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Old 10-25-2012, 04:48 PM #11
John Super Doe John Super Doe is offline
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Default Im not alone!!!

Well It has been about 4 months of painful discomfort from the circumsition scar to the tip of my penis (only when rubbing it against my clothes) and I have seen 3 urologist, 1 dermatologist, and every single one of them diagnose me as "crazy". Some days the pain is almost unbearable and others just bad. They did some blood test to find herpes and I came back positive from type I and II. and although I have had periodic cold sores in my mouth since I was a kid, I have never had any blister or visible sign of herpes II in my genitals, not even now. One thing I was doing before this thing from hell came on me was eating around 30 almonds a day. I know now that almonds are rich in Arginine and arginine fuels Herpes Virus. Has anyone of you guys can recognize a trigger for your condition or found anything so far that helps?

Thank you!







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Originally Posted by Dude187 View Post
I was just searching the net once again for this issue, just hoping to find someone who shard this problem with me. I was pretty sure there had to be other people out there with this issue. I didn't know what to call it. I wondered if it was what people were talking about when I heard jokes about "chafing." But I saw pictures and that's not it. I know this post is very old now and no one else is responding but I just HAD to reply with the fact that I have this same issue! And I haven't even been able to articulate what it is before. I'd just tell the doctors it was pain on my penis from rubbing up against my underwear and they'd think I was crazy! No solutions were ever even suggested. I don't think mine has been as bad as some of what you guys have described here simply because I'd just avoid walking anywhere when it was too bad or I learned a highly temporary 'trick." I would sag my pants like those --pardon my reference here-- African-American, male youth would often do (see Lil Wayne for example) with their boxers showing. I wouldn't show my boxers but my paints would be down to the point where my penis wouldn't move so much and rub up against my boxers. This gave me a slight pit of relief while walking. It didn't help when I was running though. Sometimes, I just suffered through the pain! I also associated this issue with intense masturbation and even after sex when using a condom--although that was rarely the cause of the irritation. That only happened if the condom pinched my penis by the opening, which I hate! But I am now concerned that herpes could be related. A girls I have been having protected sex with for the last few years has been diagnosed with HSV but so far, my test results have come back negative, except for one time, it was inconclusive. I don't know why that was but I thought it might be cause my body is somehow fighting it off well enough that most tests are negative for me, even though I still might be a carrier or something??? I'm probably saying ridiculous things here. But these are my thoughts and I felt I should share. I hope we can find a way yo alleviate the pain altogether though. Hey, thank you so much for posting this and for all of the responses!
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Old 04-15-2013, 09:21 PM #12
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Default My Theory

Well Gentleman you can add me to this club that no one wants to be a member of.
This bizarre affliction began for me about two months ago. I initially thought it might be work related as I am a research Chemist and was doing some work with Isocyanates which are known sensitizers. The condition has persisted however, weather I work with these compounds or not and now I am extra cautious to avoid any contact while working with Isocyanates.
Thanks to your posts I have developed a new theory, I believe this may be an unusual manifestation of the Shingles virus. I am not overweight and no chance I have HSV.
I do know for certain that I had Chickenpox (Herpes Zoster virus) at the age of 5.
Given Hiriser32’s experience with the latency of symptoms over years this screams retrovirus to me. Also if you check the net you will find that Shingles in rare cases can affect the Female genitalia (Vaginal Shingles). So why not the male? Perhaps even rarer still.
Would be interesting to know if all of you also had the Chickenpox.
I was reluctant to go to the Doctor as I figured they wouldn’t have a clew and as is the case with many of you my symptoms come and go as well.
At this point for me this is an extreme annoyance but nothing I can’t live with.
However based on your posts if this continues at my next scheduled physical I am going to present my PCP physician with this data and ask for a prescription of Valtrex (valaciclovir) to see if my theory has any merit. If this gives me relief I would like to follow it up with a Zostavax shot (Shingles vaccine).
If any of you have tried any of these two treatments and found any relief please posts your results.
Good luck gentleman we may be case studies for something new here..
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Old 05-22-2013, 01:33 PM #13
Shingebis Shingebis is offline
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I've had this problem my whole life.When I was a kid my parents took me to my pediatrician many times looking for a way to help me and he always said the same thing "I've seen this before,there is nothing that can be done,hopefully he will outgrow it".By the time I grew up I realized that some sort of covering would help and went looking online to see if something existed.I found that products were made to help with this problem.One is called the Manhood,another is the Senslip.I decided they weren't for me and continued searching for a better solution something I didn't have to think about or remove/replace all the time.I found out about a procedure called foreskin restoration and decided to give it a try.It wasn't easy but after 2 years of restoring I had a covering that kept me comfortable 90% of the time.Every once in awhile just the tip of my penis will still rub on my clothing and cause some pain so I have decided to restore until this problem is permanently fixed.The sensitive circumcision scar area is also fully covered by the new skin.
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Old 06-08-2013, 08:29 AM #14
Magirose Magirose is offline
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hi John, just reading your post and sorry to but in to your men only group but I may be able to help you. I am wondering about your symptoms. I have a condition called Behcet's which has very similar symptoms to those you describe with the mouth ulcers and so on. It's just that normally there will be some blisters on the genital area. Though for me this happens so so rarely. Maybe once 2-3 years.....so if your symptoms are just beginning then it could develop yet. Also though, what I recognise, is the pain you are talking about. I get the same sort of pain around that area which is like a kind of neuralgia pain. Very uncomfortable. All kinds of things can result from Behcets. I am not sure if you have any other symptoms going on.
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Old 07-21-2013, 06:26 PM #15
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Default check for more advanced problems

I just want to mention the possibility of more advanced problems just in case, since you are having problems getting treated.
Hypersensitivity - hard to tell if it's just the skin (as in skin irritation) or the nerve underlying innervation of the penis.
If it's the nerve (and not just the very external layer of skin) then it may be pudendal nerve problems. This is the nerve that runs from the spine through the alcock's canal near your bottom, through to the exterior portions of your ****, testes, and penis to innervate them.
Problems along this nerve line can cause pain, numbness, or hypersensitivity along this nerve route.
Problems can include lower back problems (anywhere from L4 through S4) tugging on it, ligaments rubbing it the way, alcock canal getting smaller and rubbing it (scar tissue or by other means), piriformis muscle problems since it runs close to it, etc. It can even be from Femoroacetabular Impingement (FAI) or hip impingement syndrome. So if you have any other symptoms like these check them.
As a female, I have pudendal nerve entrapment problems from L5 S1 disc degeneration. So, yeah, anything along that route can upset it. Sometimes my clitoris (on you it is would be the same with your penis) would get hypersensitive in not so nice a way. I didn't even want to touch it or have anything like underwear rub it. On other places along the nerve line, I swear it felt like the skin was highly irritated, but the skin was actually fine. It was the nerve that was having problems. Figured out it was my spine pulling on it from above by being a bit out of place through an MRI.
So, if your symptoms progress to other things, too, thought you may want this info.
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Old 12-04-2013, 12:11 AM #16
54and70more 54and70more is offline
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Default Same thing

Probably about a year ago I began having the same symptoms, extreme sensitivity at the tip of my penis.
I liken it to how it would feel if you put your tongue on a frozen pump handle and pulled it off, and it tore the skin off. That's how sensitive it is, even though there's absolutely nothing visibly wrong with it.
It's absolutely maddening, and I've tried all kinds of ways to keep it from touching anything. I feel nothing unless it's rubbing on something, which is pretty much every time I walk.
I went to my regular doc and got tested for STD's, and it was negative. Went to a Urologist who found nothing conclusive but suggested prostate problems could cause pain in that area.
I am 54 and have had herpes I and II for a long time. I also had shingles about 10 years ago.
Remarkably, it kind of went away on its own after about 6 months, which was a HUGE relief -- but to my dismay it showed up again. This is beginning to look like it's going to be for the rest of my life -- especially after reading some of the posts here.
I am going to go on an aggressive course of Valtrex and see if that makes a difference. I will be back to tell you if that helped, or if it didn't.
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Old 12-14-2013, 10:42 PM #17
54and70more 54and70more is offline
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Quote:
Originally Posted by 54and70more View Post
Probably about a year ago I began having the same symptoms, extreme sensitivity at the tip of my penis.
I liken it to how it would feel if you put your tongue on a frozen pump handle and pulled it off, and it tore the skin off. That's how sensitive it is, even though there's absolutely nothing visibly wrong with it.
It's absolutely maddening, and I've tried all kinds of ways to keep it from touching anything. I feel nothing unless it's rubbing on something, which is pretty much every time I walk.
I went to my regular doc and got tested for STD's, and it was negative. Went to a Urologist who found nothing conclusive but suggested prostate problems could cause pain in that area.
I am 54 and have had herpes I and II for a long time. I also had shingles about 10 years ago.
Remarkably, it kind of went away on its own after about 6 months, which was a HUGE relief -- but to my dismay it showed up again. This is beginning to look like it's going to be for the rest of my life -- especially after reading some of the posts here.
I am going to go on an aggressive course of Valtrex and see if that makes a difference. I will be back to tell you if that helped, or if it didn't.

The aggressive course of Valtrex (generic name valocyclovir) didn't seem to have any effect on it at all.
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Old 12-15-2013, 07:28 AM #18
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You might look up the Low Oxalate diet. Oxalates in urine have been implicated in genital pain in females.

http://www.litholink.com/downloads/S...xalateDiet.pdf

It is worth a try IMO.

Here is a longer list:
http://www.ohf.org/docs/Oxalate2008.pdf
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Old 12-28-2013, 01:17 PM #19
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the pudendal forum pudendalhope is filled with this kind of issue...herpes can result in pudendal neuralgia, even if it is rare! good luck ! I have some pudendal pain as well
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Old 01-14-2014, 08:48 PM #20
54and70more 54and70more is offline
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Thumbs up Found something that's given me 98% relief

I went to an O'Reilly Auto Parts store and happened cross these Viking brand untra-soft microfiber spa towels, they are the most velvety soft material there exists i think. As they are the perfect size, I have taken to just putting one down the front of my pants and the pain is 98% gone.

It wouldn't let me post the link but if you go to O'Reilly Auto Parts site they are under car wash products within that site.

They are a godsend. I still don't know what my problem is causing the pain, but at least now I'm not reminded of it every time I move.
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