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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS). |
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I am a 24 yr old from michigan. I was diagnosed at age 16 after showing digns at age 13. I also did not inherit it from my family. It took a few years because my primary doctor thought it was "all in my head". Finally my doctor sent me to a neurologist who kind of specialized in PKD. My symptoms would show up if I stood suddenly or was stressed. I started taking trileptal and it worked well but after I wanted to get pregnant I stopped. Well, 2 years later, I am not keeping it under control without the meds but want to take something that has little to no birth defects
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#2 | ||
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Newly Joined
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Hey guys, I apparently have this too and it seems to me that there are very few webpages for it. I mean it almost has its own two paragraph wikipedia page under a different, but close enough, name... Anyway, since there's like 0% chance of ever meeting someone else with this I'm coming here and not really expecting any replies since I'm nearly 2 years late. I'm 17
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