Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 07-26-2011, 10:39 AM #1
Sophiebrain Sophiebrain is offline
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Join Date: Jul 2011
Location: the Netherlands
Posts: 10
10 yr Member
Sophiebrain Sophiebrain is offline
Junior Member
 
Join Date: Jul 2011
Location: the Netherlands
Posts: 10
10 yr Member
Default Me and my brain

Hi!

I’m Sophie, 28 years old and from the North of the Netherlands. I live here with my dog Casper at edge of a small town. Maybe it is a quiet life, but definitely not normal...

In 2005 I was working at a great company, I designed playgrounds and the play-equipment that are going with it, and I loved it. In the mean while I was working myself through the last year of my Bachelor degree as an Industrial Designer.

I had great plans, hopes and ideas for the future. But it all went the other way when I got sick at the end of 2005. In a half-year I developed all kinds of neurological problems. My body didn’t do what I wanted any more.

Now 5,5 year later it still doesn’t do what I want and it’s getting worse.

I have problems with controlling my muscles, I have spasms, tremors and cramps. This leads to pain, being very tired and thing like having troubles reading. It's like having a short-circuit in your brain. I’m super sensitive of sounds, light, movement and touch. They call it a: conversion disorder or a neurological movement disorder.

But in the meanwhile I’m just the same as any other person, with the same kind of feelings, dreams and faults. Something is wrong in my brain but I’m not crazy.
(Sometimes a bit weird and philosophical, but that’s just me!)

So why not share the things I do, think about and feel. Maybe I can meet other people this way with the same kind of problems or other interesting life stories.

Bye for now, Sophie

By the way; Sophie is not my real name, just as some other names in my blogs. This is because of privacy reasons. But my life and stories are real.
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