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Hypersensitivity in the penis (irritated & prickly)

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Old 12-04-2015, 02:32 PM   #31
DLNY
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Default Who has successfully tried to Completely Ignore the Pain??

I have a question for all the guys:

Who has successfully tried to ignore the pain? Has anyone just done their best to put it out of their heads and learn to ignore it? Does anyone feel like when you're really busy, or absorbed in work, or even when just having fun you don't notice or feel the pain as much?

If the doctors are right, and this is "nothing," can we try to psych ourselves out by ignoring it and live a happier life even though the pain is still real and there?

Does anyone get what I mean?
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Old 12-05-2015, 03:46 AM   #32
NB664
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Originally Posted by DLNY View Post
I have a question for all the guys:

Who has successfully tried to ignore the pain? Has anyone just done their best to put it out of their heads and learn to ignore it? Does anyone feel like when you're really busy, or absorbed in work, or even when just having fun you don't notice or feel the pain as much?

If the doctors are right, and this is "nothing," can we try to psych ourselves out by ignoring it and live a happier life even though the pain is still real and there?

Does anyone get what I mean?
DLNY - glad to hear there has been some improvement.

Yes I would say there is little doubt about that intact I was reading an article recently “Living with chronic pain and discomfort” in which one of the techniques recommended for coping was,

“Find ways to distract yourself from pain so you can enjoy life. Track if your pain subsides when you are distracted. Document any findings in your journal.” It has many other recommendation for coping.

But I have so far never managed to put it completely out of my mind for any length of time as in days as opposed to hours.
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Old 12-08-2015, 02:29 PM   #33
DLNY
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Default Summer Shorts, Silky Boxers, and Desensitization Technique

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Originally Posted by NB664 View Post
I don’t suffer from the sitting problem as such but I’ve suffered from the "penis rubbing against underwear” problem for years, I would describe it as a burning sensation made worse by the slightest friction such as walking, walking always seems to make it worse, some days are worse than others but it is always present to some degree. As regards when I’m sitting the discomfort comes from any slight pressure from my clothes.

For a long time I just put vaseline on the glans as a barrier but it was just so messy and didn’t seem to help much, I have since tried many emollients but none of them really make much difference.

As regards meds, I was on antibiotics on and off for years for acne rosacea and a skin specialist who I was seeing about the acne rosacea had a look at my glans problem referred me to a penile eczema specialist, not that there was much evidence of eczema just the usual slight redness but anyway he reckoned it was related to my overall acne rosacea/eczema problems.
The urologist I saw at the penile eczema specialist clinic said there was no infection but that my skin was just very sensitive (she did a skin sensitivity test) and to try a range of antihistamines which are often prescribed for skin allergies but I didn't notice much difference apart from them making me drowsy, she also prescribed an anaesthetic ointment to help as she put it "retrain the nerve endings" I’m not sure I gave them much of a chance of working, I just didn’t get along with either and my doctor who specialises in STDs and UTIs didn't seem impressed with the idea anyway and said we had reached a point where it just seems to be in my head.

I sometimes do a lot of walking even though that makes the discomfort much worse and I’ve noticed in the shower after my walks that the corona (ridge of the glans) looks very inflamed. As I am circumcised there is obviously no protection for that part.

There have been very short periods and I mean a day or two when it has felt almost normal, on a couple of occasions on sunny days at the start of summer I have walked with negligible discomfort and after each of two hernia operations it felt fine for several days afterwards, I put it down to the anaesthetic and the painkillers which I was on for about a week following each op but when replicating the meds the problem remained, I suppose it could have been heavy anaesthetic still in my body post-op or recovery pain distracting?

I wish there was just one urologist/medical practitioner on the planet who could say "yes, I’ve seen that before and I know what to do about it” what a relief that would be.

For the record I also had chickenpox as a child.

Since I wrote the above I found this article which fits my condition / symptoms and also mentions the possible Rosacea connection.** the title is "Male genital dysaesthesia" (unable to post links yet)

I find I'm in less pain during the summer mostly because of wearing shorts. Shorts in general bother me less than long pants. I believe it's because of the open leg nature of shorts. However, it comes down to the fit of shorts and pants in general. I'm also a big fan of silky like boxer shorts - even the cheap silky like polyester type you can find at Sears. Wearing those silky boxers and the right fitting shorts/pants can make a world of difference.

If you are a big walker and find yourself missing out, I'd consider buying a treadmill for home where you can walk in your boxers or whatever makes you comfortable.

I have also tried friction therapy to desensitize the area on my penis bothered by the friction from underwear. There is info about this out there specifically how to desensitize scars and sensitive skin, however nothing specific to penis skin. Here's what I did (again this worked for me, but may not work for everyone):

1) Hold penis in one hand and use fingers on that hand to stretch it out a bit and hold in that position to expose the problem area.
2) Use thumb and index finger on other hand to rub the problem area in at least four directions: up, down, left, and right. Do each direction 10 times each to start for this trial run.
3) Minutes to hours after I felt worse. The next few days I continued to feel worse and was sorry I did it. At about the 4th day, I started to feel better, and by day 5 I was much better and noticed a big improvement from doing this exercise. The benefits last a handful of days thereafter.

I think this exercise helps build up a resistance to the underwear friction. The next time I did the exercise, I increased the reps to 20 times each direction. I have built up to about 40 reps each direction, and I've found the recovery time a little less and the subsequent number of days of benefit to increase slightly. Each time I do this, I need to block out a few days when I know I will not be walking around much so that I can recover and not make things worse.

NB664 or has anyone else, have you tried anything like this?
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Old 12-09-2015, 11:05 AM   #34
NB664
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Originally Posted by DLNY View Post
I find I'm in less pain during the summer mostly because of wearing shorts.
I agree about the shorts and the fit, that combined with the de-stressing effect of the first warm sunny days of summer definitely have a positive effect.

I am a relatively big walker and although the joy of it has been tarnished I continue because I feel the health benefits outweigh the discomfort.

I will have a look at the desensitising business

My current thinking is that in my case it is simply inflammation caused by friction from clothing when walking that causes the prickly/burning/sensitivity. The vicious circle is the stress and it’s effect on sleep make my already sensitive skin more prone to the friction/inflammation which then causes the stress and on it goes. I guess that was the idea of the Lidocaine anaesthetic gel/ I was prescribed by the penile eczema specialist, to break the cycle or as she put it “retrain the nerve endings” but that suggests her view was that the original problem was gone but the recurring inflammation suggests otherwise.

I am thinking of trying out Topricin at some point, a homeopathic/herbal anti-inflammatory cream.
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Old 12-13-2015, 05:22 PM   #35
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Default HSV2 Verdict?

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In the few weeks since i posted I am feeling about 30% better. The feeling of what I have come to learn is "allodynia" is better, though Im not pain free, Im functional. No where near a return of libido though. In my case, I wonder if it has been due to a skin tear where the frenulum and corona come together. This issues seemed way too small to explain my symptoms, less than half a dime size, but my theory is there is a nerve under that injury giving referred pain similar to pudendal nerve entrapment. Part of the reason I think this is because my pain is clearly on the underside AKA ventral of the shaft, not on the dorsal side. Im totally painless on the top half of the shaft. I can't understand how the pudendal nerve would spare the dorsal half of my shaft...

I have been tested for HSV 1 and 2. At 3 days after symptoms started, 2 weeks, 3.5 weeks and again at 6 weeks. Thats where I a now. All have been negative. But it can take over 12 weeks for people to turn positive. I really think that could be it.

I can't say much about the chicken pox theory, except to say that it falls in the category of idiopathic, AKA unknown. The rarity of our symptoms is hard to explain whatever it is.

Im just hoping with time, it gets better. My improvement also coincides with starting amitriptyline AKA elavil. Not sure if that is cause and effect yet or not. Pudendal nerve entrapment has also been going thru my head if i have pain related to sitting that gets worse by the end of the day, as my job involves a lot of sitting.

Will update when if I get better or know anything more.

cosmos




Hello cosmos. Did you ever get.a conclusive HSV result? Did you test at week 12-14? So many of us are in the same boat symptoms wise and HSV seems a possibility for most of us.

I tested negative at 8 weeks and am just waiting another couple weeks before I can go get conclusive 12 week test. I have never shown any kinda visible signs of herpes but share all these same burning prickly irritated feelings. Am wondering if you did or didn't eventually test positive for herpes because it would be a good indicator if our similar symptoms are likely to be HSV related or truly something more nerve based.

Regardless if you did or didn't test positive, I hope you have found some relief. Please let us know.

BT
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Old 04-06-2016, 09:48 PM   #36
Tony joe
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Default Penis sore when rubbing underwear

I have read almost all post,I have the exact symptoms, my penis rubs against my underwears and it is very sore,it is ok in morning and get worse as day goes on.I contacted herpes 2 , ten months ago. I have been to 12 doctors had many herpes test they gave me wrong/worst one IGM , you need IGG or western blot.i got herpes from oral sex. At first penis burned for a few months now it s just so sensitive at the head when it rubs my underwear.I also had a vibrating sensation the whole time. I had one out break with a sore 5 months ago. This was nothing compared to the burning and vibrating and soreness I have felt for the last 10 months. Also sometimes my testicles ache. I have asked urologist and herpes specialist and they seem to have never heard of this yet I read about many people on the Internet that have same problem.i am willing to do anything go anywhere to solve this and get back to normal. If anyone can help I would really appreciate it. Was anybody able to solve this problem? Also I hate to be negitive but those that have these systoms need to be check for herpes and only except the western blot test.
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Old 04-24-2016, 11:53 PM   #37
DLNY
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Quote:
Originally Posted by Tony joe View Post
I have read almost all post,I have the exact symptoms, my penis rubs against my underwears and it is very sore,it is ok in morning and get worse as day goes on.I contacted herpes 2 , ten months ago. I have been to 12 doctors had many herpes test they gave me wrong/worst one IGM , you need IGG or western blot.i got herpes from oral sex. At first penis burned for a few months now it s just so sensitive at the head when it rubs my underwear.I also had a vibrating sensation the whole time. I had one out break with a sore 5 months ago. This was nothing compared to the burning and vibrating and soreness I have felt for the last 10 months. Also sometimes my testicles ache. I have asked urologist and herpes specialist and they seem to have never heard of this yet I read about many people on the Internet that have same problem.i am willing to do anything go anywhere to solve this and get back to normal. If anyone can help I would really appreciate it. Was anybody able to solve this problem? Also I hate to be negitive but those that have these systoms need to be check for herpes and only except the western blot test.
I have not been tested for herpes. Did the doctor prescribe anything for you to take to help with the pain? Is there a cream or ointment or something you can take to help? A pill? Anything?
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Old 05-20-2016, 04:22 AM   #38
NB664
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Quote:
Originally Posted by Tony joe View Post
I have read almost all post,I have the exact symptoms, my penis rubs against my underwears and it is very sore,it is ok in morning and get worse as day goes on......I have asked urologist and herpes specialist and they seem to have never heard of this yet I read about many people on the Internet that have same problem.i am willing to do anything go anywhere to solve this and get back to normal. If anyone can help I would really appreciate it. Was anybody able to solve this problem?.
Hi all

I would’ve responded sooner but I didn’t seem to get notification for the new posts and just happened to look in today.

I guess you know my story from reading my previous posts, I have seen 2 urologists and one dermatologist who referred me to a penile eczema specialist and I’ve been tested for pretty much everything.

As most of my self medication, which consisted mostly of emollients in an attempt to lessen the friction, never had much of an effect I have vastly reduced the application of these, that includes the Topricin, a homeopathic/herbal anti-inflammatory cream which I mentioned in my last post, I only tried a couple of applications and it just seemed to sting so I gave up on that.

So far the reduction in applications had made little noticeable difference so I may continue with that, I have just started my first long walks of the year so I’ll see how it goes.

I am not able able to post links yet but this is by far the best article I have ever read on the subject, you should find it by searching for:
“‘Vegas’ Dysesthesia: Understanding and Improving Management of Groin Dysesthesia” by Richard G. Fried, MD, PhD

Last edited by NB664; 05-20-2016 at 11:39 AM. Reason: punctuation etc
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Old 02-13-2018, 01:28 AM   #39
DLNY
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Default Any Updates from anyone??

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Originally Posted by NB664 View Post
Hi all

I would’ve responded sooner but I didn’t seem to get notification for the new posts and just happened to look in today.

I guess you know my story from reading my previous posts, I have seen 2 urologists and one dermatologist who referred me to a penile eczema specialist and I’ve been tested for pretty much everything.

As most of my self medication, which consisted mostly of emollients in an attempt to lessen the friction, never had much of an effect I have vastly reduced the application of these, that includes the Topricin, a homeopathic/herbal anti-inflammatory cream which I mentioned in my last post, I only tried a couple of applications and it just seemed to sting so I gave up on that.

So far the reduction in applications had made little noticeable difference so I may continue with that, I have just started my first long walks of the year so I’ll see how it goes.

I am not able able to post links yet but this is by far the best article I have ever read on the subject, you should find it by searching for:
“‘Vegas’ Dysesthesia: Understanding and Improving Management of Groin Dysesthesia” by Richard G. Fried, MD, PhD

So guys, it's been 2.5 years since the last post! Has anyone had any success with this treating this problem?
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Old 04-30-2018, 06:25 PM   #40
Payton
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I dont have much feeling or sensation in **** at all anymore but that least of the issues this doctor keeps stalling me out wont take me seriously ive been trying to get this specific spinal testing and etc while im sane for a long time to pinpoint CJD and CJD foundation and prion pathology center would keep ignoring me when i ask for advice as I go more downhill I try reaching out and supporting them and they dont care im probably gonna put thrown in somewhere cuz no one will know i had CJD or related they will just think im insane like some of the other victims. reaching out not just for myself or for research etc but to help future victims hopefully in future more resources for victims of complex disease like that
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