Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).


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Old 07-26-2011, 10:50 AM #1
Sophiebrain Sophiebrain is offline
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Hi, I have have heavy mussle spasms in my upper body, and tremors for about 5,5 years now. In Dutch they called the spasms Myoclonieen, so that probably the same as Myoclonus. (I don't have a medical dictionary here).

The diagnoses I have got is; Conversion disorder or functional neurological movement disorder. Or -We don't know-

But the strange thing is that Parkinson medication (dopamine), helps a great deal for me. I'm a riddle for the medical world, because all my symtoms don't add up and the medication isn't suppose to work.

The last neurologist advised to Botox injections in my backmuscles. I didn't got much information about it. In the Netherlands it's only used on this scale in a medical trial. So i'm curius to read more here.

But for now I first want to see how far I can get with the Parkinson medication.

Keep posting!

Sophie
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Old 07-27-2011, 08:03 PM #2
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mamagoo mamagoo is offline
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Originally Posted by Sophiebrain View Post
Hi, I have have heavy mussle spasms in my upper body, and tremors for about 5,5 years now. In Dutch they called the spasms Myoclonieen, so that probably the same as Myoclonus. (I don't have a medical dictionary here).

The diagnoses I have got is; Conversion disorder or functional neurological movement disorder. Or -We don't know-

But the strange thing is that Parkinson medication (dopamine), helps a great deal for me. I'm a riddle for the medical world, because all my symtoms don't add up and the medication isn't suppose to work.

The last neurologist advised to Botox injections in my backmuscles. I didn't got much information about it. In the Netherlands it's only used on this scale in a medical trial. So i'm curius to read more here.

But for now I first want to see how far I can get with the Parkinson medication.

Keep posting!

Sophie

Search on here for Aunt Bean... and read about her fava beans... they have worked wonders for me
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Old 07-29-2011, 02:03 AM #3
Sophiebrain Sophiebrain is offline
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Join Date: Jul 2011
Location: the Netherlands
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Sophiebrain Sophiebrain is offline
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Originally Posted by mamagoo View Post
Search on here for Aunt Bean... and read about her fava beans... they have worked wonders for me
Thanks, I will look into it. Fava beans (broad bean or in Dutch; tuinbonen) are very common here, so I'm very curius about it. But I have to look how much and how to take them, to have them helping me.

bye Sophie
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Old 07-30-2011, 01:01 PM #4
tonijo tonijo is offline
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Quote:
Originally Posted by Sophiebrain View Post
Hi, I have have heavy mussle spasms in my upper body, and tremors for about 5,5 years now. In Dutch they called the spasms Myoclonieen, so that probably the same as Myoclonus. (I don't have a medical dictionary here).

The diagnoses I have got is; Conversion disorder or functional neurological movement disorder. Or -We don't know-

But the strange thing is that Parkinson medication (dopamine), helps a great deal for me. I'm a riddle for the medical world, because all my symtoms don't add up and the medication isn't suppose to work.

The last neurologist advised to Botox injections in my backmuscles. I didn't got much information about it. In the Netherlands it's only used on this scale in a medical trial. So i'm curius to read more here.

But for now I first want to see how far I can get with the Parkinson medication.

Keep posting!

Sophie
I have been told that if the carba/dopa helps it is probly parkingson or parkinsizim maybe check into it I also take carba /dopa (siniment ) and it helps my tremors so maybe something to check out tonijo
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