Quote:
Originally Posted by TexasTom
Complex regional pain syndrome (CRPS)
Have you been seen by a Movement Disorder Specialist? It take months (four is not uncommon) for initial appointment, but I would do that first!
My dystonia responded to Sinement (levodopa) and would sound way too familiar to you.
Dystonia will release when you sleep, for me it would often wake me up. So I suspect during REM I would relase but as I cam out of REM it would return (to me I was asleep, but woken by my twisted foot).
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Thanks for the reply
I don't know if we have movement specialists here in the UK, I have been seen by both rheumatology and neurology, but this was before the dystonia really started to become a problem so they mainly focused on the CRPS. I will definitely ask about it though because if there are some medications which I can try that might help that will be a lot better than having the splint done under general anaesthetic!
11-02-2016, 02:15 PM
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