Because you said your initial ET diagnosis came from a neurologist, and your upcoming appt is with another neuro, please follow through with it. I personally found them to be the best at pinpointing, proving, and successfully treating my ET.

Lasr August, family and staff noticed my ET while I was in a nursing home for about 5 weeks. I'd gone there directly from the hospital, where I had been for 15 days. In the hospital, I had been on a continuous morphine drip, with morphine shots every two hours. They also used add'l pain control meds, because of my extreme pain. I only had a few ET onsets, mostly in my hands/arms. My med orders didn't make it to the nursing home, or were more than they were qualified to administer.

Initially, I got only MSContin every 12 hrs and vitamins. ETs were more frequent and now included my legs. They literally raised off the bed and flailed violently in the air. Staff yelled at me to stop doing that, which of course I couldn't. Eventually, their Dr added 5mg of of Roxycodone every 4hrs. When I went home, ETs involved my entire body, and occurred daily.

No one sleeps in a nursing home; I slept for nearly 3 days solid when I got home. Then, I went to a pain Dr. He put me on reasonable pain meds (he thought) and actually saw a fullblown ET while I was there. He thought they would stop when the pain was under control, again. I still had full-body ETs, not as severe or daily, at times when the pain was too much and now when I was tired. He increased the pain meds much more. Still full-body, lessoned more (still at least 3/wk). Pain, tired, and now stress (like my nephew's murder) caused them. A tad increase in pain meds, and addition of clonazepam. Actually went 2 weeks without 1, but mostly 1-2/wk.

Off to my neurologist, and I conveniently had a bad ET- he hurt my back during his routine exam (wasn't used to all its compression fractures, severe arthritis in a variety of flavors, early on). He added propanolol in a fairly healthy dose. Pretty much stopped them. I can still get them, but we use additional clonazepam and valium during one to gently stop it. I had a fairly violent one during an EMG by my neurologist 8 days ago, but he actually talked me out of it with an all-but standup comedic performance for about 15 minutes after the test was over. I think he really could give up his day job, but I sure hope he doesn't!

The short answer after the long explanation is that I certainly think that ET can come and go. You mentioned starting a medication. maybe it's your version of my initial clonazepam? My life is ever so much better now that mine are rare. They are always unpleasant, but my experience proved they could do me in for days. I was very glad to get them confirmed, and now consider them all but a done deal.

Sorry this is so long. Writing for me is therapeutic, today. Did you have a chance to check out the Essential Tremor site from my link? You'll read about how bad they can really get. Scary, painful things. I was lucky to start and reach control in 6 months. I have learned, however, that may change tomorrow. Hope this helps.

PS - see if you can identify "triggers" when yours start again (like my pain, tired, stress). Or, see if you can remember what was going on when they happened in the past. This can help the Neurologist with what to prescribe.

Thank you for the information.
It seems there are a lot of unusual neurological symtpoms that go undiagnoses, at least from what I read on here.

It is interesting to me that my symptoms improved immediately after a CT scan for an unrelated condition. Maybe all that radioactive iodine helped somehow. In fact I have had very minimal tremors since the CT scan and they improved immediately afterwards.
The head bobbing had been so severe that I got public comments and stares about it.

My thyroid results btw were normal prior to all the CT, but since thyroid is usually associated with iodine and tremors and other neuro symptoms related to hyper and hypothryroid ism I wonder if there might be a connection.

Has anyone had ET start in leg as an internal tremor, then to hand & arm (still an internal tremor)? Upon wakening in early morning also in chest & stomach?

Mine is not only with action, also when first lay down, then subsides.

Any info appreciated.

Confused & Worried.