Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 12-30-2012, 11:57 PM #3
americaninberlin88 americaninberlin88 is offline
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Join Date: Oct 2012
Location: Berlin, Germany
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americaninberlin88 americaninberlin88 is offline
Junior Member
 
Join Date: Oct 2012
Location: Berlin, Germany
Posts: 6
10 yr Member
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Quote:
Originally Posted by Myoklonie View Post
Hello,

I am sorry but my english grammar is not perfect.Im living in germany and I had middle ear myoklonie since 6 months . Both tendon are cut tympani and m. stapedius.
Now I get Botox in my soft palat because of pallatal tremor.
I have a high frequent clicking in my right ear. And I have Autophonie
I get now Valproin Drugs 1000 mg a day
Please contact me
best regards
Sprechen Sie dann Deutsch? Wie ist Ihre Erfahrung mit Botox? Meine HNO-Arzt hat es mit angeboten, aber da ich Hobby-Sängerin bin und es meine Stimme stark verändern kann, habe ich dagegen entschieden. Wie ist Ihre Erfahrung mit Valproin? Wo in Deutschland wohnen Sie? Ich habe auch manchmal Autophonie, was von meiner starken Tubenfunktionsstörung kommt. Manchmal öffnen meine eustachische Röhre zu viel oder zu lange, was zu der Autophonie führt, aber meistens öffnen die nicht wenn die öffnen sollen, z.B. im Flugzeug. Deshalb habe ich seit August Luftröhrchen in beide Ohren. Haben Sie schon wegen der Gaumensegelmyoklonus ein MRT gehabt?
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