FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Medications & Treatments For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity. |
Reply |
|
Thread Tools | Display Modes |
04-13-2009, 02:30 PM | #1 | ||
|
|||
Junior Member
|
DX with MS in 1999 after 10 years of issues. Dx with Lyme in 2004.
From 1999 to 2008 I took Sinemet for my restless uncoordinated legs, between 2 - 8 tabs of 25/100 per day. Mostly around 4 tabs. As predicted by the prescribing neuro, it lost effectiveness after 9 years. I switched to Mirapex from Sinemet in March 2008. Started having more problems walking in July 2008. Finally weaned myself completely off Mirapex in January 2009 after reading Once Upon A Pill about the horrors of Sinemet and dopamine supplementation. Weaning took about 4-5 months. I now take Baclofen or Zanaflex for the legs. My legs are still very stiff, tired and uncoordinated. I realize my disease has advanced in the last 10 years, but I do expect to regain some leg functionality in the next year as my body learns to manufacture and process dopamine on its own again. From what I have read this can take over a year. But there is little info out there. Has anyone else on this board quit Sinemet and / or Mirapex, and does anyone have any idea as to the timeline I am looking at to reestablish a normal dopamine system? Apparently not too many non-Parkinson's people are "lucky" enough to get this rx, and fewer ever quit. Thanks! |
||
Reply With Quote |
04-13-2009, 04:36 PM | #2 | |||
|
||||
Wisest Elder Ever
|
You might try the Parkinson's board for info about Sinemet and Mirapex....many have changed meds there and discontinued them or changed the doses.
http://neurotalk.psychcentral.com/fo...sprune=-1&f=34 I don't know how many MSers have used these drugs, but you can ask there too. http://neurotalk.psychcentral.com/fo...sprune=-1&f=17
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Quitting smoking | The Stumble Inn | |||
EMEA...EMEA Recommends Warnings / Ergot-derived Dopamine Agonists, Europed Dopamine | Parkinson's Disease | |||
question about Sinemet and Mirapex | New Member Introductions | |||
Dopamine transporter relation to dopamine turnover in Parkinson's disease | Parkinson's Disease | |||
Quitting Smoking and TOS | Thoracic Outlet Syndrome |