Originally Posted by mamagoo

well, had the c spine mri this afternoon. Saw PCP after, she went over the results of labs done in Omaha and discovered the "red blood cell" every type of test related to them to be sky high... so since I had to quit donating blood to the red cross "just until this with your leg is taken care of".. I gave a pint of blood to the trash today. I suggested they see if the lab tech dept at U of NE at Kearney might want it to have students run tests on. Since one of the tests that have been ran is for HIV and it was negative the blood would be clean. They could have fun testing it for all the different drugs in my system LOL
Had a meeting of the mind and played a bit of lets make a deal w/PCP... she agreed that dumb to wait another month and then have Dr Torres ship me on to Mayo that would be better to get it done now. Told her that if this is going to be permanent then want to look into having nerve root injected with botox to kill it off so I can learn to walk with the muscle I can control in my leg. Her reply to that was i would have to talk to someone "higher" than her to get something like that done. She is going to burn a cd with my mri films and send them off to Omaha to movement disorder doc so he can have someone else look to see what is there. I went armed with information from here an "we move" site. including a chart that shows where in spine nerve root for what is going on with my leg came from. Told her you can see it is something that has happened between L3 and L5. She did cut back the drug that I was put on to counteract the side effect of one of the other drugs to PRN. So one less pill to take in the mornings. Unless I wake up with balloons for feet.
They will let me know after get blood results back on red counts today when I go back for another donation of pint of blood to the trash.

Originally Posted by mamagoo

well, had the c spine mri this afternoon. Saw PCP after, she went over the results of labs done in Omaha and discovered the "red blood cell" every type of test related to them to be sky high... so since I had to quit donating blood to the red cross "just until this with your leg is taken care of".. I gave a pint of blood to the trash today. I suggested they see if the lab tech dept at U of NE at Kearney might want it to have students run tests on. Since one of the tests that have been ran is for HIV and it was negative the blood would be clean. They could have fun testing it for all the different drugs in my system LOL
Had a meeting of the mind and played a bit of lets make a deal w/PCP... she agreed that dumb to wait another month and then have Dr Torres ship me on to Mayo that would be better to get it done now. Told her that if this is going to be permanent then want to look into having nerve root injected with botox to kill it off so I can learn to walk with the muscle I can control in my leg. Her reply to that was i would have to talk to someone "higher" than her to get something like that done. She is going to burn a cd with my mri films and send them off to Omaha to movement disorder doc so he can have someone else look to see what is there. I went armed with information from here an "we move" site. including a chart that shows where in spine nerve root for what is going on with my leg came from. Told her you can see it is something that has happened between L3 and L5. She did cut back the drug that I was put on to counteract the side effect of one of the other drugs to PRN. So one less pill to take in the mornings. Unless I wake up with balloons for feet.
They will let me know after get blood results back on red counts today when I go back for another donation of pint of blood to the trash.

Originally Posted by Jerky

I hurt my back and was told I had 5 bulging disk L1 through L5. After 2 months of bed rest with no luck and still having pain in lower back and down left leg was told I needed to get an epidural to help with the pain.
The first epidural reduced the pain in the leg by 50% but did not help in the lower back. I was then given a second epidural and it was painful. I was told to stay off my feet for 48 hours and did so except to use the restroom. 30 min after getting up on the third day I started to jerk in my lower back. My back was pulling in toward my stomach. It has progressive got worst as time went by, now 6 months. The only way I can get it to stop is to lay flat on my back for a period of time. The longer I am up and put pressure on my lower spine the worst it gets and the longer it takes to get it stopped by laying flat.

Have seen several Drs and told everything from caused by stress to it being Myoclonic jerking. But none of them know what caused it or what to do about it. The jerking will even start while sleeping if I roll on my side and but pressure on my lower back.

Can anyone but some light on this or had similar condition after an epidural.

Originally Posted by Jerky

Well almost 18 months after I got the epidural I finally have the answer. I do not think for a minute that the 16 doctors I have seen did not all know the answer but rather did not want to tell me what was wrong due to the fact that they did not want to be in a malpractice suit against one of their brothers. I just was diagnosed with a tear/hole in a disc that is leaking spinal fluid. I have been told that it is leaking onto a root nerve which looks damaged also. They say when spinal fluid hits other nerves it causes them to reach with sever pain and kind of short out. This explains my pain increasing and the uncontrollable jerking. Check out this website if after a epidural you have complications. chirogeek com/000_Anular_Tear_1.htm[/url]) At least now I have an answer to it all

Originally Posted by Jerky

Well almost 18 months after I got the epidural I finally have the answer. I do not think for a minute that the 16 doctors I have seen did not all know the answer but rather did not want to tell me what was wrong due to the fact that they did not want to be in a malpractice suit against one of their brothers. I just was diagnosed with a tear/hole in a disc that is leaking spinal fluid. I have been told that it is leaking onto a root nerve which looks damaged also. They say when spinal fluid hits other nerves it causes them to reach with sever pain and kind of short out. This explains my pain increasing and the uncontrollable jerking. Check out this website if after a epidural you have complications. chirogeek com/000_Anular_Tear_1.htm[/url]) At least now I have an answer to it all

Jerky

Originally Posted by Kellysmom

My son has been going thru this same experience...two years ago he had an ESI and has had uncontrollable pain and spasms in his leg and buttocks ever since...we went to the Mayo in MN and they had no clue what was wrong.
Please let me know how you are doing and how did they diagnose that you had a tear?
I pray that you will respomd and are still on these boards

Originally Posted by Jerky

Well I have had back surgery since then and they were supposed to have sealed the tear in the disk that was leaking spinal fluid. They did tell me that they could not fix the damage that was done to the root nerve by the epidural, but thought that stopping the spinal fluid from leaking on it could stop the uncontrollable jerking. After surgery I do not jerk as bad or as fast as I did before. Prior to surgery I would start jerking in 15 min or so after getting up off my back. Now it is a few hours before it starts and it is not as hard as prior to surgery. I do not know if they stopped the leak all the way or not or if the jerking is still caused by preasure being put on the damage root nerve. Hope this helps some and I know your frustration... Doctors just do not want to find things untill the 18 months are over so they can not be involved in a law suite.