Has your condition gotten any better since you last wrote anything here?

what percentage of sensation would you say that you have gained back in the time since the injury? how long ago did the injury occur?

Hi to you all,

i just registered for this kind of problem. To my history i get no sexual sensations from my glans since nearly 8 years. Since 8 years i tought i was hit by en EBV-Virus infections so hard that it still does affect me, because i got still problems with motivation and concentration and so on and so is my sex-drive non-existent, before that i was a sex monster. Then 2 weeks ago i felt pretty good and realized that the cause that my penis doenst work at all might be really nerve damage. And im pretty sure it is. I thought 8 years its all in my mind but it isnt my mind is clear. Whats really crazy is and i can tell you is when you have no sexdrive at all (and no its NOT just in your mind - chop of your friend youll see) you will loose all motivation for doing anything in life, sounds pretty stupid i know but believe me all thats how our brains work, doing anything which could give you the chance to make babies will make you fun to to. But if you have no sexdrive youre not useful anymore for the nature. To myself just that you know, i really good looking guy well educated did/could have to most gorgeous babes in the world but cant because his friend down there doenst sent him any pleasureable feelings anymore up to his brain.

OK, i know i sound a bit ruff, but iam pretty down at the moment. All i wanted to say is that i will go on monday to one of the best doctors in the world (hes pretty famous) and he´ll do an high res ultrasound to check for the dorsalnerves. When he is finding something i will tell you but i dont know what in the world he could do to help me otherwise he got some Star-Trek medicine techniques i dont know.

Before i forget i did also those streching techniques not really professionell but just a few times under the shower for a few seconds but with hugh force i think about 100N or more.

All i can say is that this ist the worst what to a man can happen besides getting full handicapped in sitting in an wheelchair.

I hope on monday this doc has miracles in his pocket, otherwise iam pretty much doomed for my life.

HEi Acer123

I EXPERIENCED EXACTLY THE SAME AS YOU

I am from Germany i me too i used a stretching device and i have the the Problems like you....

I have to talk to you personally about that...

I hope you will be able to reach this message......

I have we can communicate...

Greettz

Hey has any of you been able to reverse it?

How about taking B Vitamins, Omega 3 etc.. any encouraging stories?

I tried B vitamines and carnitine but i didn't solve the problem.
Anyone who can suggest anything?

It sounds very much like you are now suffering from something called 'autonomic dysfunction'. That is where the automatic nerve functions that we take for granted are malfunctioning. In your case, due to injury. It is impossible to tell if it can ever be corrected, as its all down to the cause for the individual.

To try & put your mind at rest a little, as it is improving, albeit at a rate not satisfactory for you, then I think its safe to assume that over the next twelve months it should recover to a level that you hardly notice.

I too have issues due to nerve compression from a cycling injury & twelve months later, things have improved a lot. The main issue I have is temperature regulation, so my penis & testicles go randomly cold. This has improved since I started taking a high dose of Vitamin B12, which helps to recover & maintain healthy nerves. While erections & ejaculation are fine, I find both painful, but again, this has been slowly improving over the past twelve months.

I think your outlook is good though, as you have no pain & things have been improving. Patience is the key & grab yourself some high dose Vitamin B12.

I sincerely wish you a speedy recovery dude...

Any updates on what is causing the numbness? I am 5 years out from my stretching injury and still have little sensitivity. I wish someone figured out what the issue is and possible fix...

Hey fellows...it's been 5 years since I last posted on this thread. Anyone discover what causes the numbness from the stretching injuries. I am 5 years out fro my injury and still suffer with lack is sensitivity. I am thinking about going to Cornell Urology to see if they can figure it out. I have never had an MRI because I thought it was pointless. Also never had any nerve conductivity test. Just wanted to see if anyone found a fix/cure (e.g operation).

Anyone suffering from this type of injury feel free to message me or reply.

Acer: have you healed. I've been living like this for 5 years. Curious to know if you are better or found a fix?

Spider I still suffer from lack of sensitivity...any improvement on your end?

Strain/Nerve injury/vessel injury
 

. Try and check the 3 I listed W/ you're doctor! And normally all 3 of those do heal not quite sure on the vessel though.

Good Luck 2 u

6 months in similar situation
 

Hi guys, what's up?

I'm writing to you my story which has similar sympthoms from yours. First I'm describing my current symptoms. Then below some history of threatments and of when I started to feel like this.


Current Symptoms:
- Penis' skin with the same previous changes: different color, thinner skin
appearance and thicker / apparent veins, nerves more apparent. The nerve of the underside of the penis, it seems more salient and "hard" when the penis is erect.
- It seems like there's a division in the penis - In one part is normal
color and appearance and the rest is not.
- Heavy penis sensation, always pointing downwards and weighing down.
- Areas where previously felt itchy and where I used the pastes, are those
that sensitivity is lost. I can't feel the itching in these areas since I
lost sensitivity.
- Almost total lack of sensitivity in the penis body at the topside. The glans
has almost no sensitivity. Underside of the penis with greater sensitivity, but not 100% normal.
- Besides the penis, I feel that I lost sensitivity of the innermost part
of the buttocks or **** (feel that control how to eliminate gas / fart has
changed, for example, is difficult to explain).
- Loss of erection upon waking up accompanied by urination urge. I have now no erection in the morning when I wake up and the urge to urinate is
non-existent or very mild.
- Urinating: With the erect penis, must make great efforts to urinate. With
the soft penis, there is not the same sensitivity and control. Penis always
down.
- Erection: Occurs but needs greater stimulation than before to occur. In
closing the stimulation, the erection ends much faster than before.
- Ejaculation: It happens, but without the same pleasure. When it comes out
of the penis, it seems that comes "through the penis" with greater
difficulty and not as much pressure as before.
- When I force the muscles of this area, like if I was going to urinate for
example, I can't feel or control the penis.
- Pain in the lower back, especially on the right.
- In the past weeks, I started to feel tingling sensation on the right
foot. Rarely, pain on the sole right to get up and walk after sitting or
lying down.
- Pain when you press with your fingers a portion of the right leg muscles
on the lateral aspect of the buttock.
- No sexual relations since end of 2014, when the symptoms in the penis
started. In a relation with girlfriend since 2012 and she has no similar
symptoms.

History of Symptoms:
- Since 2011: Itching in the groin area, between thighs and scrotum, also
inside the buttocks and between scrotum and buttocks. I never did any
treatment related to this. I'm not sure what could have caused this.
- September 2014: Itching in the penis body with a white spot circle
- From September 2014 until March 2015:
1. Used Canesten paste in penis, inside the buttocks and I took water
bath vinegar in the penis only. Vinegar helped to "dry" the white spot and
it started to become red and then to come back to normal color of skin.
2. Continued to use for a few more months in penis, inside the
buttocks and I took water bath vinegar in the penis only, but if I stopped
using for a few days, the skin became red and itching again.
3. March: Doctor examined and told it was related to fungi. I used Icaden/Isokonazol) in penis and inside the buttocks.
4. It got better and I stopped using all pastes and vinegar bath.
- April 2015:
1. Started exercising at the gym, with weight lifting.
- May 2015:
1. Red skin area and itching started again.
2. Used Icaden - Isokonazol for 2 days on penis and inside the
buttocks.
3. Two days later, after going to gym, I took a shower and started to masturbate. I felt like my penis was under anesthesia. I couldn't stimulate it normally and the sensation was the same as if I was recovering from anesthesia, really doing effort to feel it and be able to unirate.
4. On following days, I also noticed that I didn't have the same
control to fart (it's hard to explain).
5. Suddenly, the itching completely disappeared, in the areas where I
lost sensation (in penis and between buttocks).
4. After that, it never came back to normal.
- May/June/July 2015:
1. I used Imacort, prescribed by Dermatologist. No changes in
the symptoms.
2. I used Protopic for 2 weeks as indicated by Urologist. Skin got
better, but the sensation was the same.

Examinations:
MRI, EMG, Blood (for testosterone), Urine, Electroencephalogram. Everything so far, normal. The only thing found on MRI is Tarlov Cyst and a disk that is 3mm not in the correct position, but it's not pressuring any nerves.

I'm really desperate, as probably most of you are. Thank you for the space and sorry for so many words. Hopefully one of you will have something else to indicate.

Almost 4 years not recovered
 

Hi everyone, I have been suffering the same thing for about 3.7 years and still am waiting to recover. I accidentally fell asleep for 3 hours while wearing a penis extender that was applying a lot of compression at the base of my glans.

Almost 4 years later I still am not able to feel what I am doing during sex, and am almost unable to orgasm. I have had to forget about intimacy with women.

Anyone actually recover from this? It would mean a lot to hear what other people's experiences with this have been. Good or bad. The anxiety of not having any idea what may or may not lie ahead for me might be what bothers me the most.

Hi Neuropathy76, it'd be great to hear if you ever made it to the doctor and what might have transpired over the last year. This is scary stuff! Hope you are still around and that we all can communicate with each other better.

Hey man the best I could say is just to grip your penis lightly. So in other words dont grip heavily at all when you masturbate. Here is my story on how I recovered. Other than that there isnt much you can do because your penis heals itself to a degree. If that doesn't work and it is still bothering you a lot I would just try therapy and antidepressants. You cannot guarantee happiness but you can at least try to attain it. And yeah no one wants to take pills but sometimes that is the only option. Regardless keep searching for a way man and goo luck to you!!!

Hey everyone, I know this is an old thread but I have a similar problem. In december I also jelqed (penis enlargement exercise), and pulled too hard when I had a full erection. I then suffered from erectile dysfunction and had a smaller flaccid penis then before, in addition to numbness and loss of sensation, and cold glans (cold penis head).

Today, my main symptoms are cold glans and sometimes smaller flaccid. My main concerns before were erectile dysfunction and loss of sensation. But I find that my symptoms get worse if I have sex or masturbate. I think having sex re-damages some myelin sheath that hasn't properly healed. Sometimes after I ejaculate, the left part of my penis head slightly loses sensation.

Does anyone have any advice for what I should do? I get morning wood almost every morning, but during the day it's harder for me to get an erection. Part of it is maybe due to anxiety. When I'm with my girlfriend, I'm able to get an erection.

Hi nblade98

Welcome to NeuroTalk :).

I know nothing about jelqing.

I suggest that you get a referral to a specialist who knows about male reproductive physiology.

Best wishes.

Im dealing with the same problem for years now. A completely numb penis and no pleasure if i get an orasgm. I luckily dont have any issues with the erection, it got a little bit harder to get an erection, but its still working well until now. I think its also nerve damage for me, because it happened within a splitsecond. I was masturbating and suddenly after a short pain my penis was numb(maybe because of masturbating too hard).

I was jost wondering if any of you guys have experienced any progression on this topic.

I wish all of you a good and fast recovery!

Improving condition
 

Right down to it, I joined here just to share my journey.

I accidentally fell asleep in a penis ring 3 years ago. I had several erections per night at that time, so the ring really injured me. The next morning all sensation was gone, from the base to the shaft. I visited several urologists, all with the same speech- the injury cost me length, girth and sensitivity both flaccid and erect. To help, but not repair, the damage they gave me cialis and a (400$) penis pump. Did it work? Yes and no. It allowed me to have sex but didn't improve the actual injury. After months, I got back around 30% of sensitivity but with a painful lump on my shaft.

So I started my own research and I'm back to I'd say 90% of sensitivity, improved girth and length, not to pre injury size though. In order, these were the steps I took. *Like a previous poster said, I'm not a Dr, but I've been to at least 5 urologists in 2 different cities. None of them seemed to care about my penis as much as I did.

1. No ejaculation. I won't say how long, it was tough but I did it.
2. Castor oil. I used this as a massage oil. Please duly research this, as it has to be a high quality oil to be effective. Within a few weeks, the lump was completely gone.
3. Loads more H2O.
4. Cialis, pump, massage, pump. That was a routine I made, nothing more, nothing less.
5. More exercise i.e. walking and rowing.

After getting good but not great results, I sought out a penis specialist. Sensitivity had really improved, erections were firmer but still far less than before. So I researched more and more, around 3 years total. I found this procedure, prp injection, which claimed it could repair penis injury using platelets. It worked. I'm at 90% sensitivity level, I regained more length and girth back after just 1 injection. However, they are not cheap so please do your research. If it is cheap, it probably isn't real.

That's it. If only I'd known about the castor oil and injections when it first happened, I'd probably be past my original size! As it is, three years went by before I learned about the prp injections. It has worked for me, hopefully this tidbit will lead you guys down a good path.

Stay strong.


All thanks to AN Army vet Robert Schiewy, whose story I read a year after it was reported. Please research him, he led me down the prp path.

Pinkfloydd,

I am trying to get a hold of you to discuss your treatment, but at the time of writing this, the forum will not allow me to send a PM. Can you please post if you 'see' my post?