Hi everyone

I've had MP for over a year now and I share your pain The cause is unknown in my case but it's possibly related to my chronic inflammatory arthritis (an auto-immune disease). I also had a hip replacement on that side 3 years ago.

I've had all the conservative treatments including steroid injections, Neurontin etc and I also had nerve decompression surgery in May 2009. That fixed it for 3 months and then the pain slowly returned, along with the numbness. The neurosurgeon I saw today says that sometimes scar tissue from decompression surgery recompresses the nerve and then the whole thing starts over again... So I'm having the nerve (the LFCN) cut (sectioned) next month and fingers crossed it will provide a permanent solution.

The one piece of advice I have for those newly diagnosed is to speak up and keep complaining about the pain - I have had nights when I'd go to bed and cry (because it's always at it's worst for me at the end of the day).

Best wishes,
Wendy

Welcome to NeuroTalk Wendy. I'm sorry you have so much pain with MP. I don't have it but I can offer hugs... I hope all goes well with the surgery and you'll get pain relief soon after. Keep us posted!

Take care,

Thanks for your support I thought I should post here because MP seems to be uncommon and there are few online support places. I'll report back after the surgery...

Wendy

I had severe MP for years after my C-section.

Finally Lidoderm patches came out and I tried those and it
put me into a remission. The numbness is even better now, 5 yrs after using them. I still get twinges if I overextend my thigh, but it is for the most part...sleeping.

I used a patch cut in half and put over the exit of the nerve at the top of the thigh and to the side... for 2 weeks in a row, and the nerve stopped going crazy and calmed down finally!

I think surgery is a last resort. But if you have tried Lidoderms and failed, I guess that is all that is left.

Mine was very painful... like 100 bee stings all at once!

how does your leg feel now?

Hi.

Well, I had the surgery a week ago and the jury's still out: I had decompression surgery by an orthopaedic surgeon 8 months ago ("surgical release'') and this time the neurosurgeon who was going to sever it actually couldn't find the nerve - it must have gone into hiding!! He spent over 2 hours trying to find it so I still have some residual pain at present at the wound site.

But so far the burning thigh pain has not returned so maybe all the digging around may have helped - you can probably tell I'm am optimist...

I wouldn't contemplate surgery lightly but am only 44 and have had this pain daily now for over 2 years now and can't face the prospect of another 40 I'll post again when the healing's completed.

Wendy

Wendy,
I would love to see an update to your post! I hope this last surgery gave you lasting relief. I am in tears or near screaming to the walls when I try to sleep at night. I can't really talk to anyone about it because they don't understand and it seems to be rare? I am 5'4" 124 lbs, never wore restrictive clothing, but have had past abdominal surgeries. It really doesn't matter to me how I developed this, rather my goal is to be able to live with it! Tried Neurontin, Cymbalta, and Lyrica but can not tolerate the side effects. I feel so helpless...will begin PT next week.

I would like to hear a "success" story on MP!

Did you have a previous MRI- Neurography before this surgery to locate ethe nerve.

Hi Wendy
Where in New Zealand are you and how are you now ?

J, Christchurch

Where did you have surgery

I've had MP for over a year now and I share your pain The cause is unknown in my case but it's possibly related to my chronic inflammatory arthritis (an auto-immune disease). I also had a hip replacement on that side 3 years ago.

I've had all the conservative treatments including steroid injections, Neurontin etc and I also had nerve decompression surgery in May 2009. That fixed it for 3 months and then the pain slowly returned, along with the numbness. The neurosurgeon I saw today says that sometimes scar tissue from decompression surgery recompresses the nerve and then the whole thing starts over again... So I'm having the nerve (the LFCN) cut (sectioned) next month and fingers crossed it will provide a permanent solution.

The one piece of advice I have for those newly diagnosed is to speak up and keep complaining about the pain - I have had nights when I'd go to bed and cry (because it's always at it's worst for me at the end of the day).

Best wishes,
Wendy[/QUOTE]