update for PM: research FCR, functional cranial release. Dr. John Lieurance works on all movement disorders and he actually got the clicking to stop!!!!! My son still has pain and we are working on that but it is 100% better than before now that the clicking has subsided. He still gets clicking but only when he swallows, sneezes or yawns. No more constant over 100 clicks per minute in each ear. One LARGE step in the right direction. No drugs...please check it out. Also we recently became aware of a large group of PM suffers on FaceBook. Check it out.

Hi earmom!
Thank you for sharing your story. I am so glad you found a treatment for the clicking, although I can't imagine how it would be to also have pain. I am lucky not to have anything but clicking and a feeling of movement in my mouth. I hope your son can find relief. I will definitely check out the Facebook group and the FCR and see if it will work for me.
- Alyson