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06-13-2013, 02:18 AM | #11 | ||
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06-13-2013, 02:43 AM | #12 | ||
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03-02-2015, 10:50 PM | #13 | ||
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Hi All,
After being diagnosed with MP early 2014, I realised that I first experienced it back in 2005. It only happened once in a while, but then in late 2013/early 2014 the MP pain became so regular and unbearable, that I went to my GP who sent me to get an Ultrasound guided cortisone injection of the lateral femoral cutaneous nerve in my right hip. Unfortunately I experience pain in both thighs while sleeping, but it seems it only happens when I am laying on my back. I start to get the tingling feeling in my thighs if i'm laying in bed watching TV, but will roll onto my side and the pain goes away. While i'm asleep though, I obviously have no control over how I lay, and will regularly (every second night on average) wake with excruciating pain in one/both thighs, so-much-so that I can only describe it as though someone is slicing my leg open to the bone with a blunt knife. I have had one dose of cortisone in my right hip, and two in my left, with noticeable improvement for short to medium duration (2-6 months). I am actually going to see my GP tonight for another issue, but will be asking for another referral to get the guided cortisone injection in my right hip again as I have recently been experiencing severe pain again. There was very little information about this condition available (or provided by my doctors), so this forum was quite encouraging to find. One thing that I will be hoping to improve is my weight, as everything I read says that obesity and tight belts/clothing contributes to the condition. Unfortunately, I can't avoid wearing belts due to my work attire, so I hope that working towards losing 20kg (45lbs) will help reduce the MP. I have been on Lyrica & Endep, along with anti-inflammatories, which doesn't seem to have helped, so I'm wondering if there are any other suggestions (aside from weight loss, nerve blocking injections & medication) that anyone might have? Also, does anyone else only experience MP pain when laying on their backs? |
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04-30-2016, 11:53 PM | #14 | ||
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"Thanks for this!" says: | St George 2013 (05-02-2016) |
05-01-2016, 02:45 PM | #15 | ||
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Hi Mando,
Welcome to NT but so sorry to hear MP brought you to us. You are NOT alone but you may find this forum a bit inactive because many MP sufferers have it on a temporary basis. But then, there are a few of us that suffer with it for a lifetime. If you ever want to chat about it, feel free to contact me. Most of the people have come and gone but there are a few of us that remain. One of the posters that left due to recovery, kept in touch with me after they had their LFCN removed. It took at least 6 months before ALL symptoms were gone. I guess it is like when one has an amputation and phantom limb pain of the missing limb. The GOOD news, this person, has now totally recovered, is back to living a VERY full life and has resumed all the activities that MP had taken away. Since your decompression was recent, I would not give up hope just yet. What does your doc say? I know I would feel like the surgery was a failure if I still had pain after going through a decompression procedure, but based upon what I was told by others, and my own personal experiences (not with decompression or removal), some treatments do take time to produce the desired effects. We are here if you wish to keep in touch. Welcome aboard but again sorry to hear of your suffering. You are NOT alone. |
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"Thanks for this!" says: | St George 2013 (05-02-2016) |
08-23-2016, 01:04 PM | #16 | ||
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08-23-2016, 01:55 PM | #17 | |||
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Wisest Elder Ever
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I'd like to just add that Aspercreme is now making an OTC lidocaine patch. It is 4% however, whereas the RX Lidoderms are 5%.
But the Aspercreme ones are affordable. example: Aspercreme with Lidocaine Patch, 5CT - CVS.com I found with my years long severe MP, and daily use for 2 weeks put me into a remission. As long as I don't use heat on that leg/hip area, I stay in remission. Heat however triggers the nerve to fire again. So I rarely use my Lidoderms anymore. I never expected a remission of pain, but I guess it is possible for some people.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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04-03-2017, 11:29 AM | #18 | ||
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Hello, I have just joined this site to get some info for my daughter, she is 16 and has MP diagnosed since 12. She also has apophysitis of pelvis which appears to be slow to settle despite her being 16.5 years old now. The combined problem has led to her stopping all sports since diagnosis and is severely affecting her life, we were told at initial diagnosis that it would go away as soon as her growth plates were formed but that's not the case at all. She has always described her pain as being consistent with MP and had a positive nerve block aged 12 also. At this stage, I'm no longer happy to accept this reduced quality of life for her, it stops her taking part on days out, holidays, trips away and anything which involves lots of walking/standing or impact activities. She is not happy to take medication and I can understand why, she initially was on the gabas and older TCA's and had all the horrible side effects too, her consultant is still treating it conservatively but I don't think this is okay at this stage in terms of her quality of life. My question is, is nerve decompression suitable at this stage and is that the same as severing the nerve ( I understand this is also an option as it's a superficial/ sensory nerve) and is this usually carried out by a neurologist or an orthopaedic surgeon? Thanks in advance.
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12-13-2017, 12:49 PM | #19 | ||
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I was diagnosed over a year ago and getting help has been a nightmare. Recent physical therapy caused such pain I got stuck immobile in Walmart with a spasm. I told the therapist what the common treatment is and she got angry. She's the expert! Ha!
If you search YouTube you will find the common exercises of "nerve flossing" and yoga: 1/2 bridge, cat/cow and others. From what Ive read epidural, shots and surgery give temporary relief. Good luck. |
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