Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 04-21-2013, 01:41 PM #11
americaninberlin88 americaninberlin88 is offline
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americaninberlin88 americaninberlin88 is offline
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Quote:
Originally Posted by Myoklonie View Post
Hallo,
entschuldigen Sie bitte, dass ich nicht auf ihre Fragen reagiert habe.
Ich habe diese Seite lange nicht besucht.
Ich bin zur Zeit im Krankenhaus und wir werden die Tubenmuskulatur entfernen.
Das Valproin hat eine leicht positive Wirkung gehabt.
Ich habe vor ca 6 Wochen 30 U Botox gespritzt bekommen.
Es hat das Geräusch tatsächlich viel leiser gemacht.
Das Botox sollte nur von einem erfahrenen Arzt gespritzt werden.
Fahren Sie nach Göttingen oder nach München Neurootologie.
Es gibt nur wenige Ärzte mit Erfahrung auf diesem Gebiet.
Die Autophonie ist immer mal mehr und mal weniger.
Ein MRT, Lumbalpunktion etc. habe ich gehabt.

Die Ursache wurde nicht gefunden.
Schade, dass es dazu kommen musste! Aber wenn es Ihnen hilft, dann ist es vielleicht auch gut so. Wie geht es Ihnen jetzt? Das Botox lehne ich immerhin ab, da ich die Muskulatur im Mund zum Singen brauche. MRT hatte bei mir aber schon eine mögliche Ursache gefunden. Meine Arteria basilaris (ein Gefäß im Gehirnstamm) ist gebogen und es soll gerade sein. Das Bogen druckt dann auf die Nerven, die meine weiche Gaumsegel und Halsmuskulatur kontrolliert und daher kommt das Problem. Es wird aber alles nur vermutet!
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Old 08-11-2015, 05:34 PM #12
J.J. Collins J.J. Collins is offline
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Default Possible solution?

I have been meaning to post this information somewhere for a while because I feel kind of bad knowing I may have stumbled across something that has cured my palatal myoclonus and I have just been too lazy to share it.

I have bad flare ups of spasming in my soft palate, sometimes clicking 50 times a minute. It makes my throat hurt and I get to the point where I can hardly talk. It is exacerbated when I am under a lot of stress. This actually led to my solution. A friend of mine recommended L-theanine for my anxiety and I took her advice. After taking it regularly for a couple of days, I noticed that my clicking wasn't as bad. It eventually went away completely. Now, whenever I start to "click", I just start taking the L-theanine and within hours to a day, it is gone.

I don't know if this would work for anyone else, but I wanted to share in case it was helpful. I don't sell it and I don't benefit from you buying it from your local health food store. My only purpose for posting this is to maybe help someone else because I know how miserable this condition is and I actually accidentally found something that truly works for me.
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"Thanks for this!" says:
EnglishDave (08-12-2015)
Old 08-12-2015, 05:39 PM #13
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Hi J.J.

That is great news you have found something that works so well for you, I am glad you are getting this relief.

Thank you for being so altruistic and thinking of those who will come after while you make this Post.

Dave.
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