Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 06-16-2011, 12:17 PM #1
d0gma d0gma is offline
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Join Date: May 2011
Location: west coast ca
Posts: 128
10 yr Member
d0gma d0gma is offline
Member
 
Join Date: May 2011
Location: west coast ca
Posts: 128
10 yr Member
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I'm a newbie and angry about your refusal for treatment. I too have been turned down even after being seen by neuro's. I'm kind of learning about this idiotic stuff the hard way. (i just learned i don't have pd after 10 years) Did they give a reason for saying they had nothing to offer? or you just weren't interesting enough, not publish-worthy, or research dollar generating?

I am very sorry to hear you were refused and incensed for you too. It makes me wonder what health care is coming to if docs can pick and choose patients based on the ones they deign to treat that will ensure their success or secure fellowships/grants/seats whatever. Our money is all still printed with the same ink.

I know there are still ethical caring docs out there and I hope you find one soon. This situation is ludicrous. Maybe enough positive thoughts coming your way will bring a better result for you in your quest. You have mine.

Quote:
Originally Posted by mamagoo View Post
Got a copy of the letter that Mayo Clinic movement disorder dept sent to Dr Torres at UNMC omaha about his referral of me to them... they said basically in plain English... NO we cannot offer her anything that might help!! They have no more testing and/or treatments that will be "beneficial" to her care.

Hey.... guess time to get to the laughs... huh...have you ever been slapped in the face by something as big as the MAYO CLINIC???? Well now I can say I have... guess they must not be as smart up there in Rochester and they profess to be and they sure dont know me very well.. God has brought me to this and he will get me through it also!!

or guess I will look for a winery that needs a grape smasher.... or hey I could become the female Elvis I sure have the shaky leg down pat
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