I strongly this is a misdiagnosis, because of the symptoms it composed itself and compared to other things that are actually going on instead. I figured this is normal, but it was appropriate for it's time, but I didn't do well on baclofen because I never have good side effects to medications in general.

Currently I think it's too random, yes it affects my movement, it affects me in the way it's no longer pain mainly. It's rather lots of pain where it's like stiff person syndrome, but unlike it because the tremors are gone, but the pain is not triggered by anything that would normally trigger someone with it. It starts in my brain it just goes as a cycle, I get very very fatigued, very ill in my intestines, the pain starts internally. My back gets hot very hot and numb, I sweat, then my brain sends a pulsing feeling of overwhelming numbness afterwards, but in between. I have my perceptions of reality distorted and more like of a severe psychosis patient and vision problems where I have double vision mostly.

The scariest symptoms that aren't stiff person. Is that, I can't move my limbs or my face or talk or breathe or do anything sometimes, because I forgot how to use my body parts? I'm completely serious, it's so bizarre it's like I'm completely unable to move, and they are usually locked in place when it happens internally massive pain happens or it's hard to breathe feeling I'm dying of an asthma attack and I don't have asthma. During this it's not like I only forgot they are like paralyzed as in they are partial kinda spastic type of paralysis. The kind where you are feeling some things, but are unable to move them and they are stuck in place in the spot they are at.

It affects anywhere on my body not just my limbs and it's terrifying. I don't believe stress, lack of sleep, food, and so on would do it in this fashion. It's not something that just seems logically to fit together.

I'm 21 and I'm not a license MD. I do know my body very well, and that's always the best advice to ask the MD better than just going off some diagnosis and hope this works.
Baclofen almost put me in a wheelchair and crippled me, it had an adverse reaction that made the numbness worse and happening all the time. It got better from some symptoms from exercise and stop taking it last june.

I did notice after that stuff I got through over a coma in nov 29th of 2013. I got this diagnosis in 2014 of march, because of brain scans and scratching of the heads of not sure yet what to do. This is how I was diagnosed by my neurologist in my local city. I'm going back, to get more brain scans, blood work and other the usual stuff, but I don't think it's parkinsons, I don't think it's paraneo, I know it's not epilepsy, I honestly don't know what it is.

I was tested for bacterial, fungal infections from my encephalitis infection that triggered this. I had lesions in my brain then and my whole brain lit up of being damaged from the disease. It caused my autoimmune response to go in a weird overdrive where it hasn't stopped since, saying I believe it's autoimmune so I'm not ruling out paraneo. It is a movement disorder, but stiff person is autoimmune as well, so they only did that to put the two and two together as a quick fix of a bunch of ideas thrown back and forth and he is a very smart guy he just is starting me out on this.

He didn't want to diagnose me with this, because he wasn't sure he doesn't give anyone this. I mean there is one other girl in my giant city 5 counties away who has this as well. One in a million of us, but at the same time. I think if they find any carcinoma, I definitely have paraneo for sure. I'm confident on that, but I do have a cyst in my jaw it' why I brought it up because I had i there for a long time according to the dentist who is taking my wisdom teeth out, but I don't believe that cyst is a cancer of any kind. Just a cluster cyst from periodontal disease.

I'm just saying if I do have any of it, and it maybe cancerous too. If so I definitely know I have a very deadly disorder on top of cancer and whatever.

I'm not all doom and gloom, I just want to know what's going on.

It gets in the way of everyday functioning I look fine, but many days I'll be crippled almost. I have to be escorted carried, or put in a wheel chair when I refuse to do so I'll sit down and let it run it's course so I can walk.

I wanted to bring this up in this forum, because I do have a movement issue of some kind and paralysis type of stuff, but I was diagnosed with this and I would like some advice on this.

My friend who is an RN I think, I don't think she's an RN maybe a doctor in the lab who do those lab works. I honestly forget, but she brought up an interesting point that disorder normally happens in middle aged people it is much more rare in people a young as 16.

I don't know, the psychosis part of it is only present at it's peak of symptoms. I do have psychosis, but it's this strange type of psychosis, that is confusing to my therapists. They know I have it, but I'm also more aware of it than mostly anyone who does have it. Like I can function interact and even though my perceptions get warped severely all the time. I can function easily like anyone else and aware of my symptoms of that. So when I brought this up a long time ago, it seemed like a mental health issue and it wasn't.

This is really a medical issue, so I wanted to make that part clear.

Sometimes it feels like I'll fall asleep in like some type of coma like I'm afraid it could go black in the room. It has done that once before almost three times on the worst attacks I had of this.

It gets progressively worse in some part of it doing that. It sorta feels like my body is dying in the sense just slowly shutting itself down in some very odd way. Even though it's not very recognizable or obvious at the moment like something that would be something fatal in about I don't know like 20 years or something. I don't know I'm just throwing numbers, but I'm not worried about that. I just wanted to make it clear what's going on.

I have a neuro appt coming up soon and a surgery for four of wisdom teeth being pulled out and a cyst removal at the same time. It's very big, I saw it on the xrays. Even though it hasn't caused discomfort, but I don't know what damage both has caused now. They are afraid that cyst getting much bigger and worse. I have been due for a wisdom teeth extraction for about 6 years now.

Hi-

Stiff Persons should only be diagnosed by a movement disorder neurologist. Is that who diagnosed you? They usually do a bunch of bizarre blood tests and a 24 hour urin collection for copper. They thought I had this....I did not. It is VERY, VERY< VERY rare.

Please see a movement disorder Neuro. PM me if you want.

HUGS!
Stacy