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10-22-2007, 01:52 PM
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New Member
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Recently diagnosed with a metabolic myopathy. The rheumatologist's comment was "there's no cure or treatment, so it dosen't matter what kind you have". ???!!!
After reading more about the types, it seems like it's important to know which type you have. Can anyone help me with this? How do I push the Dr. to go further with the diagnosis? Can the type be determined with a blood test, or only a muscle biopsy? From what I've read, it's probably CPT or McArdles. Thanks for your help. |
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11-09-2007, 05:52 AM
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#2 | ||
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New Member
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I'm new, I suffer from mitochondrial cytopathy (myopathy?). I think my mother siad its respiratory chain deficiency type 2 & 4...but don't quote me on that. Never really cared much in the past exactly waht was wrong - I know what I can and can't do, when I ache and hurt, so why bother with details? I think now I want to know a bit more, and just be with like-minded people. It can be hard having something rare - people stare at me blankly when I explain what's wrong with me. Didn't realise exactly how rare it was!
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Metabolic myopathy??
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