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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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dyskenesia/distonia

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Old 09-06-2013, 01:06 PM #1
Grace Grace is offline
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Exclamation dyskenesia/distonia
hi, Grace here. I have finally been able to see a dystonia specialist. I am so glad. He was impressive and answered all my questions and concerns by asking me about everything I had wanted to ask him. Have been given some Clonezepam to stop the symptoms. It really does help to see a specialist. Just wanted to share the good news.
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Old 09-13-2013, 11:59 AM #2
Stacy_11 Stacy_11 is offline
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hi, Grace here. I have finally been able to see a dystonia specialist. I am so glad. He was impressive and answered all my questions and concerns by asking me about everything I had wanted to ask him. Have been given some Clonezepam to stop the symptoms. It really does help to see a specialist. Just wanted to share the good news.
Hi Grace-

Did you see a movement disorder neurologist? Does the clonazepam help? I am so glad you feel better.

STacy
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Old 09-13-2013, 02:46 PM #3
Grace Grace is offline
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Hi, Stacy. Yes, not only a movement disorder specialist, but he has subspecialized in dystonia. Yes, the Clonezepam works, but it took a while to get the right dose. I have come a long way from being in the bed May thru half of July, before I was able to get treatment. Thank you for asking and wishing me well.
Grace
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Old 09-13-2013, 04:02 PM #4
Stacy_11 Stacy_11 is offline
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Hi, Stacy. Yes, not only a movement disorder specialist, but he has subspecialized in dystonia. Yes, the Clonezepam works, but it took a while to get the right dose. I have come a long way from being in the bed May thru half of July, before I was able to get treatment. Thank you for asking and wishing me well.
Grace
That is terrific. It took them almost 7-8 years to diagnose the dystonia...it looked like MS spasticity. I was SO HAPPY to be diagnosed w/ something real. At one point in my life I thought I would never walk again.
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Old 09-15-2013, 12:13 PM #5
Grace Grace is offline
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Hi, Stacy.
I diagnosed myself. My dad had dyskenesia, so when I started having symptoms, I went to my regular doctor and told hm. He agreed and sent me to the specialist.
Most days, my dystonia is under control, but then I have "bad" days. Does that happen to you? I just feel yucky and want to stay in bed.
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