degree. NOTHING, and I mean NOTHING else helped. A total of 2400mg of Neurontin was like candy. Requip x 2 of the 1mg pills was nothing. Valium was nothing...15mg of it. I knew....for hours....that oxycodone would stop it in its tracks. I held out. But little sleep in 2+ days won out. I slept several hours and am still woozy at 5:25pm on Wednesday. I think it was the other drugs, combined with the Oxycodone. I will take oxycodone tonight, hoping for my first real nights sleep.

I don't know how long my RLS will last, but I have access to another prescription of oxycodone.

Am I REALLY getting off opiates if I have to have Oxycodone daily (15mg) so I can sleep?
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Old 07-25-2008, 06:32 AM #7
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Day 5, I am so tired. RLS is killing me. No sleep, just woen out

RLS is th e worst.....anyone know of a Tins unit strong enough to reach the thighs?
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Old 07-26-2008, 12:31 AM #8
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Friday night... we discovered Librium brings on RLS. I skipped it a couple of days, but cannot remember why I did it. I took it Thursday evening and had bad RLS Thursday night.

So here I sit debating whether to take an Oxycodone before I go to bed. BUT how can I get off opiates if I keep using opiates because of RLS???? Pretty frustrating.

My sleep is totally whacked. I keep falling asleep during the evening. My whole body aches and my RLS is worse than I thought possible. I am taking 2mg of ReQuip and 1200mg of Neurontin.

The entire experience has amazed me as to how tired I get. Exhausted. I wish we had other feedback to compare to mine.
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Old 08-09-2008, 07:28 AM #9
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Default I did it

after a back fx a long time ago, and fibro type pain with lots of spastic stuff, the pain clinic transitioned me onto MS Contin (morphine sulfate continual action) I was taking about 90mgs three times a day. it was blessed relief for a looooong time.

Finding out I had MS and learning about spastic stuff, vs pain from old fx stuff I chose to stop taking the MS contin. I cut back on ONE pill at a time. I had the pharmacy adjust my script to lower dose pills so I could break up the dose. so, instead of 3 pills a day, it was 9. I cut out the afternoon ones first. one at a time. This week was 2 in the afternoon, next week was 1 in the afternoon and then 0 in the afternoon. I cut back ONE pill at night for one week, and one pill in AM for one week and rocked tilled I got to ONE pill in AM, and ONE pill in PM. I was exhausted and chose to rest at that level for a bit.

My pain load increased, as I had been on that med for years. My brain was upset that it didnt have the drug. I had diarrhea, and leg cramps. stomach cramps as well, but used a heating pad, and spastic meds to help. After getting my body to rest at that level for 3 full months, I started on my last two. I would take NO pill in the am on monday, and then for the rest of the week, take them on schedule. Next week was none on monday, and none on friday. kept that schedule for one week. then none on MWF. kept that for one week. I didnt touch the night pills because they brought such blessed relief. I kept that routine until I had no pills to take in the AM. only my PM pill left.

Same deal. forgot it on Mon. took it the rest of the week. next week, forgot it on M and F and took the rest. then MWF and took the rest. i stayed there for 2 weeks, and then knocked out the MWFand sunday pill. stayed there for 2 weeks. I reached frustration with the whole thing, and simply laid them down. I dealt with the tummy ache, and leg cramps for a week or 10 days, and then it got better and better. NO siezures, and I have been MS free for awhile now. I have RETAUGHT myself about sleep.

I go to bed at a certain hour, no matter what great thing is on TV. I had to keep to a schedule to retrain my brain. I Tivo or tape whatever was interesting. I get up at the same time everyday. it really did help to have a routine.

It was hard work, but I felt since we had found the answer to my situation was spastic, and not pain from bone as originally thought, it was MY choice to stop.

Its been a few weeks since your post. I hope you are doing well.
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Old 08-22-2008, 06:32 AM #10
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Default Suboxone

http://www.suboxone.com/

This is a miracle drug--the only problem is, finding a doctor to prescribe it. If you live in a fairly large city--check out the pain management clinics--or even rehab centers--as often doctors there can prescribe it.

The good: instant relief from withdrawl symtoms, general feeling of normalcy (many people, including myself say "I haven't felt like this in years--it's my old healthy self again". When you stop taking the Suboxone, there is little to zero withdrawl.

The bad: you have to BE IN WITHDRAWL for at least 24 hours before you take it for the first time. That means no opiates in your system. That 24 hours can be rough--but 30 minutes after you take the first dose, the withdrawl vanishes.

If you have any other questions, don't hesitate to ask!
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