FAQ/Help |
Calendar |
Search |
Today's Posts |
|
04-25-2012, 04:52 AM | #1 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
05-14-2012, 08:25 AM | #2 | ||
|
|||
Junior Member
|
I have had undiagnosis MP for 15 years. I have not suffered from the pain for the past 3 years, and finally diagnosed a few months ago.
If I stay sedentary Lyrica works great, if it is not, you are not taking enough, Taking More Causes Less Side Effects So when your doctor says take more gabalin (Neurontin) or pre-gabalin (Lyrica) they are not crazy. Taking 600mg of Lyrica is not uncommon and safe. If you feed drugged at 75-100mg of it, take more, it means you are not taking enough! Most people complaining about this medication never took enough to be theraputic. 2700-3600mg of gabalin is considered theraputic dosage for MP, anything below that can give you what I call chronic Drool syndrome. Now that I've had some relief from Injections, and fully understand what is causing the pain, and what the flare ups are caused by, I can now exercise and move around much more. Deep Water Aerobics is a miracle for me. The Arthritis Foundation has $1 classes weekly at most YMCA's and other places. My Rec Center has a Lazy river that is mostly used for Water Walking. Water also calms the anxiety and depression, the root of suffering from the pain. As a man, I tried lidoderm patches years ago and thought it was the most evil torture ever! I now shave my leg, and Lidoderm is the #1 way I reduce the pain when I am active or having a flare up. Taking Opiods and morphine over a few months will increase your pain levels and anxiety which will cause you even more pain. Stay away from Opiods and Morphine on a daily basis, save these for the flare ups. If you tried everything and nothing works, there are 2-3 clinics around the world that have intensive programs to manage your life with pain. The Pain level is reduced to a tolerable level, it works, and works well. I can't post links yet. but search on the Cleveland Clinic, Chronic Pain Rehabilitation Program. If you want a chance of getting back control of your life, this is the program. 5 days a week 8 hours a day under direct doctor care. Mayo Clinic, and there is one in Indiana. The American Chronic Pain Association was founded by patients of the CCF program. They have meetings in cities all over the world. This week I go to the peripheral nerve center at the Cleveland Clinic. Like the doctor said above the injection removed a lot of the pain. Fingers crossed I can get perminate relief. Get out of the house, move around, do something fun. Agoraphobia and Social Phobia run rampant with MP. It hurts to move, and if I move for too long it gets worse.. so Getting trapped in so much pain out in public scares the crap out of people with MP. Rob. |
||
Reply With Quote |
06-13-2013, 02:43 AM | #3 | ||
|
|||
Senior Member
|
Quote:
|
||
Reply With Quote |
03-02-2015, 10:50 PM | #4 | ||
|
|||
New Member
|
Hi All,
After being diagnosed with MP early 2014, I realised that I first experienced it back in 2005. It only happened once in a while, but then in late 2013/early 2014 the MP pain became so regular and unbearable, that I went to my GP who sent me to get an Ultrasound guided cortisone injection of the lateral femoral cutaneous nerve in my right hip. Unfortunately I experience pain in both thighs while sleeping, but it seems it only happens when I am laying on my back. I start to get the tingling feeling in my thighs if i'm laying in bed watching TV, but will roll onto my side and the pain goes away. While i'm asleep though, I obviously have no control over how I lay, and will regularly (every second night on average) wake with excruciating pain in one/both thighs, so-much-so that I can only describe it as though someone is slicing my leg open to the bone with a blunt knife. I have had one dose of cortisone in my right hip, and two in my left, with noticeable improvement for short to medium duration (2-6 months). I am actually going to see my GP tonight for another issue, but will be asking for another referral to get the guided cortisone injection in my right hip again as I have recently been experiencing severe pain again. There was very little information about this condition available (or provided by my doctors), so this forum was quite encouraging to find. One thing that I will be hoping to improve is my weight, as everything I read says that obesity and tight belts/clothing contributes to the condition. Unfortunately, I can't avoid wearing belts due to my work attire, so I hope that working towards losing 20kg (45lbs) will help reduce the MP. I have been on Lyrica & Endep, along with anti-inflammatories, which doesn't seem to have helped, so I'm wondering if there are any other suggestions (aside from weight loss, nerve blocking injections & medication) that anyone might have? Also, does anyone else only experience MP pain when laying on their backs? |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Hi! I'm tired hurting!!!!! | New Member Introductions | |||
New to NeuroTalk and hurting! | Fibromyalgia and Chronic Fatigue | |||
New to NeuroTalk and hurting! | New Member Introductions | |||
Is pain hurting more with RSD? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Hurting for my daughter | Spinal Disorders & Back Pain |