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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS). |
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02-12-2007, 04:03 PM | #1 | ||
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I am interested in learning more about DBS, but most of the info on-line addresses the procedure itself. I would like to know: How do Dr's determine whether you are a suitable candidate for DBS? Also, what type of recovery time is involved after before you return to "normal" (working, etc).
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02-14-2007, 03:19 PM | #2 | |||
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hi nhtom
here is some more about the DBS from the Cleveland Clinic, who would likely be the best source to answer your questions http://cms.clevelandclinic.org/neuro...FQWMgAodgX79fQ
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03-08-2007, 07:22 PM | #3 | |||
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Legendary
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There was an interesting story on our Australian TV last night. The show was on Catalyst which is on the ABC (Aust. Broadcasting Corporation) about a young man with generalized dystonia. The footage of him before and after was just amazing. He can now ride a bike and kick a football and even walk long distances. Before that he was having a very difficult time indeed just doing anything. In this story there was a time lapse after the actual surgery before the stimulator was switched on. I think this was one of the first actual cases of using DBS for a patient with Dystonia in Australia. I'm aware that the US is a long way more advanced, but still thought this article might be of benefit.
Catalyst > Stories > Deep Brain Stimulation This is just the transcript... Deep Brain Stimulation Reporter: Dr Maryanne demasi 8 March 2007 http://www.bananasinpyjamas.com/cata...s/s1864329.htm There is also the Dystonia Foundation site which might have articles in it that can answer your concerns as well. http://www.dystonia-foundation.org/ e.g. http://www.dystonia-foundation.org/p.../221.php?id=14 From the Dystonia Dialogue: Deep Brain Stimulation for Dystonia By Jawad A. Bajwa, MD, Benjamin L. Walter, MD, and Jerrold L. Vitek, MD, PhD Neuroscience Institute, Cleveland Clinic topics covered include these below (there are more) .... What is DBS? What Types of Dystonia Can DBS Improve? Which Patients Are Eligible & What Is the Selection Process? What Should One Expect Before & After Surgery? |
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10-20-2008, 08:32 PM | #4 | ||
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12-28-2008, 05:53 PM | #5 | ||
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Please tell me more about the DBS. I'm going to have it in January. Did you have your head shaved?.. Did your Dr. tell you how long the DBS lasts?What were your symtoms before you had it done and are they gone now? Thanks Ruby
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01-14-2009, 04:55 AM | #6 | ||
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Great Carol.
Would you please tell me/us if you suffer DYT1+ gene generalized dystonia? I suffer this and I d love to know if it works. I am very happy for your results. It will give a lot of hope to many of us !! Quote:
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02-02-2009, 05:54 AM | #7 | ||
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