advertisement
Reply
 
Thread Tools Display Modes
Old 11-23-2006, 10:11 AM #1
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
Default Anyone with Meraliga Paresthetica?

Happy Thanksgiving to everyone. I made a list of of the things I am thankful last evening. One thing on my list is NeuroTalk and the people who support and contribute so much to the success of this site.

There has not been many posts to this site so I was wondering if there may not be many people on NeruoTalk who have MP. I thought I would ask the question and see if there are more of you out there.

I tried my first Lyrica (75 mg.) yesterday. It was in place of gabapentin I normally take. However it was delayed in shippment as a refill and I had a sample / starter pack of Lyrica. I was reluctant to use Lyrica because I have read over and over about the side effect - weight gain. (I also have read many people find side effects of Gabapentin too. I feel it has caused weith gain in me too.) I will say the Lyrica did help my for 12 hrs I had less pain. I did not feel any side effects. However, for now I am going back to Gabapentin now my refill arrived late, late yesterday. I know you should not change meds quickly but I also was out of my gabapentin and had to take Lyrica in place of.

Lyrica did not help my sensititivy to touch maybe it doesn't or maybe you need to be on the pill longer.

For any of you who have sensitivity to touch from nerve damage, MP. I saw a wire frame you can use in a bed that holds the covers up off your feet. Now my feet are not nerve damaged but I was thinking this type of frame would be a possiblity to use for sentitivity to touch from bed sheets and bed covers for the thigh/leg.. I am thinking of ordering it. Just a thought of getting some relief and maybe it would work for others. Also some handy people could probably make something like it.

Take Care
lookingup58 is offline   Reply With QuoteReply With Quote
Old 12-12-2006, 02:58 PM #2
jeanette jeanette is offline
New Member
 
Join Date: Dec 2006
Posts: 3
15 yr Member
jeanette jeanette is offline
New Member
 
Join Date: Dec 2006
Posts: 3
15 yr Member
Smile

hi i got mp in june as a result of surgery.i have been in immense pain and i am still looking for answers from the hospital.i am under the care of a pin clinic and feel very miserable.i am taking gabapentin and a couple of weeks ago had asteriod injection. i have since been given skin patches to place on my thigh.how did u get mp.
jeanette is offline   Reply With QuoteReply With Quote
Old 01-01-2007, 10:09 AM #3
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
Default jeanette

Quote:
Originally Posted by jeanette View Post
hi i got mp in june as a result of surgery.i have been in immense pain and i am still looking for answers from the hospital.i am under the care of a pin clinic and feel very miserable.i am taking gabapentin and a couple of weeks ago had asteriod injection. i have since been given skin patches to place on my thigh.how did u get mp.
Sorry I did not relpy to your post sooner. I have a relative with health problems and it has been busy for some time.
I am not sure how I got MP. I had pain in my back and groin area and it was followed by MP very painful, I started to pass out. That has been at least 2 yrs now. I do not know if my back problems contributed to MP or not. I did sleep on 2 chairs in a hospital while staying with a family member very uncomfortable position. I also have weight I need to loose. So the doctors are not certain how I got MP. I do not have the horrific pain I did in the beginning. I am taking Neurontin and Relefin (sorry if sp wrong) and wear the patch for nerve pain in my left thigh. Hope you get to read this. Take care!
lookingup58 is offline   Reply With QuoteReply With Quote
Old 01-01-2007, 11:19 AM #4
painfree painfree is offline
Junior Member
 
Join Date: Sep 2006
Posts: 65
15 yr Member
painfree painfree is offline
Junior Member
 
Join Date: Sep 2006
Posts: 65
15 yr Member
Default

Meralgia Paresthetica can be the result of Myofascial trigger points (knots) in specific muscles especially Tensor fasciae latae, Sartorius and psoas/Iliopsoas - which also causes back pain. Tense bands in the paraspinal muscles may also play a role.

You can learn to self treat these muscles.

Side bar restrictive clothing and weight gain are two common reasons for pressure on the below noted nerves.

However, go to a Doctor and review your symptoms and get a professional medical examination and opinion. Your health is too important not to review with a qualified medical professional.

The numbness/pain of MP may be symptomatic of the muscle entrapment of the femoral, lateral femoral cutaneous, and the femoral branch of the genitofemoral nerves which, may occur in the lacuma musculorum beneath the inguinal ligament, as nerves exit the pelvis through a narrow lacunain “opening” in the company of the ilipsoas muscle. The genitofemoral nerve regularly penetrates, and the iliohypogastric and ilioinguinal nerves occasionally penetrate the psoas major muscle as they emerge from the lumbar plexus.

These trigger points can be deactivated by direct digital (finger) compression of the trigger point(s) in the affected muscle(s) followed by appropriate stretch. The Sartorius responds better to a cross fibber technique. You can learn to self treat these muscles. Look up books on treating Myofascial trigger points.

Trigger points cause the muscle to become shorter and tighter. This limits the function and mobility of the muscle which causes weakness, decreased circulation and pain. When injured, most tissues heal, but muscles learn they learn to avoid pain. This muscle memory can produce unexpected pain even years after an injury has occurred, especially during times of physical and emotional stress.

Take a look at the noted muscles and referred pain patterns at this link:
http://www.triggerpoints.net/_sgg/m2m2_1.htm
painfree is offline   Reply With QuoteReply With Quote
Old 01-30-2007, 12:11 PM #5
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
Default

Thanks Painfree

I came back and read your post again and looked up the web address you suggested also. You mention going to a doctor to review my symptoms and to get a qualifed medical professional. What speciality should the doctor have? I have an orthopedic dr and see my newer rheumtology dr every several months. (he feels I have fibromyalgia and osteoarthris and MP). My general MD does not know much at all about MP. I also saw a neurologist several yrs ago he agreeded it was MP. They suggest weight loss and I think it would help. Back about 2 yrs ago I had a good pain doctor as far as giving shots (which I do not want any more of if I can tolerate the pain when it peaks.)
I agree what you say about trigger points and deactivating the compression point I just am not sure I know how to do it. I do believe it could learn to do it and I do not want my muscles to shrink.
Let me know what type of doctor should be able to help. Maybe I already have him it is just getting the person that can teach me to do this. Maybe it is a book I need to get and read to learn for myself.
Look forward to hearing from you.
Thanks for your reply.
lookingup58 is offline   Reply With QuoteReply With Quote
Old 01-31-2007, 03:13 PM #6
Edouin's Avatar
Edouin Edouin is offline
Junior Member
 
Join Date: Jan 2007
Location: Fort Saskatchewan, Alberta, Canada
Posts: 6
15 yr Member
Edouin Edouin is offline
Junior Member
Edouin's Avatar
 
Join Date: Jan 2007
Location: Fort Saskatchewan, Alberta, Canada
Posts: 6
15 yr Member
Default

My MP is a result of a lower back injury, possibly causing a nerve impingement somewhere between the lower spine and the Pelvic Girdle area. Local pain blocks directly in the pelvic girdle (with 8 inch needles *yuch*) proved to be an excellent method to stop pain in the leg, however only lasts about 2-4 hours for each treatment.

I have seen a Plastic Surgeon, as they are the specialists that deal with any type of "Nerve repair/surgury" upon recommendation of my Neurologist. Currently, I am under the care of a anestheseologist at a Pain Clinic at our local University Hospital. He is responsible for maintaining contact with me and programming which combination of drugs is the best for combatting the pain that I am in. I also see a psychologist to work on methods to control, manage and work thru pain breakthroughs and constant background pain.

Unfortunately, all in all, my GP appears to have the final word on my daily care, and does not always agree with the specialists at the Pain Clinic, having twice veto'ed their recommendations for various drug therapies.

Hope this gives you an idea which doctors I have seen.
__________________

.
I've had MP since spring 1997, but was misdiagnosed as a psychological problem until seeing a Neurologist who properly diagnosed the condition. Until last year, was on 2400Mg Gabapentin (Neurontin) per day, with a side dish of Effexor and and Risperdal to round up my daily intake. Strong Pain Attacks has resulted in severe Reflux and lower trach muscle herniation. I am now taking Lyrica at a much lower dose than the Gabapentin, however still have no pain control over "breakthroughs".
Edouin is offline   Reply With QuoteReply With Quote
Old 06-06-2007, 11:41 AM #7
Czar's Avatar
Czar Czar is offline
New Member
 
Join Date: May 2007
Location: Gaithersburg, MD
Posts: 5
15 yr Member
Czar Czar is offline
New Member
Czar's Avatar
 
Join Date: May 2007
Location: Gaithersburg, MD
Posts: 5
15 yr Member
Default No longer just the Czar of pain, now the Czar of hope!

[QUOTE=painfree;54763]Meralgia Paresthetica can be the result of Myofascial trigger points (knots) in specific muscles especially Tensor fasciae latae, Sartorius and psoas/Iliopsoas - which also causes back pain. Tense bands in the paraspinal muscles may also play a role.[QUOTEpainfree;54763]

Muscles? Doc told me (new pain doc) there is a tunnel where the nerves run through the outside of the pelvis this is blocked (by weight in my case). It can have other causes but he said manipulating the muscles was absurd that if it worked it was a cause other then Meralgia Paresthetica. Only a steady dose of Tegretol plus Lyrica will relive most of the symptoms; most often surgery is the only way to actually alleviate all of the pain impulses.

For 4 days, I have been taking a cocktail of Lyrica 75mg 4 times a day plus 200 mg of tegretol two times a day and one 750mg Hydrocodone two times a day if needed. I am down to half two times a day as of yesterday. Which was the best day I have had in years… jeeze a doctor that knows what he is doing!

Yesterday my car broke down I had to walk a half a mile took me an hour resting every so often, but NO SPIKES, pain yes but no electrical SPIKES. Furthest I have walked in 10 years. After I got the car home, I was able to work on it myself and fix it sitting on a stool. My God, I am functioning, a little tired, a little buzzed but functioning. Today I am hurting a bit but tolerable, going to try an get a job I think.

No longer just the Czar of pain, now the Czar of hope!
Czar is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 09:45 AM #8
towie towie is offline
Junior Member
 
Join Date: Feb 2007
Posts: 24
15 yr Member
towie towie is offline
Junior Member
 
Join Date: Feb 2007
Posts: 24
15 yr Member
Default

Czar that is fantastic you found a doctor that was able to help you to function again. I have tried a couple of different medications but found topamax and cymbalta together work well for me. I still get sore when I do too much but it is much better than the pain I was getting everyday. I go back to my neurologist in July and he said he is going to try to cut back the topamax. But I really don't see that happening. As for the trigger points, when my leg is really sore, I will rub it and it does ease the pain. Would I rely on that solely? no. I also found heat helps it. When my leg gets cold, the numbed area gets really sore. I will either turn a space heater on or put a heating pad on it and it helps.

Well, Here's to the Czar of Hope and the continuation of no more pain. Take Care!
towie is offline   Reply With QuoteReply With Quote
Old 06-07-2007, 10:01 AM #9
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
lookingup58 lookingup58 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 39
15 yr Member
Default

Czar
Happy to hear you are able to do more and your pain is less. It is a good feeling when you can walk and your MP is under control. I am happy for you. Keep us posted on how you are doing.
All good thoughts are with you.
Lookinup58
lookingup58 is offline   Reply With QuoteReply With Quote
Old 02-11-2007, 09:09 PM #10
towie towie is offline
Junior Member
 
Join Date: Feb 2007
Posts: 24
15 yr Member
towie towie is offline
Junior Member
 
Join Date: Feb 2007
Posts: 24
15 yr Member
Default

I had laparoscopic gallbladder surgery in July after which my right leg was numb. The surgeon said it had nothing to do with my surgery. My primary doctor told me it was shingles (no blisters). 6 months later I went to a neurologist who told me it was meralgia paresthetica. He gave me a shot in my groin area which helped for 1 day. When the numbness wore off the pain was worse. I am taking neurotin which I feel doesn't help. I have been on it only 2 weeks now and am ready to increase the dose to 900mg- 3 times daily. I feel as if the cold weather makes it hurt even more. I also feel that when I have to go to the bathroom (BM) the pain increases until I go. Does this happen to anyone else?
towie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:12 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.