Hi @finalist, did you ever find anything out?

Hey @painfulride.. sorry to hear you're experiencing alot of this too.. I'm thinking of going back to a doctor and getting a nerve test study done to see if it comes back with anything conclusive.

My guess is what I'm experiencing is nerve pain caused by a lesion or something similar that chronically is activating the sensory nerves. The sensitivity, burning, and general discomfort started between my legs in the perineum region and has extended to my knees and my abdominal region. A lot of times when my feet are cold I will get a tremendous cold burning pain in my genital region. It's been worse lately and can be exacerbated by rough soaps, clothing, or exercise.

I've been experiencing these symptoms for 4.5 years so far. Some days it doesn't seem to bother me much and other days it's what pushes me over the edge and the anxiety, fear, and depression of living a life like this breaks me down. I try not to burden others with this (my family and significant other know about my condition) but it really does suck. I'm only 28 years old and would love to find a solution. I also suffer from hard flaccid but according to another individual online he was able to cure his with activated movement (advanced sttetching/micro strengthening) and oral anti-fungals. I would also love to get into cryotherapy treatment similar to the wim hof method and meditating for hours at a time (from the book a headache in the pelvis).

I work a 9-5 but want to start really trying to help myself get better by dedicating more time to my efforts. Although sometimes constant distractions are a cheap thrill to keep myself occupied. I don't drink much or smoke so this usually comes in the form of video games, junk food (my go to is milkshakes), and rarely but sometimes porn.

Sorry for the long post, just wanted to give an honest estimation of where I'm at physically and mentally.