Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 04-21-2013, 01:37 PM #1
americaninberlin88 americaninberlin88 is offline
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americaninberlin88 americaninberlin88 is offline
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Default Just seeing this now

Quote:
Originally Posted by earmom View Post
update for PM: research FCR, functional cranial release. Dr. John Lieurance works on all movement disorders and he actually got the clicking to stop!!!!! My son still has pain and we are working on that but it is 100% better than before now that the clicking has subsided. He still gets clicking but only when he swallows, sneezes or yawns. No more constant over 100 clicks per minute in each ear. One LARGE step in the right direction. No drugs...please check it out. Also we recently became aware of a large group of PM suffers on FaceBook. Check it out.
Hi earmom!
Thank you for sharing your story. I am so glad you found a treatment for the clicking, although I can't imagine how it would be to also have pain. I am lucky not to have anything but clicking and a feeling of movement in my mouth. I hope your son can find relief. I will definitely check out the Facebook group and the FCR and see if it will work for me.
- Alyson
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Old 08-11-2015, 05:34 PM #2
J.J. Collins J.J. Collins is offline
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Default Possible solution?

I have been meaning to post this information somewhere for a while because I feel kind of bad knowing I may have stumbled across something that has cured my palatal myoclonus and I have just been too lazy to share it.

I have bad flare ups of spasming in my soft palate, sometimes clicking 50 times a minute. It makes my throat hurt and I get to the point where I can hardly talk. It is exacerbated when I am under a lot of stress. This actually led to my solution. A friend of mine recommended L-theanine for my anxiety and I took her advice. After taking it regularly for a couple of days, I noticed that my clicking wasn't as bad. It eventually went away completely. Now, whenever I start to "click", I just start taking the L-theanine and within hours to a day, it is gone.

I don't know if this would work for anyone else, but I wanted to share in case it was helpful. I don't sell it and I don't benefit from you buying it from your local health food store. My only purpose for posting this is to maybe help someone else because I know how miserable this condition is and I actually accidentally found something that truly works for me.
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"Thanks for this!" says:
EnglishDave (08-12-2015)
Old 08-12-2015, 05:39 PM #3
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Hi J.J.

That is great news you have found something that works so well for you, I am glad you are getting this relief.

Thank you for being so altruistic and thinking of those who will come after while you make this Post.

Dave.
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