advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-13-2013, 01:41 AM #17
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Default Hopeless

Quote:
Originally Posted by IWantToCutMyLegOff View Post
Hi! I shared a similar path to yours. I was up to 1500 of Gabapentin a day. It seemed like it worked less and less and I had to increase the dose more and more. The amatriptyline was a godsend to me but the BIGGEST help to me was my round of Capzasin cream. It was a pain, and even painful at times but it worked! A very thin film on the painful area of the leg five times a day for one week, then three times a day for a week, then wean down as necessary. This was recommended to me by a neurologist at Northwestern University after trying EVERY medicine possible. I cried because I did not think it would work. It did..I still have it...but now I have dropped the gabapentin completely and only use the amatriptyline at night. At first the amatriptyline made me completely zombified. Now, it has no effect on me. I do occasionally drink alcohol with no problem. I do notice the dry mouth, but it is nothing compared with the MP pain that I had.
I know the feeling of wanting to cut off your leg. I had my first "attack" of MP in 1977 following abdominal surgery. For serveral years, the pain only happened occasionally, especially when standing or walking for prolonged time period. As the years went by, the frequency and intensity progressed. For years I was ignored, dismissed, mis-diagnosed, etc. One orthopedic surgeon wanted to operate on my spine for a disc problem but I refused since the area was not related to my leg pain by basic anatomy. The disc healed on its on but the pain in my thing remained. The severity of the pain became debilitating by 2004 and I had to quit working as I could no longer perform my job duties due to the constant pain. I have tried it all. Physical therapy, oral meds, lidoderm patches, TENS unit, spinal injection, also injection directly into the LFCN. Had MRI's, NCS/EMG, x-rays, etc. I used my life savings up and finally applied for disability and was denied. I have become a shut-in as just going to the grocery would cause so much pain I want to cut off my leg. If someone has not experienced this condition, they simply discount you. I was told by one doc,... you have a pinched nerve, like it was nothing so why even mention it. I have been told that the only option left is surgery but they do not think it will help since I have had the condition so long and surgery could actually make it worse. Until about a year ago, I had relief while I slept since I always sleep on my stomach. Now, I will get electrical shocks during sleep that are so strong, they wake me and I am up the rest of the night. I have never wished ill on another but there are times I wish some of these doctors would experience what I do just for one day so they wouldn't simply say, oh, you have a "pinched" nerve like it was no big deal.
Hopeless is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New member=MelissaLH- Trying to make up my mind about having the surgery MelissaLH Thoracic Outlet Syndrome 24 12-01-2011 01:27 PM
New member - surgery planned & questions LSUsball2010 Thoracic Outlet Syndrome 10 02-21-2009 11:22 AM
Having Surgery.......new member Celi Thoracic Outlet Syndrome 10 12-05-2007 12:45 PM
Hanson Group Member Undergoes Surgery for TOS InspectorD Thoracic Outlet Syndrome 2 10-05-2007 01:10 PM
New Member-having Surgery!!help!!! bookworm New Member Introductions 8 07-07-2007 01:18 PM


All times are GMT -5. The time now is 07:03 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.