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Old 12-04-2014, 02:20 PM #1
zygopetalum zygopetalum is offline
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Smile meralgia paresthetica

I hope I spelled that right. I know someone who could really use some help with that and I can't figure out how to direct her. Is there a forum I am not seeing? I found a thread on page 2 of General Health conditions and Rare Disorders and on it Lara posted a link to what looked like a forum for MP?

Thanks,

Judi
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Old 12-04-2014, 03:01 PM #2
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Hi there Judi!

It's hiding in Other Diseases & Concerns. There's a whole groups of forums in there.

Other Diseases & Concerns Subforums

Meralgia Paresthetica Forum

Hope that helps.
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Old 12-04-2014, 04:25 PM #3
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Thank you, I will try to get her here. She is really having a hard time.

judi
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Old 12-04-2014, 05:43 PM #4
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I had this for several years following a C-section.

I have posted on that forum my experiences.... with Lidoderm patches.

But every cause of MP is different. And sometimes it is even misdiagnosed. (the femoral nerve being affected, instead of the lateral femoral cutaneous nerve).

So patients should research this problem carefully. Damage to the spine where the nerve exits the spine and enters the abdomen, is one cause. Damage there will give MP symptoms.
Also damage when it exits the abdomen or in the abdomen itself are other causes. Placement of the Lidoderm patches therefore is critical depending on the trigger and anatomy.

Damage can come from wearing tight blue jeans, or girdles.
Wearing tight belts or other clothing. For males, sitting on their wallets in the back trouser pockets, diabetic neuropathies. Falling on your back/buttocks, having a bone marrow biopsy, or donating marrow...places the needle in that area and may damage the nerve. All sorts of things can be triggers.

Mine was surgical. But even though I have a remission of sorts, it will flare if I sit in hot water for any bathing, or steam room, or use a heating pad. This will flare even today, but it is a much smaller issue that before. So I would caution to avoid heat stimulation to the nerve. That forum has the link to AAFP:
http://www.aafp.org/afp/2000/0401/p2109.html

Figure 2B shows the proper nerve distribution. (the femoral nerve is shown also in a different placement closer to the midline of the groin.)

MP can be confused with bursitis in the hip, also.
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Old 12-04-2014, 08:13 PM #5
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She was diagnosed by an MD and is seeing an neurologist. I hope she does come, I told her you guys know everything about neurological issues...you do.

judi
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Old 12-05-2014, 11:18 AM #6
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Hi Judi,

To add to mrs D's comments. MP can be a temporary problem that may resolve on its own or in some cases become a life-long problem. I happen to fall into the life-long category. It can also be intermittent or constant.

I have heard of many cases that were undiagnosed and/or misdiagnosed, also.

Please have your friend tell us some more about her symptoms, longevity, etc. if she is willing to share that information with us.

This condition affects ONLY the sensory nerve of the skin in the thigh region only. If any other part of her leg is affected or if there is any muscle involvement, it is not MP.

Please do not misunderstand when I say "ONLY" sensory because that can be extremely painful even though it does not affect muscles. The person is "capable" of movement but will resist certain positions like standing or walking due to the pain produced by those activities.

This condition can come and go throughout the day or become constant. Sometimes the pain can happen only occasionally for a short time and go away for weeks.

Severity and longevity vary. Treatments for MP also differ and are some times dependent upon the nature, cause. and extent of damage to the LFCN. (lateral femoral cutaneous nerve)

The good news is that many prior sufferers are no longer posting on NT as they have recovered. There are just a few of us left that continue in the life-long category.

I will be happy to discuss MP further with you or your friend if desired.
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Old 09-05-2019, 11:34 AM #7
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I have been studying this disease for some time because I have it, I started treatment 20 days ago but I only see it getting worse. The pain is constant, before it just burned, burned and hurt when I was standing for a long time, but now it is constant, even sitting or lying down. I was wondering if anyone who has or had done something alternative that helped relieve pain before the surgical option.
I know this forum is very old but I appreciate if anyone can help me
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