[Grace]

hi, Grace here. I have finally been able to see a dystonia specialist. I am so glad. He was impressive and answered all my questions and concerns by asking me about everything I had wanted to ask him. Have been given some Clonezepam to stop the symptoms. It really does help to see a specialist. Just wanted to share the good news.

[Stacy_11]

Originally Posted by Grace

hi, Grace here. I have finally been able to see a dystonia specialist. I am so glad. He was impressive and answered all my questions and concerns by asking me about everything I had wanted to ask him. Have been given some Clonezepam to stop the symptoms. It really does help to see a specialist. Just wanted to share the good news.

Hi Grace-

Did you see a movement disorder neurologist? Does the clonazepam help? I am so glad you feel better.

STacy

[Grace]

Hi, Stacy. Yes, not only a movement disorder specialist, but he has subspecialized in dystonia. Yes, the Clonezepam works, but it took a while to get the right dose. I have come a long way from being in the bed May thru half of July, before I was able to get treatment. Thank you for asking and wishing me well.
Grace

[Stacy_11]

Originally Posted by Grace

Hi, Stacy. Yes, not only a movement disorder specialist, but he has subspecialized in dystonia. Yes, the Clonezepam works, but it took a while to get the right dose. I have come a long way from being in the bed May thru half of July, before I was able to get treatment. Thank you for asking and wishing me well.
Grace

That is terrific. It took them almost 7-8 years to diagnose the dystonia...it looked like MS spasticity. I was SO HAPPY to be diagnosed w/ something real. At one point in my life I thought I would never walk again.

[Grace]

Hi, Stacy.
I diagnosed myself. My dad had dyskenesia, so when I started having symptoms, I went to my regular doctor and told hm. He agreed and sent me to the specialist.
Most days, my dystonia is under control, but then I have "bad" days. Does that happen to you? I just feel yucky and want to stay in bed.