I have read almost all post,I have the exact symptoms, my penis rubs against my underwears and it is very sore,it is ok in morning and get worse as day goes on.I contacted herpes 2 , ten months ago. I have been to 12 doctors had many herpes test they gave me wrong/worst one IGM , you need IGG or western blot.i got herpes from oral sex. At first penis burned for a few months now it s just so sensitive at the head when it rubs my underwear.I also had a vibrating sensation the whole time. I had one out break with a sore 5 months ago. This was nothing compared to the burning and vibrating and soreness I have felt for the last 10 months. Also sometimes my testicles ache. I have asked urologist and herpes specialist and they seem to have never heard of this yet I read about many people on the Internet that have same problem.i am willing to do anything go anywhere to solve this and get back to normal. If anyone can help I would really appreciate it. Was anybody able to solve this problem? Also I hate to be negitive but those that have these systoms need to be check for herpes and only except the western blot test.

I have not been tested for herpes. Did the doctor prescribe anything for you to take to help with the pain? Is there a cream or ointment or something you can take to help? A pill? Anything?

Hi all

I would’ve responded sooner but I didn’t seem to get notification for the new posts and just happened to look in today.

I guess you know my story from reading my previous posts, I have seen 2 urologists and one dermatologist who referred me to a penile eczema specialist and I’ve been tested for pretty much everything.

As most of my self medication, which consisted mostly of emollients in an attempt to lessen the friction, never had much of an effect I have vastly reduced the application of these, that includes the Topricin, a homeopathic/herbal anti-inflammatory cream which I mentioned in my last post, I only tried a couple of applications and it just seemed to sting so I gave up on that.

So far the reduction in applications had made little noticeable difference so I may continue with that, I have just started my first long walks of the year so I’ll see how it goes.

I am not able able to post links yet but this is by far the best article I have ever read on the subject, you should find it by searching for:
“‘Vegas’ Dysesthesia: Understanding and Improving Management of Groin Dysesthesia” by Richard G. Fried, MD, PhD

So guys, it's been 2.5 years since the last post! Has anyone had any success with this treating this problem?

I am absolutely certain that what I have is genital dysaesthesia! A top dermatologist diagnosed me with this and has prescribed Pimecrolimus cream. Have you tried this yet? Does it help?

Also, could this condition result from cuts on the penis or use of corticosteroid creams?

I also wanted to get other peoples opinions on this. So a little over a year and a half ago i had a penile injury where i thought thar potentially i injured my dorsal nerve and/or the pudendal nerve (leading up to this i was having nerve pain with my coccyx where it felt like a nerve was pinching). For roughly 6 months i had hard flaccid and the head of my penis looked like it had tiny bumpy nerve endings and painful recovery from erections/ejaculations (sensitive skin feelings). Then roughly 6 months later i was with a girl (unproteced oral sex on me but protected vaginal sex) and immediately afterwards felt a burning sensation in my "taint" area. I immediately went and was tested for all kinds of std tests (herpes included) and everything came back negative, a few months in and i had persistent irritation and some redness along with it. I was given triamcinolone with an anti fungal treatment which i tried for a few weeks and developed a horrible rash. I stopped immediately after that (it settled down for roughly a week and then symptoms persisted) that was roughly 9 months ago and can agree that when the weather was warm it was a little bit better but as the weather has gotten colder im starting to have quite the flare up again.

I cant help but think that this is stemming back to my penis injury (that girl was just the first one i had sex with after it). At the time i was looking into the therawand for possible treatment, but was afraid to and still am of performing this manual manipulation on myself. I still get erections but notice the same hard flaccid that I've had for the last 19ish months. Has anyone tried physical rehab or possibly trying some treatments in dealing with the pelvic floor? I'm curious as to if this may be part of the cause or if anyone else is noticing anything up with their genitals other than this irritation thar might be out of the norm? (Any sort of nerve flare ups and what not that could be related?) I notice that when its super painful, i get extreme bouts of anxiety/depression and also have bouts of diarrhea and lower back pain. I feel like this could definitely be stemming from the spine as well. I just wanted some other peoples thoughts.

I wanted to follow up on this to add in a few other things since the time has passed. I've gotten tested for hsv-1 and 2 igg tests which both came back negative. I notice that its really bad when I am wearing snug jeans (maybe not enough blood flow to the area) or if I don't get enough sleep. This is super frustrating and can really get me down sometimes. Wanted to know if anyone had the luck of improving their symptoms.

Hi bumping this thread. Experiencing similar symptoms, and may have been caused by cuts as well like @DLNY mentioned. @DLNY did you ever figure out an explanation or solution to the pain?

So sorry you have this problem. It must be very difficult for you to talk about. My sympathies are with you.